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Question

LynnR

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LynnR Explorer
LynnR
Posted

How long did it take to get diagnosed with celiac disease? How many doctors did it take?

For me -

It took 7 1/2 years & 36 doctors.

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darlindeb25 Collaborator
darlindeb25
Posted
:( i went to doctors for 20 yrs and never was diagnosed, not with celiacs anyways----i had been told spastic colon, irritable bowel, too much stress, nervous stomach--once i was told i was just getting the flu over and over--panic attacks, agoraphobia, anticipatory anxiety---ulcers once :angry: ----everything but celiacs---i went gluten-free when my sister was diagnosed celiacs--i dont need a doctor to say i am celiac or at least gluten intolerant ;)--i know i will never have gluten again--the panic is almost non existant now--no more meds for pani was taking 40mg of paxil when i went gluten-free and i weaned myself off of them---sooooooooooo--here i am--gluten free ans so thankful--its like i am a new person :D deb
flagbabyds Collaborator
flagbabyds
Posted

It took me three months starving to death in the hospital for the million soctors i saw to finally realiise it

MySuicidalTurtle Enthusiast
MySuicidalTurtle
Posted

Hmmm, 18 years of being told to take fiber or it was all in my head until I became very ill and moved down South. . .then my new doctor had a hunch and drew blood.

tarnalberry Community Regular
tarnalberry
Posted

after I first experienced symptoms? probably a year.

after I first went to my GP? 4 weeks (test results took forever)

but I'm lucky, went in asking about celiac disease, and have a fabulous doctor

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