3 replies to this topic

[celiac3270]

Completely normal.......you can go months or even a year without getting better and without making any mistakes and even that can be normal. A month surely isn't enough time for your body to heal. My dr. compared it to a train or some moving vehicle. Think of a car or train going at top speed -- that's like the celiac tearing up your body at topspeed. When you start the diet, you slam on the brakes, but it still takes awhile for the train to come to a complete stop. I've been 8 months and I'm not better. Endos have shown that I'm not injesting accidental gluten, no problem with any other organs, no other allergies.....it takes time....and one month, in most people, is not nearly enough.

[celiac3270]

Sure .......I just went back to read your post again and I realized that I hadn't really noticed the first time what you said about cleaning out the system.....that's the same sort of impression I get about my system 8 1/2 months into the diet. I still get sick and, as a matter of fact, I'm sick right now. I went into school to take a test (I'm out often enough to begin with, so I try to tough it out when I can) and I came home around 1:00. Fortunately, the cramping isn't as debilitating as it used to be, so I can at least lie here with my knees to my chest and type

I keep my meals down, but then again, I usually did that in the past. It's just, every few days I'd get severe cramping and vomiting. I had constant bloating and a lot of gas. I was really thin (5' and 70 pounds; when I got sick I would lose 2-5 pounds and then eventually climb back up to seventy and repeat the process) and my mom said she used to cry when she thought about how thin I looked when I came out of the shower or changed my clothes or something. She kept saying that she felt like she was poisoning me or something, which she, essentially and inadvertently was . Anyway, I have had some improvements with the diet -- the bloating comes only when I'm sick, the gas is also when I'm sick but not usually, and I used to get occasional diarrhea which is now completely gone! The cramping isn't quite as bad, but still not something that you can just function normally with, and I don't vomit as much when I get sick. I'm now about 5'2 and 86 pounds, a new record for me ....2 inches and 16-20 pounds in eight months . I feel like I know a lot about celiac and the diet by now, and if I could just shake the still persistent cramping/vomiting, I'd be fine....I still have quite a ways to go, though. What was my point again? Oh, yeah, I kept my meals down always, but I'd just puke every few days....now I puke every 1-3 weeks. Though I don't vomit as much anymore, a lot comes up really forcefully -- it actually hurts in my chest with the force of the vomit and a LOT comes up, but it's not projectile or anything.......sorry to ramble on about my story, I'm just bored and with not much else to do but read and I got off on a bit of a tangent. To simplify the whole thing, I'm still having this "cleaning out" thing with my system, too.....I just hope that you don't need to deal with it for 8+ months. Although I might add, it seems like forever to get better for the first 1-4 months and after that you just sort of accept it, pathetic as it is, and wait it out without counting the # of days gluten-free and asking why you're not better.

I eat something, and then my system "cleans out." I am very swollen & not losing weight... I just can't keep anything in! Will this end after a while? Will my system get cleaned out and stop? Any help would be appreciated ~ I am tired of spending so much time in the bathroom!!!