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Rash!

DebNC84

By DebNC84
in Coping with Celiac Disease

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DebNC84 Apprentice
DebNC84
Posted

I've just started out in this forum - Blood tests are being done this week for Coeliac - Thank the Lord for the internet - otherwise I would still be go crazy with the horrible rash I've suffered with for about 9 mos. I'm sure everyone has their own horror stories.. but I actually had a dermatologist tell me it was excema and I had to learn to live with it. "sorry" he said. "Use this soap and only one shower a day" "It's dry skin - you're probably bathing too much" WHAT! Not good enough for me. Another Derm. office gave me prednisone which knocked it out for awhile - suspecting "nerves" - told me to take some time for myself while we were trying to see if it were a medical issue - biopsy came back with possible Lupus (blood tested-neg.) again - no real answers... then I found a site that described my rash perfectly - I have been gluten-free for 1 1/2 weeks and the rash is gone... almost no itching!! swelling has gone down in my body ( I was just so puffy!) no gas - no bloating - I just plain feel better! Everyone was looking at the symptoms and checking for possibles... Hepatitis, Hashimotos (my thyroid levels are a little off), one blood test and scare after another. Now i'm seeing that possibly my mood swings might be caused by this gluten intolerance! I've had this rash in a mild manner all my life (only on my hands and feet- and only occasional) I remember as a child a itchy rash on the tops of my feet - but of course it was always excema... !!!!! Obviously this is why my iron levels have been low for years.

Well - thanks for listening... I'm going to read more and try to absorb some knowledge. It looks like I'm joining your "club"!!

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gfgypsyqueen Enthusiast
gfgypsyqueen
Posted

Glad you found the reason for the mystery rash. Amazing what "healthy whole grain" foods can do to a body huh! Hope you start feeling better soon.

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      Terrible Neurological Symptoms

      By Jane02 · Posted

      Sorry, I just realized how old this thread is and only read the initial post from 2021. I'll have to catch up on the comments in this thread. 
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      By Jane02 · Posted

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      This sounds very similar to the neuropathic pain I experienced with type two diabetes.  Gloves and boots pattern of neuropathy is common with deficiencies in Cobalamine B12 (especially the pain in the big toe), Niacin B3, and Pyridoxine B6.  These are vitamins frequently found to be low in people with pre-diabetes and diabetes.  Remember that blood tests for vitamin levels is terribly inaccurate.  You can have vitamin deficiencies before there are any changes in blood levels.  You can have "normal" serum levels, but be deficient inside organs and tissues where the vitamins are actually utilized.  The blood is a transportation system, moving vitamins absorbed in the intestines to organs and tissues.  Just because there's trucks on the highway doesn't mean that the warehouses are full.  The body will drain organs and tissues of their stored vitamins and send them via the bloodstream to important organs like the brain and heart.  Meanwhile, the organs and tissues are depleted and function less well.   Eating a diet high in simple carbohydrates can spike blood sugar after meals.  Eating a diet high in carbohydrates consistently over time can cause worsening of symptoms.  Thiamine and other B vitamins like Niacin B3 and Pyridoxine B6, (which I noticed you are not supplementing), are needed to turn carbs, proteins and fats into energy for the body to use.  Alcohol consumption can lower blood sugar levels, and hence, alleviate the neuropathic pain.  Alcohol destroys many B vitamins, especially Pyridoxine, Thiamine and Niacin.  With alcohol consumption, blood glucose is turned into fat, stored in the liver or abdomen, then burned for fuel, thus lowering blood glucose levels.  With the cessation of alcohol and continued high carb diet, the blood glucose levels rise again over time, resulting in worsening neuropathy.   Heavy exercise can also further delete B vitamins.  Thiamine and Niacin work in balance with each other.  Sort of like a teeter-totter, thiamine is used to produce energy and Niacin is then used to reset the cycle for thiamine one used again to produce energy.  If there's no Niacin, then the energy production cycle can't reset.  Niacin is important in regulating electrolytes for nerve impulse conduction.  Electrolyte imbalance can cause neuropathic pain.   Talk to your doctors about testing for Type Two diabetes or pre-diabetes beyond an A1C test since alcohol consumption can lower A1C giving inaccurate results. Talk to your doctors about supplementing with ALL eight B vitamins, and correcting deficiencies in Pyridoxine, Niacin, and B12.  Hope this helps! Clinical trial: B vitamins improve health in patients with coeliac disease living on a gluten-free diet https://pubmed.ncbi.nlm.nih.gov/19154566/ P. S.  Get checked for Vitamin C deficiency, aka Scurvy.  People with Diabetes and those who consume alcohol are often low in Vitamin C which can contribute to peripheral neuropathy.
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