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Posted 16 November 2004 - 03:31 PM

How long did it take to get diagnosed with celiac disease? How many doctors did it take?

For me -

It took 7 1/2 years & 36 doctors.
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Negative Biopsy 11/00
Blood Work 11/16/04 - Still Waiting for Results
gluten-free since 11/10/04

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#2 darlindeb25


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Posted 16 November 2004 - 04:18 PM

:( i went to doctors for 20 yrs and never was diagnosed, not with celiacs anyways----i had been told spastic colon, irritable bowel, too much stress, nervous stomach--once i was told i was just getting the flu over and over--panic attacks, agoraphobia, anticipatory anxiety---ulcers once :angry: ----everything but celiacs---i went gluten-free when my sister was diagnosed celiacs--i dont need a doctor to say i am celiac or at least gluten intolerant ;)--i know i will never have gluten again--the panic is almost non existant now--no more meds for pani was taking 40mg of paxil when i went gluten-free and i weaned myself off of them---sooooooooooo--here i am--gluten free ans so thankful--its like i am a new person :D deb
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Long Island, NY

Double DQ1, subtype 6

We urge all doctors to take time to listen to your patients.. don't "isolate" symptoms but look at the whole spectrum. If a patient tells you s/he feels as if s/he's falling apart and "nothing seems to be working properly", chances are s/he's right!

"The calm river of your life approaches the rocky chute of the rapids - flow on through. You are the same water. The rocks cannot hurt you. Remember, now and then, that you are the water and not the boat. Flow on!



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Posted 16 November 2004 - 04:33 PM

It took me three months starving to death in the hospital for the million soctors i saw to finally realiise it
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Posted 16 November 2004 - 06:01 PM

Hmmm, 18 years of being told to take fiber or it was all in my head until I became very ill and moved down South. . .then my new doctor had a hunch and drew blood.
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Posted 16 November 2004 - 06:15 PM

after I first experienced symptoms? probably a year.
after I first went to my GP? 4 weeks (test results took forever)
but I'm lucky, went in asking about celiac disease, and have a fabulous doctor
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Tiffany aka "Have I Mentioned Chocolate Lately?"
Inconclusive Blood Tests, Positive Dietary Results, No Endoscopy
G.F. - September 2003; C.F. - July 2004
Hiker, Yoga Teacher, Engineer, Painter, Be-er of Me
Bellevue, WA

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