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I was just diagnosed with Celiac 2 days ago. Now that the inital shock has worn off I have been doing some research online and I found this message board. I just wanted to introduce myself. I'm Kerri 29 and I beleive that I've had Celiac for at least 7 years if not longer. I have ALOT of symptoms including recurrent miscarriages. I've had 4 in all. My dr has put me on a detox program and of course the diet. I just wanted to ask you all how long it takes before you feel better?? Now that I know what I'm dealing with I'm anxious to feel better!! I have been to many many drs through the years all of which could not find the problem so they said it was "all in my head" I am sure you guys have been through all that before as well. I look forward to getting to know everyone soon! :)

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My name is Kerri and I've just been diagnosed with Celiac 2 days ago. I believe I've had this disease for the last 6-7 years. I've been to many many drs before only to be told that "it was all in my head." I'm sure many of you had the same problem. They now believe that this was the cause of my 4 miscarriages. I just have a quick question. Once you started the gluten-free diet how long did it take you to feel better? I look forward to getting to know you all soon. Thanks.

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Hi Kerri,

It does seem to take a bit of time. I'm starting to feel really good after about one and a half years. I do have to mention that there were quite a few accidents with gluten. Now I just cook all my own food in my own space, and cook from raw food. The only processed food I eat is canned salmon from Thailand (Chicken of the Sea). I figure the Thai people do not even eat gluten lunches in the salmon factory.

I think the biggest trick is to find a diet that works for you. I can eat fish, brown rice, chicken, and vegetables. That's about it. I gave up drinking anything but water. I know it sounds a bit extreme, but it works for me. I'll do whatever it takes to feel good. B)

Good luck with your gluten free diet. :D

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Hi Kerry,

Welcome here.

It seems like people have widely varying times before they start feeling better. That partly depends how much damage had been done before they were diagnosed, but also it seems to vary for other reasons that are less clear. It's hard for me to know how quickly I felt better, since my symptoms weren't totally clear-cut so I didn't know they had been symptoms until they were gone for a while. I bet that going gluten-free with really help you not miscarry again. One of the very first changes I noticed when I did it was that I went from getting my period only every two or three months to being close to regular, so it can definitely have an effect on fertility issues.

I feel like cheering every time someone comes here having finally gotten diagnosed as celiac. Not because it's such a picnic giving up gluten, but because their lives are going to improve so much. Maybe not right away, but sooner or later it is going to make such a difference to your health.

(Oh, and I eat more things than travelthomas. I still cook for myself most of the time, and it's hard to eat out a lot of places, but I have lots of foods I can eat. Definitely read the food and recipes sections here, though.)

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I have been gluten-free for 3 weeks now, and I am already starting to notice some improvements.... granted I have a long way to go, but I see improvements already!!

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TOTAL IMPROVEMENT in 3 months

my symptoms were

night blindness

fatique

skinny

dark circle under eyes

anemia

ostepenia (this will take awhile to reverse)

waking 2 or 3 times a night to use facilities

hemoroids

gained 16 pounds in 3 months and feel like running a race.

Had sympton for a least 9 years

Lisa F

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    • I_would_widen_the_search_to_your_whole_environment.....Carefully_consider_what_else_was_different_when_you_felt_better.
    • Thanks a lot for your advice and the link. I will surely check upon GCED. But, doesn't a negative HTTG (can't do IgA ttg as IgA deficiency) result mean that I am not exposed to gluten ? 
    • Thank you for going through my long post and responding. I have been both dairy and gluten-free free for 10 months now. Yes, even I was worried about other food allergies. I mentioned it to my GI doc and asked if I need food allergy test to eliminate other allergens. He said, food allergy tests give a lot of false positives and are not accurate. He said: not everything is because of food allergy and it's refractory celiac which is causing issues as the jejunum biopsy, done recently, is showing villous flattening.

      My doubt: 1. If I have so much damage in my small intestine (villous flattening) then how was I keeping fine for 6-7 months ( eating eggs, soy, rice and meat) - was constantly losing weight though - but was able to work out regularly - not much fatigue. 2. If it is other food allergens ( out of mentioned allergens, I take eggs, soy chunks, almonds only) why does it happen only few times and not always - I keep well for 7-8 days and then fall sick again - this without any change in diet.  
    • Oh, Trish at the GlutenFreeWatchDog tested Planter's honey roasted peanuts three years ago.  The can did not state gluten-free, but showed no gluten ingrediants (per Kraft policy).  Test result: less than 5 part per million which is pretty much gluten-free.  
    • What if it were something else that glutened you?  Maybe you ate too much of a good thing?  I once (three months post dx) ate too much gluten-free fried chicken, vomited, passed out and fractured my back (osteoporosis) in the process.  Paramedics, ER doc and Cardio all thought I was having a heart attack.   No.  It was sheer gluttony and bad bones.  Not good to overload with a damaged gut.    Maybe you did get some contaminated nuts.  Afterall, anything processed is suspect.  What might be well tolerated by some, might be too much for others.  We all have our various levels of gluten intolerance.   The old 20 parts per million is just a guideline, but science does not really know (lack of funding......doe anyone really care enough to find out?)  My hubby has been gluten-free for 15 years.  When I was first diagnosed, I tried to eat the gluten-free foods that I normally gave him.   Problem was he was healed and I was not.  Things like Xanthan Gum in commercial processed gluten-free breads make me feel like I have been glutened, but it is just (and still is) an intolerance.  So no bread for me unless I make it myself using a different gum.   Too lazy, so I do without.   so, ask your doctor if you really want to know or lay off the cashews and test them again in a month using a certified gluten-free nut.  I wish this was easier!    
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