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Celiac Disease Segment On "moms On The Move"
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Started by TriticusToxicum,

4 posts in this topic

Posted

I was flipping through the channels tonight (Wednesday) and I heard the magic word "gluten". I stopped to see what I was missing, and it was a whole segment on Celiac Disease on this show I've never heard of "Moms on the Move" on PAX... sort of a feel good moms save the world show. They interview a woman who saw 22 doctors before being diagnosed. Check it out here.

It was a pretty good segment.

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Posted

Thank you for sharing this Richard. It was a good article. I read it, instead of listening - he he.

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Posted

Nice!

Good Housekeeping did an article a few months back. I think it featured Alice Bast as well.

Thank you for sharing!

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Posted

Here's a link to the featured guests' website. It mentions that celiac disease will get a mention in BOTH Fortune and Money magazines!

http://www.celiaccentral.org/

Fortune and Money magazines to feature celiac disease

"This is a tremendous opportunity to raise awareness for celiac disease! Time Warner has approached NFCA asking us to work on a joint project for celiac disease for two of their publications, FORTUNE and MONEY magazines.

From time to time, FORTUNE and MONEY include special information features on a specific topic. We are pleased and proud to say that their special sections for the November 13th issue of FORTUNE and the December issue of MONEY will be about celiac disease.

Quite naturally, they have asked us for some direction in securing sponsors for advertisements and supporting text. It is unlikely that the Time Warner sales contacts will know about celiac disease or understand why this section is so important. Our goal is to steer these Time Warner sales folks to the right department or to someone will advocate that an ad be placed in this Special Section.

NFCA is reaching out to the celiac community for any help you can give us by forwarding this information to potential corporate sponsors and/or offering to make introductions. The one-page description of the benefits of advertising in this Special Section of FORTUNE and MONEY shown below gives more information about the program. "

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Go To Topic Listing Celiac Disease - Publications & Publicity

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    • egs1707
      Overwhelmed and unable to accept

      By egs1707 · Posted

      Yes please, that'd be awesome Having a fun time trying to reply on my phone due to broken screen but will be back on tomorrow after results of doctor appointment to get to the bottom of why they've given me seemingly wrong advice re: next steps. Yup I'll admit to pity, anger, frustration and outright fear, been through the mill of emotions in this first week that's for sure. One thing before I go for that; back when I was self-diagnosing I wanted a full thyroid panel (T3, T4 etc.) and also ESR & CRP checks for vasculitis and similar maladies. Now it seems from my reading they can often follow celiac so my worry level of those has gone up a notch, more blood tests ahoy it seems? Main reason for worrying about those is the nearly constant tight / tender head I have at the moment. Top and sides of scalp. Could be the stress tensing the shoulders and occipital muscles at back of head but after the celiac diagnosis being missed I'm fearful of anything else being missed. Did anyone else have this tight head feeling at the start? Feels like the skin is being pulled inwards, sometimes goes down for a few minutes here and there and gets worse when sitting I think. I see the term "brain fog" a lot but luckily don't seem to have too much of that at present, this is more a physical sensation.
    • Irene Joanne
      other food allergy testing

      By Irene Joanne · Posted

      I don't have a lot of faith in the allergy testing naturalpaths do. I had them done, but really it wasn't very helpful. Foods that were okay on the blood work- I was still having obvious reactions to. Skin testing through an allergist didn't show up food allergies either. I agree the food elimination diet is a better way to go and doesn't cost a bunch of money. I did a whole 30 diet a while back that could have been helpful if the foods I reacted to were corn, dairy,  soy, grains and sugar- but I react to more than that.  I do need to do a major elimination diet- just haven't gotten up the willpower yet.   
    • FranDaMan
      TGI Fridays Buns

      By FranDaMan · Posted

      Quick search gave too many responses to TGI Fridays but none to TGI Fridays Buns (or similar) so... I was talking with my sister-in-law (Gluten Intolerant) and she spoke highly of a pre-packaged bun from Fridays. I was hesitant but she gave me one (apparently you can buy them from the restaurant?) and I tried it. Since I'm slow to react I won't know about gluten for a bit but I can definitely say it is the closest to "real" I've had in years! Spongy, doesn't crumble while eating a sandwich and tastes good. Color me impressed! I tried to determine the manufacturer or if Fridays actually makes them but I can't locate anything worth pursuing. Anyone have information on this? Thanks in advance.
    • KerryO
      Stool Testing

      By KerryO · Posted

      Thanks cyclinglady! I will!
    • ravenwoodglass
      other food allergy testing

      By ravenwoodglass · Posted

      You could ask the allergist to give you a starting point for an elimination diet. You would start out with 5 or so foods and then add in one new food a week to see if you react. If you react you of course drop that food. It is a bit of a pain as everything has to be basically single ingredient to start.  My allergist felt that was the best way to go and more accurate than blood testing.

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