Where Do I Begin?
Posted 08 April 2004 - 06:11 AM
My 5 yr old had a biopsy a month or so ago and that came back neg. Her initial blood test came back post. So here we are GI dr says its not celiac. and wants me to try bio medical feedback for pain wothout even telling us why she is sick all the time they have no answers. She is constanly comp[laining about stomach pain and headaches her belly is almost always swollen, She asks me to make it stop, I don't even no what to do to help her. So dad and I deceided as well as her reg. Pedi to try going gluten-free and see if there is improvment. So here is my question Were do I begin????? She is a fussy eater already but she will eat fruits veggies and some meat are these all ok? do you find any brands are best tasting for kids? please help
I walked around trader joes dumbfounded. any recipes or premade suggestions would be great !! thanks
Also I got the name of a GI dr in Boston do you think I should get A second opinon does anyone know of a good pedi gi in boston-metrowest area?
Posted 08 April 2004 - 06:43 AM
The diet is NOT as restrictive as it may seem at first as you can find or make good tasting gluten-free substitutes for almost everything--even bread and cake! Also, online stores like the Gluten-Free Pantry are very helpful--you don't have to scrutinize what you buy there.
I think trying a gluten-free diet for a while might be just the ticket! I really hope Em feels better soon!
You might want to get tested yourself if it turns out she responds well to the new diet.
Posted 08 April 2004 - 08:17 AM
The Lord bless you and keep you; the Lord make His face shine upon you and be gracious to you." Numbers 6:24-25
Posted 08 April 2004 - 08:30 AM
Posted 08 April 2004 - 03:41 PM
I live in the Boston/MetroWest area. My daughter's pediGI doctor is Dr. Glen Furuta of Children's Hospital. He has appointments in Boston and Lexington. We really liked him. My GI doctor is Dr. Crimaldi in Milford, MA. He sees children as well as adults... also very good.
After a year of being gluten-free myself, and 4 months with my daughter gluten-free, I have finally managed to be able to fill my grocery cart at Shaw's (they have a great gluten-free section in the Wild Harvest section of their stores) and their store brand products are listed in the CSA Celiacs Gluten Free Product listing guide.
If you want, I can forward you my weekly shopping list! There are a lot of "mainstream" products your daughter can eat! My daughter is 8. I have to say planning meals for her (outside of the home) is more challenging than myself most days!
Let me know how much info you need!
I found the gluten-free books to be a bit overwhelming at first!
Diagnosed 3/03 (Positive Biopsy/Negative Blood Tests)
Daughter dx 12/03 (Positive biopsy/Positive blood tests);
Two sons (Negative blood tests); One on gluten-free diet (6/04) ... cured his persistent, severe headaches.
Posted 13 April 2004 - 09:24 AM
Hi -- I just wanted to add that if you haven't tried corn bread for your daughter yet she might really enjoy it. There are some good gluten-free mixes on the market, but I also use the regular Indian Head brand available in most supermarkets & use the recipe on the back. I am also lactose intolerant right now so I substitute soy milk (Silk brand) for the milk and it comes out fine. There's some iron and folic acid, etc. in Indian Head so it's got some nutrition...my kids like the corn bread with honey or jam.
Posted 18 April 2004 - 05:33 PM
Depending on where you live, there is an AWESOME store in Stoneham Mass on Main St that I go to all the time. The Natural Food Exchange. They have all the good stuff that I think every child should have. Chocolate Chip muffins by Kinnikinick, Dinosaur Chicken Nuggets - Wellshire Kids (I have also found these at Bread and Circus), Schar pastas, Schar Breadsticks - the crunchy kind, Enviro Kids Frosted Flakes and Organic Rice bars, TONS of different kinds of cookies and snacks, donuts, Kinikinnick sandwich bread etc..
They also have Gluten free vitamins, skin lotions etc. There is a really great selection of gluten free foods and I love bringing my daughter there because it is all seperated, so when we go in the gluten-free section - everything she looks at she can have. It brings tears to my eyes, to be able to answer that awful question "Can I have that?" with a YES YOU CAN!
Another thing that I have found at Bread and Circus is Heinz Cream of Tomato Soup - it is Gluten Free but you wouldn't know it unless you looked at the fine print where it actually states it. I think they are afraid of scaring off the gluten lovers .
Well I hope this helps a little!
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