Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Celiac.com!
    eNewsletter
    Donate

Night Terrors, Sleep Disorders And Celiac


jeremy'smom

Recommended Posts

jeremy'smom Newbie

My four year old has suffered with night terrors since birth. The problem goes away according to the strictness of our gluten free diet. (thank god he was finally diagnosed 8 mos. ago) My problem is this, when i realize that he is having a reaction during the day (uncontrollable diarrhea), i know that we will all suffer thru the night, hours of screaming, moaning and sleep walking. i am wondering if anyone can give information about supplementing minerals, or ways to soothe the inflammation of the duodenum (since a typical reaction lasts about 48 hours)

Thanks!

Link to comment
Share on other sites

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



flagbabyds Collaborator

I am a 13 year old celiac who was diagonised when i was 20 months. I have had severe sleep walking problems in the last two months but we found a cure a couple weeks ago. The thing to do is to wake the child up 15 minutes before the time you expect the child to start sleepwalking. I don't know if this will work but it sure has for me

MOLLYDS

Link to comment
Share on other sites
SofiEmiMom Enthusiast

Dear Jeremy's Mom:

I wish I had an answer for you...I would be interested in what other people say about this as well. My daughter who is almost 4 has the exact same problem, minus the sleep walking. She wakes up screaming several times a night when she has a gluten accident. I know it's coming too when during the day she cries at absolutely everything. I can certainly relate to how you are feeling. It's so difficult. Just wanted to let you know you aren't alone.

Link to comment
Share on other sites
kejohe Apprentice

Hi there, I posted in the sleep catagory not too long ago about my son's sleep issues. He's three now, and still has trouble sleeping through the night. He was diagnosed about two years ago, and since then it seems like his night time issues have lessened but he still wakes up 3 and 4 times a night with the occasional night terror as well. He used to have the terrors once every couple of nights, now it's about once or twice a month.

There was a mention of a digestive enzyme that may help a little. I believe it comes in a pill form, but I do not know if they have a childrens dose. You might research it a bit at your health food store to see what is available and then talk to your kids gastro doc or pediatrician. It's worth a try anyway.

I know what it's like to have your baby screaming and to be unable to wake them up and calm them is heart breaking. I hope that this helps a little, if only to let you know that you are not alone.

Link to comment
Share on other sites
  • 1 year later...
snoopylian Apprentice

My three year old suffers night terrors when he eats gluten too. When going gluten-free it was a nice surprise to begin sleeping through the night. I'm sorry to hear that others have experienced this but it also nice to know that we aren't alone there.

In regards to your question, I AM NOT A DOCTOR - but I've done a lot of reasearch on probiotics, digestive enzymes, essential fatty acids, homeopathic remedies, acupressure etc since my son was born with severe eczema three and a half years ago. I've also picked the brains of many nutritionists, homeopathic practioners, and anyone who has any knowledge on the prior mentioned subjects. :) Anyway, I think probiotics daily would help. And I would give him a double dose when he accidentally consumed gluten. You can do some research on probiotics if you're interested. Basically, probiotics are good bacteria that most of us are lacking. They promote a healthy intestinal balance therefore aiding in strengthening your immune system. We use acidophilus pearls by Enzymatic Therapy - the best price I've found is at this website - Open Original Shared Link. Whole Foods sells a liquid probiotic, I can't remember the name, that is supposed to be really powerful & good but it is very expensive.

In regards to digestive enzymes I give my son THERA-ZYME DGST-P, which comes in powder form. I get it from an oriental medicine doctor who does acupressure, acupuncture, kinesiology, allergy desensitisation etc. I don't know if you can order the enzymes via telephone or website but their # is 972-473-9070, website- www.integratedcenterfororientalmedicine.com

Well I hope that has helped. Good luck.

Link to comment
Share on other sites
  • 7 years later...
AlwaysLearning Collaborator

Whoa, seven years late seeing this thread!

If you're looking for a simple cause, I read that sleep walking/talking/night terrors can be triggered by acid reflux. So I suppose it could make sense that a person suffering from a digestive problem would be more likely to have these night-time problems.

You could try asking a child if they have any of the symptoms of acid reflux.

If you determine that they do, perhaps limiting foods that are known to cause acid reflux to earlier in the day could be enough to at least lessen the problem?

And I know many parents limit how much water their children drink in the evenings to lessen the chance of bed wetting, but for most adults drinking some water would be the first choice for diluting stomach acid.

Another way to combat acid reflux is to eat foods in the order of how quickly they leave the stomach. So vegetables first, carbs in the middle, and meats last. That is supposed to avoid having the salad start to rot on top as it waits for the steak to move out of the way, something we should all be paying attention to.

And though the medical community used to say that acid reflux was normal in children, now I'm seeing them recommending to mention the symptom to your child's doctor, and that it should go away after infancy.

I know when I was a kid, I thought acid reflux was normal, and I was a big-time sleep walker and talker. I do know that my adult relatives who suffer from night terrors attribute them to acid reflux and GERD.

Link to comment
Share on other sites

Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      121,072
    • Most Online (within 30 mins)
      7,748

    SherryT
    Newest Member
    SherryT
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      120.3k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • Fluka66
      Thank you again for your reply and comments which I have read carefully as I appreciate any input at this stage. I'm tending to listen to what my body wants me to do, having been in agony for many years any respite has been welcome and avoiding all wheat and lactose has thankfully brought this.  When in pain before I was seen by a number of gynacologists as I had 22 fibroids and had an operation 13 years ago to shrink them . However the pain remained and intensified to the point over the years where I began passing out. I was in and out of a&e during covid when waiting rooms where empty. My present diet is the only thing that's given me any hope for the future. As I say I had never heard of celiac disease before starting so I guess had this not come up in a conversation I would just have carried on. It was the swollen lymph node that sent me to a boots pharmacist who immediately sent me to a&e where a Dr asked questions prescribed antibiotics and then back to my GP. I'm now waiting for my hospital appointment . Hope this answers your question. I found out more about the disease because I googled something I wouldn't normally do, it did shed light on the disease but I also read some things that this disease can do. On good days I actually hope I haven't got this but on further investigation my mother's side of the family all Celtic have had various problems 're stomach pain my poor grandmother cried in pain as did her sister whilst two of her brother's survived WW2 but died from ulcers put down to stress of fighting.  Wishing you well with your recovery.  Many thanks  
    • knitty kitty
      Welcome to the forum, @Nacina, What supplements is your son taking?
    • knitty kitty
      @BluegrassCeliac, I'm agreeing.  It's a good thing taking magnesium. And B vitamins. Magnesium and Thiamine work together.  If you supplement the B vitamins which include Thiamine, but don't have sufficient magnesium, Thiamine won't work well.  If you take Magnesium, but not Thiamine, magnesium won't work as well by itself. Hydrochlorothiazide HCTZ is a sulfonamide drug, a sulfa drug.  So are proton pump inhibitors PPIs, and SSRIs. High dose Thiamine is used to resolve cytokine storms.  High dose Thiamine was used in patients having cytokine storms in Covid infections.  Magnesium supplementation also improves cytokine storms, and was also used during Covid. How's your Vitamin D? References: Thiamine and magnesium deficiencies: keys to disease https://pubmed.ncbi.nlm.nih.gov/25542071/ Hiding in Plain Sight: Modern Thiamine Deficiency https://www.ncbi.nlm.nih.gov/pmc/articles/PMC8533683/ The Effect of a High-Dose Vitamin B Multivitamin Supplement on the Relationship between Brain Metabolism and Blood Biomarkers of Oxidative Stress: A Randomized Control Trial https://www.ncbi.nlm.nih.gov/pmc/articles/PMC6316433/ High‐dose Vitamin B6 supplementation reduces anxiety and strengthens visual surround suppression https://www.ncbi.nlm.nih.gov/pmc/articles/PMC9787829/ Repurposing Treatment of Wernicke-Korsakoff Syndrome for Th-17 Cell Immune Storm Syndrome and Neurological Symptoms in COVID-19: Thiamine Efficacy and Safety, In-Vitro Evidence and Pharmacokinetic Profile https://pubmed.ncbi.nlm.nih.gov/33737877/ Higher Intake of Dietary Magnesium Is Inversely Associated With COVID-19 Severity and Symptoms in Hospitalized Patients: A Cross-Sectional Study https://www.ncbi.nlm.nih.gov/pmc/articles/PMC9132593/ Magnesium and Vitamin D Deficiency as a Potential Cause of Immune Dysfunction, Cytokine Storm and Disseminated Intravascular Coagulation in covid-19 patients https://www.ncbi.nlm.nih.gov/pmc/articles/PMC7861592/ Sulfonamide Hypersensitivity https://pubmed.ncbi.nlm.nih.gov/31495421/
    • BluegrassCeliac
      Hi,   Not saying Thiamine (B1) couldn't be an issue as well, but Mg was definitely the cause of my problems. It's the only thing that worked. I supplemented with B vitamins, but that didn't change anything, in fact they made me sick. Mg stopped all my muscle pain (HCTZ) within a few months and fixed all the intestinal problems HCTZ caused as well. Mom has an allergy to some sulfa drugs (IgG Celiac too), but I don't think I've ever taken them. Mg boosted my energy as well. It solved a lot of problems. I take 1000mg MgO a day with no problems. I boost absorption with Vitamin D. Some people can't take MgO,  like mom, she takes Mg Glycinate. It's one of those things that someone has try and find the right form for themselves. Everyone's different. Mg deficiency can cause anxiety and is a treatment for it. A pharmacist gave me a list of drugs years ago that cause Mg deficiency: PPIs, H2 bockers, HCTZ, some beta blockers (metoprolol which I've taken -- horrible side effects), some anti-anxiety meds too were on it. I posted because I saw he was an IgG celiac. He's the first one I've seen in 20 years, other than my family. We're rare. All the celiacs I've met are IgA. Finding healthcare is a nightmare. Just trying to help. B  
    • Scott Adams
      It sounds like you've been through a lot with your son's health journey, and it's understandable that you're seeking answers and solutions. Given the complexity of his symptoms and medical history, it might be beneficial to explore a few avenues: Encourage your son to keep a detailed journal of his symptoms, including when they occur, their severity, any triggers or patterns, and how they impact his daily life. This information can be valuable during medical consultations and may help identify correlations or trends. Consider seeking opinions from specialized medical centers or academic hospitals that have multidisciplinary teams specializing in gastrointestinal disorders, especially those related to Celiac disease and Eosinophilic Esophagitis (EOE). These centers often have experts who deal with complex cases and can offer a comprehensive evaluation. Since you've already explored alternative medicine with a nutrition response doctor and a gut detox diet, you may want to consider consulting a functional medicine practitioner. They take a holistic approach to health, looking at underlying causes and imbalances that may contribute to symptoms. Given his low vitamin D levels and other nutritional markers, a thorough nutritional assessment by a registered dietitian or nutritionist specializing in gastrointestinal health could provide insights into any deficiencies or dietary adjustments that might help alleviate symptoms. In addition to routine tests, consider asking about more specialized tests that may not be part of standard screenings. These could include comprehensive stool analyses, food intolerance testing, allergy panels, or advanced imaging studies to assess gut health.
×
×
  • Create New...