Jump to content

Follow Us:   Twitter Facebook Celiac.com Forum RSS      

Get email alerts  Subscribe to FREE Celiac.com email alerts
arrowShare this page:
Subscribe Today!

Celiac.com Sponsor:
Celiac.com Sponsor:
- - - - -


  • Please log in to reply

4 replies to this topic



    New Community Member

  • Members
  • Pip
  • 5 posts

Posted 03 November 2013 - 06:46 PM

Has anyone else started having trouble sleeping?  month free of gluten and still havnt had a decent sleep yet since it started   eyes always feel heavy, if i look at something for to long i just started to day dream and have trouble concentrating   does anyone else have these problems and found any way to make it better? 

  • 0

Celiac.com Sponsor:



    New Community Member

  • Members
  • Pip
  • 3 posts

Posted 22 March 2014 - 06:09 AM

I use to always be tired. My boyfirend called it "being horizontal" because as soon as I sat down I fell asleep, especially if I needed to be visually focused on something that had minimal mental engagement. Movies were a joke. This was particularly difficult when I needed to meet deadlines for papers, my MA degree was obtained by me standing to read articles and write. Once going gluten free I was amazed by how much better I felt, and that I did not have to fight to stay awake while driving. However, even the smallest amount of gluten and I am right back to exhaustion, to the point that my eyes cross when trying to focus on driving. I also realized that soy lecithin and fructose caused this same reaction without the nausea. From what I have gathered, until the gut heals, we may be sensitive to certain foods that can cause gluten-like symptoms. This depends on how they are digested, one in particular being lactose because it is digested by the end of the villi which are damaged from gluten. I figured out my other allergies or triggers by taking data on when I felt the symptoms and cross comparing ingredients. I have found that I am only sensitive to these when I have been glutened. After a week or so, depending on how bad the glutening was, I will no longer have symptoms to soy lecithin and fructose. You may just need to cut back to a very simple diet until you have healed and then hopefully you will not have the symptoms. 

  • 0



    New Community Member

  • Members
  • Pip
  • 3 posts

Posted 22 March 2014 - 06:36 AM

In fact, here is an article that i found extremely helpful to explain why I was getting sick despite being what I thought was gluten free. Reading posts by people who had been gluten free for a while made me super depressed because I thought I was doomed to be super sensitive forever, but reading some of these articles helped me understand. 





I hope this helps. It may also be something else driving the sleep issues, particularly anxiety. My sleep issues were always worse when I was anxious and I could actually predict when I would sleep walk instead of just sleep talk. If a diet change does not help I would try to see what other factors it may be. I am a researcher so I love keeping data and it really helped me to find patterns that I otherwise may not have realized, but find what works for you. A food journal including symptoms and other important factors (stress, exercise, etc.) may work wonders. 

  • 0



    "The past is the past...I've got places to be."

  • Advanced Members
  • PipPipPipPipPipPip
  • 5,101 posts

Posted 22 March 2014 - 07:20 AM

This member hasn't been back since they started their account in November.  While Joshy may not repond - others may be interested in the information you have added.


When I flare we say I'm horizontal and when I improve I am vertical again -- presents a very clear visual description to family and friends.


Certified Gluten Free foods are safe for most people with celiac -- I can't eat them, it is not because of the microscopic amount of gluten they may contain - I have multiple other food intolerances which makes it extremely difficult to eat any processed foods.  I strongly suggest anyone newly diagnosed keep the processed foods - labeled gluten-free or not to a minimum and if possible only eat those with a few ingredients as it can be very tough to know what is bothering you on a ingredient list filled with artificial and chemical ingredients.


Welcome to the forum Nay :)

  • 0


Undiagnosed Celiac Disease ~ 43 years

3/26/09 gluten-free - dignosed celiac - blood 3/3/09, biopsy 3/26/09, double DQ2 / single DQ8 positive

10/25/13 - MCAD

Health history since celiac diagnosis became too long -- moved to the "about me" section of my profile

My children and I all have multiple copies of the genes for Celiac Disease, along with large variety of symptoms/resolution gluten-free

Current tally from me, three kids and two grands: 4 diagnosed with Celiac Disease, 2 NCGS


ALWAYS independently research health related information found on internet forums/blogs.

"LTES" a Gem :)



    Advanced Community Member

  • Advanced Members
  • PipPipPipPipPipPip
  • 256 posts

Posted 22 March 2014 - 03:47 PM

I could actually predict when I would sleep walk instead of just sleep talk.

Thank you for the post. I just realized my lifelong issue with sleep talking/walking disappeared. *woot*! It makes me wonder if my college roomie has gluten issues. She's 4'10". Our dorm room neighbors told us we'd regularly talk all night long! Sleep gossip ;)

In Biology, I remember my head bobbing and on one occasion, holding my eyelids open. That was not pleasant.

Anyway, I definitely go "horizontal" when my body is reacting and my anxiety increases. My adrenals were put through the ringer so sleep is impacted doubly when my body is in fight mode.

I keep processed foods to just once in a while. In the beginning, I ate a lot of gluten-free food. After going gluten-free, I was completely unprepared for what came next. Being underweight, exhausted, confused, out of my mind and hungry, I ate processed gluten-free food as a transition to get calories in. My aunt told me not to eat that stuff but I was hungry! After figuring out to eat whole foods, it became clear I was on a better track. I am also intolerant of a lot of other foods and don't have the gut for chemicals probably because it all just went on too long.

In '06, we took a trip to a health resort to recover me from an unexplained 2-month stomach illness (hmmm). The place grew their food organically on their land and bought fish from the local fishermen. The before and after pictures are unbelievable. I went from looking ill to the prime of my life (in a week!). I'm guessing I was temporarily gluten-free as the only tortillas they had were corn. I ended up falling ill again after returning home and the saga continued for six more years. I think the sooner this is caught, the better.

Anxiety can give me symptoms and gluten gives me anxiety. It goes both ways for me. The longer I can sleep at night, the stronger I feel the next day.

Welcome Nay :)
  • 0
Healing little by little. Functional Medicine is helping.
2015: Celiac dx, sleep apnea, chronic dehydration/malabsorption. Receiving Vit D treatment +iron, IV nutrient therapy, CPAP
Year 2: Mental clarity improving (and year 3 still improving!)
October 2013-14: low heart rate, low BP, arrhythmia = better! '15
September 2013: 55+ food intolerances, mercury poisoning, sIgA 50, leaky gut, adrenal fatigue, hormone disruption, ferritin 7, low Vit D, low Vit B6
November 2012: Gluten-Free
Year 1: Migraines resolved, OCD diminished, Change in skin texture, EyeBrows lifting & eyes bigger, Better memory, Better cognitive function, Better problem-solving capabilities, Lower anxiety level, Better outlook, Arrhythmia reduced, hope
2006-2012: Multiple unexplained illnesses; 2009: anemic; iron infusions
2005: undx celiac crisis, 2 months of hell & never to return to normal

0 user(s) are reading this topic

0 members, 0 guests, 0 anonymous users

Celiac.com Sponsors: