Get email alerts Get Celiac.com E-mail Alerts  




Celiac.com Sponsor:
Celiac.com Sponsor:




Ads by Google:






   Get email alerts  Subscribe to FREE Celiac.com email alerts

Symptoms Of Celiac May Be Associated With Ic
0

Started by Ladyofire,

3 posts in this topic

Posted

I noticed many of you show symptoms of Interstitial Cystitis. For those who did not know IC is associated with Celiac, IBS, Fibromayalgia, etc. IC is a non curable bladder disease, and can be read about here www.ichelp.org I have lived with this since I was at least 12 and can answer any questions if possible. Good luck, we are stronger than most!

0

Share this post

Link to post
Share on other sites
Ads by Google:

Posted

I can't remember if I have this or not.  I do have some bladder issues.  The doc wanted to stick up a tube to take a look to see if the bladder was irritated.  I knew it was irritated.  I looked up the treatment for the problem they were looking for and it would be following a diet.  7/10 things on the diet I already knew to be a problem.  I opted to not do the test and just avoid the three other foods.  Since going gluten free and recovering my bladder has usually been peaceful.  I would be interested in hearing more about this problem if it is what I am talking about.  I am curious to know if my bladder will eventually tolerate these things.

 

I checked and IC is what I thought.  Chocolate and tomato were on the list.  I would like to see that it is connected with celiac and if there must be strict avoidance of all irritants, or if it causes only temporary symptoms.

 

D

0

Share this post

Link to post
Share on other sites

Posted

I was diagnosed with IC in Feb of this year and it was kind of a stepping stone to controlling my problems. I still have issues though. I take prelief wit meals, trying glucosamine and marshmallow root. my symptoms get worse if I drink something acidic or if I am close to my period. Sometimes I have to wake up over 5 times in the middle of the night. It's frustrating. I went through the instillations but I didn't make it to the final one due to the fact that the specialist was going on holidays for 2 weeks and they could not be performed without him being present in the hospital. All of my symptoms came back and I just couldn't be bothered to drive the hour and wait 3 hours at the hospital for another 6 weeks.  So it was a waste of time for the 4 weeks I had them. I've heard of people being able to do them themselves at home.



 

0

Share this post

Link to post
Share on other sites

Create an account or sign in to comment

You need to be a member in order to leave a comment

Create an account

Sign up for a new account in our community. It's easy!


Register a new account

Sign in

Already have an account? Sign in here.


Sign In Now
0
Go To Topic Listing Celiac Disease - Related Disorders & Research

  • Forum Statistics

    • Total Topics
      104,657
    • Total Posts
      921,628

  • Topics

  • Posts

    • GFinDC
      Account help

      By GFinDC · Posted

      Hi, you can try reporting your own post.  That should alert the site admin of your request.  I don't think they can delete your posts, but changing your user name may be possible.
    • GFinDC
      Hello new here. I think I may have Celiac Disease

      By GFinDC · Posted

      Hi Pablito, Welcome to the forum! You are right, you should keep eating gluten  until the tests are all done.  The skin problems you describe ma be a condition only celiacs get.  The condition is called dermatitis herpetiformis (DH for short),  DH causes an itchy rash that is usually symetrical on the body.  You get the rash on both arms or legs etc.  It makes little blisters on the skin.  They are caused by IgA antibodies in the skin.  There i a test for DH where they take a small skin sample (biopsy) from the skin next to a blister and check it for IgA antibodies.   If they find DH, then you have celiac disease.  The 2 conditions are never separate.  there is a section of this forum dedicated to dermatitis herpetiformis with lots more information. The usual diagnostic process is to do a celiac antibodies blood test first, and then an endoscopy to test for damage to the gut lining.  But with DH, it is better to get the skin biopsy done instead of the endoscopy. Celiac disease is passed on in genes, so your children should be tested also if you are diagnosed.
    • SusanNash
      Head Pressure And Dizziness: Related To Celiac Or Not?

      By SusanNash · Posted

      Research Celiac Ataxia for potential diagnosis. Look at Milk and dairy for potential head and sinus related issues.  I stopped dairy and I can breathe now! Saturated fat may also be a problem, but it's mostly dairy!
    • ravenwoodglass
      other food allergy testing

      By ravenwoodglass · Posted

      It is best not to try and do this on your own. Talk to your allergist. Not all will deal with food intolerances but if yours doesn't find one who will.  Mine had me fill out a very detailed diet questionaire and tested for true allergies before he gave me my starting point. I will admit I wasn't real happy with my starting point since none of my usual foods were on it. He said that I was most likely to react to foods I ate the most so most of the 5 I either rarely ate or didn't really like. The prescribed starting point he formulated was designed to make sure I had adaquate nutrition and enough calories.   It took about 2 weeks before a lot of my tummy issues resolved and I was then able to start adding foods in one at a time for a week before moving on to the next.  He said food intolerance reactions can take up to a week to show up so I had to be sure it was a full week between food additions. I did have to call three offices before I found a doctor who could do the formulation of the diet but this guy truely saved my life. Out of all the doctors I had seen, including specialists in big hospitals, he was the one responsible for finally realizing I was celiac. He of course referred me back to my clueless GI doctor who confirmed the diagnosis by almost killing me with a gluten challenge. I should note that some of my intolerance (not gluten of course) did resolve after I had healed. Even dairy which I hadn't been able to have for years! I hope you can get some answers and are able to heal soon.
    • pablito
      Hello new here. I think I may have Celiac Disease

      By pablito · Posted

      I'm 43 years old. I'm married and have two teen daughters. After all these years it was one of my daughters who tonight said to me: "you probably have Celiac disease" after hearing my wife and I talking about all the pimples I always get on my arms. I never heard of the disease but I have heard about a lot of people having gluten allergies and didn't know they were the same thing. So I started looking it up on the internet. Turns out I have had all the symptoms all my life and no one has ever said anything about it possibly being Celiac disease. When I was a kid my doctor gave me prescriptions to antibacterial soaps to use for the arm pimples. Hibitane I think was one of them. And I've always had swollen looking ankles as long as I can remember. All my life people have noticed it. As a kid and teen I played lot's of sports and have broken my ankles and sprained them so my mom and I brushed it off at that and so did my family doctor when I was young.  But I always thought it was weird that the swelling continued all these years.  I have had a bloated feeling stomach all my life too and chronic diarrhea. My stomach is always hard and swollen feeling. Not ever knowing what that stuff was related too so I have never mentioned the bloat or diarrhea to a doctor. Just kind of embarrassing I guess. As my wife and I were reading about Celiac Disease on the internet together tonight she pointed out to me that that's probably why these symptoms almost all went away when I did a very low carb diet for about a year straight to lose weight a couple years ago. I had solid bowel movements, no bloat, ankle swelling went down but I thought the improvements were from weight loss and just eating healthier . But perhaps in reality it probably had a lot more to do with not eating all the wheat products/gluten products. So tomorrow I will be seeing my doctor to talk to him about it and to ask for the blood tests. I have read that I should continue eating gluten though until my testing is done. So that is crappy but I guess it's better to know for sure. Something else I think I should point out too is that I get headaches quite a bit after having big meals. Now I am thinking that may have something to do with the gluten too. I have read that some people with Celiac also get headaches with the other symptoms. It's great to see there is a forum like this to help people out with these issues. If I test positive for Celiac I will for sure be following this forum closely for advice and diet/nutrition help.

  • Upcoming Events

  • Blog Entries

  • Recent Status Updates

  • Who's Online (See full list)

  • Member Statistics

    • Total Members
      61,657
    • Most Online
      3,093
    pablito
    Newest Member
    pablito
    Joined