Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Sleep


joshy

Recommended Posts

joshy Newbie

Has anyone else started having trouble sleeping?  month free of gluten and still havnt had a decent sleep yet since it started   eyes always feel heavy, if i look at something for to long i just started to day dream and have trouble concentrating   does anyone else have these problems and found any way to make it better? 

  • 4 months later...

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



NayRPM Newbie

I use to always be tired. My boyfirend called it "being horizontal" because as soon as I sat down I fell asleep, especially if I needed to be visually focused on something that had minimal mental engagement. Movies were a joke. This was particularly difficult when I needed to meet deadlines for papers, my MA degree was obtained by me standing to read articles and write. Once going gluten free I was amazed by how much better I felt, and that I did not have to fight to stay awake while driving. However, even the smallest amount of gluten and I am right back to exhaustion, to the point that my eyes cross when trying to focus on driving. I also realized that soy lecithin and fructose caused this same reaction without the nausea. From what I have gathered, until the gut heals, we may be sensitive to certain foods that can cause gluten-like symptoms. This depends on how they are digested, one in particular being lactose because it is digested by the end of the villi which are damaged from gluten. I figured out my other allergies or triggers by taking data on when I felt the symptoms and cross comparing ingredients. I have found that I am only sensitive to these when I have been glutened. After a week or so, depending on how bad the glutening was, I will no longer have symptoms to soy lecithin and fructose. You may just need to cut back to a very simple diet until you have healed and then hopefully you will not have the symptoms. 

NayRPM Newbie

In fact, here is an article that i found extremely helpful to explain why I was getting sick despite being what I thought was gluten free. Reading posts by people who had been gluten free for a while made me super depressed because I thought I was doomed to be super sensitive forever, but reading some of these articles helped me understand. 

 

Open Original Shared Link

Open Original Shared Link

 

I hope this helps. It may also be something else driving the sleep issues, particularly anxiety. My sleep issues were always worse when I was anxious and I could actually predict when I would sleep walk instead of just sleep talk. If a diet change does not help I would try to see what other factors it may be. I am a researcher so I love keeping data and it really helped me to find patterns that I otherwise may not have realized, but find what works for you. A food journal including symptoms and other important factors (stress, exercise, etc.) may work wonders. 

GottaSki Mentor

This member hasn't been back since they started their account in November.  While Joshy may not repond - others may be interested in the information you have added.

 

When I flare we say I'm horizontal and when I improve I am vertical again -- presents a very clear visual description to family and friends.

 

Certified Gluten Free foods are safe for most people with celiac -- I can't eat them, it is not because of the microscopic amount of gluten they may contain - I have multiple other food intolerances which makes it extremely difficult to eat any processed foods.  I strongly suggest anyone newly diagnosed keep the processed foods - labeled gluten-free or not to a minimum and if possible only eat those with a few ingredients as it can be very tough to know what is bothering you on a ingredient list filled with artificial and chemical ingredients.

 

Welcome to the forum Nay :)

CaliSparrow Collaborator

I could actually predict when I would sleep walk instead of just sleep talk.

Thank you for the post. I just realized my lifelong issue with sleep talking/walking disappeared. *woot*! It makes me wonder if my college roomie has gluten issues. She's 4'10". Our dorm room neighbors told us we'd regularly talk all night long! Sleep gossip ;)

In Biology, I remember my head bobbing and on one occasion, holding my eyelids open. That was not pleasant.

Anyway, I definitely go "horizontal" when my body is reacting and my anxiety increases. My adrenals were put through the ringer so sleep is impacted doubly when my body is in fight mode.

I keep processed foods to just once in a while. In the beginning, I ate a lot of gluten-free food. After going gluten-free, I was completely unprepared for what came next. Being underweight, exhausted, confused, out of my mind and hungry, I ate processed gluten-free food as a transition to get calories in. My aunt told me not to eat that stuff but I was hungry! After figuring out to eat whole foods, it became clear I was on a better track. I am also intolerant of a lot of other foods and don't have the gut for chemicals probably because it all just went on too long.

In '06, we took a trip to a health resort to recover me from an unexplained 2-month stomach illness (hmmm). The place grew their food organically on their land and bought fish from the local fishermen. The before and after pictures are unbelievable. I went from looking ill to the prime of my life (in a week!). I'm guessing I was temporarily gluten-free as the only tortillas they had were corn. I ended up falling ill again after returning home and the saga continued for six more years. I think the sooner this is caught, the better.

Anxiety can give me symptoms and gluten gives me anxiety. It goes both ways for me. The longer I can sleep at night, the stronger I feel the next day.

Welcome Nay :)

Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      130,153
    • Most Online (within 30 mins)
      7,748

    lucianesouza
    Newest Member
    lucianesouza
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.3k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • mermaidluver22
      @Scott Adams Thank you so much for this thoughtful and encouraging reply 💛 It really helps me feel less alone navigating all of this! I’ve definitely been strict gluten-free, but I’ll admit — in the beginning, I honestly knew nothing about cross-contamination 😅 so it’s very possible my gut is still healing from that. I feel very abnormal because I am not a typical celiac or a typical Crohn's, so it makes me feel very stuck. 
    • nanny marley
      Hi still the same unfortunately, they had to cancel my colonoscopy due to my trapped nerve , I'm awaiting some kind of scan , it was the nurses who  told me to refuse and asked a docter , and I was told to cancel and go back to my consultant , I think because my sciatic nerve is compressed between my herniated discs , the prep was enough I could handle , but the colonoscopy itself , they advised me to seek something different ,due to the position I had to be in and the movements , so I will update Wen I know more , thankyou for asking appreciated 🤗
    • Scott Adams
      It sounds like you're navigating a complex situation with your celiac disease, and it’s understandable to feel confused by the GI world! While celiac disease typically affects the duodenum and proximal small intestine, it’s possible for inflammation to extend to the ileum, especially in cases of more severe or longstanding damage. Since your tTG-IgA remains elevated despite a strict gluten-free diet, this could indicate ongoing healing or subtle gluten exposure. The ileal inflammation might still be related to celiac, though it’s good your doctor is ruling out other conditions like Crohn’s, given the nonspecific biopsy findings. Some people with celiac do report ileal involvement, particularly if they have refractory disease or delayed healing. Keeping close follow-up with your GI and possibly revisiting your diet for hidden gluten sources could help. Hang in there—it’s a journey, and you’re doing great by staying proactive!
    • mermaidluver22
      hi, how are u now? any answers?
    • mermaidluver22
      I have biopsy-confirmed celiac disease and have been strictly gluten-free, but my tTG-IgA is still elevated, so I know I'm still healing. I recently had a capsule endoscopy that showed small erosions and inflammation only in the distal ileum — nothing in the upper small intestine. My GI isn’t calling it Crohn’s yet because biopsies showed only mild, non-specific inflammation with no chronic features. Has anyone experienced celiac impacting their ileum as well? the gi world is so confusing! thank u ❤️ 
×
×
  • Create New...