How long did it take to get diagnosed with celiac disease? How many doctors did it take?
For me -
It took 7 1/2 years & 36 doctors.
|
|
Celiac.com Sponsor: |
4 replies to this topic
#1
LynnR
-
- Advanced Members
-
- 36 posts
Community Member
Posted 16 November 2004 - 03:31 PM
~Lynn
Negative Biopsy 11/00
Blood Work 11/16/04 - Still Waiting for Results
gluten-free since 11/10/04
Negative Biopsy 11/00
Blood Work 11/16/04 - Still Waiting for Results
gluten-free since 11/10/04
#2
darlindeb25
-
- Banned
-
- 2,324 posts
Advanced Community Member
Posted 16 November 2004 - 04:18 PM
i went to doctors for 20 yrs and never was diagnosed, not with celiacs anyways----i had been told spastic colon, irritable bowel, too much stress, nervous stomach--once i was told i was just getting the flu over and over--panic attacks, agoraphobia, anticipatory anxiety---ulcers once 
----everything but celiacs---i went gluten-free when my sister was diagnosed celiacs--i dont need a doctor to say i am celiac or at least gluten intolerant 
--i know i will never have gluten again--the panic is almost non existant now--no more meds for pani was taking 40mg of paxil when i went gluten-free and i weaned myself off of them---sooooooooooo--here i am--gluten free ans so thankful--its like i am a new person 
deb
Deb
Long Island, NY
Double DQ1, subtype 6
We urge all doctors to take time to listen to your patients.. don't "isolate" symptoms but look at the whole spectrum. If a patient tells you s/he feels as if s/he's falling apart and "nothing seems to be working properly", chances are s/he's right!
"The calm river of your life approaches the rocky chute of the rapids - flow on through. You are the same water. The rocks cannot hurt you. Remember, now and then, that you are the water and not the boat. Flow on!
Long Island, NY
Double DQ1, subtype 6
We urge all doctors to take time to listen to your patients.. don't "isolate" symptoms but look at the whole spectrum. If a patient tells you s/he feels as if s/he's falling apart and "nothing seems to be working properly", chances are s/he's right!
"The calm river of your life approaches the rocky chute of the rapids - flow on through. You are the same water. The rocks cannot hurt you. Remember, now and then, that you are the water and not the boat. Flow on!
#3
flagbabyds
-
- Advanced Members
-
- 1,345 posts
Advanced Community Member
Posted 16 November 2004 - 04:33 PM
It took me three months starving to death in the hospital for the million soctors i saw to finally realiise it
Molly
#4
MySuicidalTurtle
-
- Advanced Members
-
- 1,663 posts
"Like a rolling stone?"
Posted 16 November 2004 - 06:01 PM
Hmmm, 18 years of being told to take fiber or it was all in my head until I became very ill and moved down South. . .then my new doctor had a hunch and drew blood.
#5
tarnalberry
-
- Advanced Members
-
- 9,441 posts
Advanced Community Member
Posted 16 November 2004 - 06:15 PM
after I first experienced symptoms? probably a year.
after I first went to my GP? 4 weeks (test results took forever)
but I'm lucky, went in asking about celiac disease, and have a fabulous doctor
after I first went to my GP? 4 weeks (test results took forever)
but I'm lucky, went in asking about celiac disease, and have a fabulous doctor
Tiffany aka "Have I Mentioned Chocolate Lately?"
Inconclusive Blood Tests, Positive Dietary Results, No Endoscopy
G.F. - September 2003; C.F. - July 2004
Hiker, Yoga Teacher, Engineer, Painter, Be-er of Me
Bellevue, WA
Inconclusive Blood Tests, Positive Dietary Results, No Endoscopy
G.F. - September 2003; C.F. - July 2004
Hiker, Yoga Teacher, Engineer, Painter, Be-er of Me
Bellevue, WA
0 user(s) are reading this topic
0 members, 0 guests, 0 anonymous users
