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      Frequently Asked Questions About Celiac Disease   09/30/2015

      This Celiac.com FAQ on celiac disease will guide you to all of the basic information you will need to know about the disease, its diagnosis, testing methods, a gluten-free diet, etc.   Subscribe to FREE Celiac.com email alerts What are the major symptoms of celiac disease? Celiac Disease Symptoms What testing is available for celiac disease? - list blood tests, endo with biopsy, genetic test and enterolab (not diagnostic) Celiac Disease Screening Interpretation of Celiac Disease Blood Test Results Can I be tested even though I am eating gluten free? How long must gluten be taken for the serological tests to be meaningful? The Gluten-Free Diet 101 - A Beginner's Guide to Going Gluten-Free Is celiac inherited? Should my children be tested? Ten Facts About Celiac Disease Genetic Testing Is there a link between celiac and other autoimmune diseases? Celiac Disease Research: Associated Diseases and Disorders Is there a list of gluten foods to avoid? Unsafe Gluten-Free Food List (Unsafe Ingredients) Is there a list of gluten free foods? Safe Gluten-Free Food List (Safe Ingredients) Gluten-Free Alcoholic Beverages Distilled Spirits (Grain Alcohols) and Vinegar: Are they Gluten-Free? Where does gluten hide? Additional Things to Beware of to Maintain a 100% Gluten-Free Diet Free recipes: Gluten-Free Recipes Where can I buy gluten-free stuff? Support this site by shopping at The Celiac.com Store.

Child Of Celiac
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3 posts in this topic

I'm the wife of a celiac diagnosed 8 years ago. He's doing great on the gluten free diet. I have 3 children, 12, 10 & 5. I had my 2 oldest tested for the antibodies (through blood test) and both were negative. No tests since then. My 10 year old now shows symptoms of psoriasis. It started on his scalp in August. Doctors first thought ringworm (yuck!) had the culture performed which takes weeks to grow. Then started the 8 week course of antibiotics. Throughout this time I also applied Elicon (leftover from my other son's mild exczema). That mild steroid was the only thing that would make these spots almost seem to heal. But after a few days of not using the Elicon, the spots would return to looking as they had before. Went back to the doc 6 weeks into treatment because my son now has more spots on his body. Doc now thinks psoriasis since it responded to the Elicon and he finally used the black light which showed no presence of ringworm (They glow under ultraviolet light)(Why didn't the first doc do this?!) :angry: .

To me they don't look like the pictures I've seen of DH because his don't look fluid filled at all. Can DH be all over the body including scalp and penis? Or does anyone know about the relationship between celiac disease and psoriasis? Should I have blood tests performed again on all children even if they were initially negative?

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...does anyone know about the relationship between celiac disease and psoriasis? Should I have blood tests performed again on all children even if they were initially negative?

The relationship between celiac and psoriasis is that they are both auto-immune diseases. Meaning that the body is essentially attacking itself. Whenever you have one auto-immune disease you are at a higher risk of developing others. That is about the only connection that I know of though.

I have psoriasis. So far it is mild, but over the years it has been spreading. I have not found anything to treat it that will work long term. If I use the cream religiously then it gets a little better, but if I forget for a day or two, then it is back with a vengeance! I am sorry that your 10 year old is having to deal with this. I have a 10 year old boy also and I think how awful it would be for him...

Now as for having the kids tested again, YES. They should be screened for the disease about every few years, sooner if they are having symptoms. Since they are biologically related to someone (in this case a parent) they have an increased risk of developing the disease. I read one study that said first degree relatives of a Celiac have a 1 in 10 chance of developing the disease. But realistically they have a higher chance of carrying the gene and could either never get sick or they could get sick at any point in their lives. You could have them gene tested to see if they carry the gene, then you would at least know if they are carriers. Although even this is not a guarantee, since they don't know that they have isolated all the genes responsible for celiac disease, but you would know which ones they got from you husband. And if they have two copies, then you would know that you were a carrier as well. There are only a few labs that do the gene testing. We did ours through Enterolab(for $150 per person), since our insurance wasn't wanting to pay for Prometheus labs (at $750 a person). Enterolab also tests for more genes that they have isolated that cause gluten intolerance, but are not considered yet to be "Celiac" genes. We have two who have Celiac genes and three that have the gluten intolerance genes in our family of 5. Only myself and our three kids are gluten free. My husband is not sick enough yet to admit that he needs the diet.

God bless,

Mariann

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I am not certain exactly what psoriasis looks like, but my eldest has skin reactions to gluten (as well as many other more typical reactions.) He tested borderline (or so the doctor said) with just the IgG antibodies (I'm STILL confused about this. Either he tested just below the cutoff or just at the cutoff, but the doctor said not to worry about it.) My sister had positive results in going gluten-free (her skin cleared up for the first time in 30+ years) so my son wanted to try it. His skin almost completely cleared up. Now, however, just a trace of gluten sends his body into almost every reaction available (skin, gastro, depression and migraines... :( ) including itchy dry patches in several spots on his body (he also gets little red bumps that aren't typical dh, but we certainly know there is a cause and effect here!) Could it be that your son is just developing a dh reaction? It takes a while for the spots to clear on my son, but two weeks after going gluten-free, we'd seen a remarkable difference. As an added bonus, the acne he'd started having is almost completely gone now, too, just a random pimple now and then is all.

As an aside, ringworm is just a fungus with a disgusting name. Absolutely nothing to stress about. ;)

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    • Second Panel has come back...advice?
      Update!  I went to my follow up with my gastro. He's hesitant to diagnose celiac without an endo, but said he will redo the blood work after I'm several months gluten free. My DGP IGA should drop after being gluten free, right? This could confirm the suspicion? I know the TTG levels drop, but want to be sure the DGP also drops on the diet.  Thanks! I've already replaced all kitchen equipment and pantry/fridge items. Early on I didn't realize the potential for cross contamination in restaurants. Now I do, so eating out has been put on halt for a bit. 
    • does your diet have to be like a perfection?
      Yes.  You have to be 100% gluten abstinent when you have Celiac Disorder.  It gets easier to be gluten abstinent, not because you get used to it but because of the negative effects that ingesting gluten causes when you accidentally eat something with gluten.  Nothing tastes good enough to go through a glutening.  As your system heals it will become less tolerant of your occasional lapses into gluten consumption--accidental or otherwise. You have to take this seriously.  You get used to it and there are some wonderful gluten-free options out there.  But you can't go back to gluten and stay healthy.  It just doesn't work that way. Good luck.
    • does your diet have to be like a perfection?
      I  think you need to watch where you get your medical info!    Of course you can't introduce gluten back in. And  of course you have to be strictly gluten-free and not intentionally eat gluten.   "The gluten-free diet is a lifetime requirement. Eating any gluten, no matter how small an amount, can damage your intestine. This is true for anyone with the disease, including people who do not have noticeable symptoms. It can take weeks for antibody levels (indicating intestinal damage) to normalize after a person with celiac disease has consumed gluten. Depending on a person’s age at diagnosis, some problems, such as delayed growth and tooth discoloration, may not improve. The gluten-free diet requires a completely new approach to eating. You have to be extremely careful about what you buy for lunch at school or work, eat at cocktail parties, or grab from the refrigerator for a midnight snack. Eating out and traveling can be challenging as you learn to scrutinize menus for foods with gluten, question the waiter or chef about possible hidden sources of gluten, and search for safe options at airports or on the road. However, with practice, identifying potential sources of gluten becomes second nature and you’ll learn to recognize which foods are safe and which are off limits." http://www.cureceliacdisease.org/living-with-celiac/guide/treatment    
    • does your diet have to be like a perfection?
      FlowerQueen is correct.  Once diagnosed with celiac disease, you should never consume gluten again without the risk of becoming very ill (osteoporosis, liver damage, lymphoma, etc.).   I think everyone has trouble in the beginning sticking to a gluten free diet.  That's because gluten is in so many processed foods.  It takes time to learn to read labels, make a safe kitchen, learn to eat out, get your family to support you.  I would advise reading out Newbie 101 section under "Coping" within this forum.  It contains valuable tips for becoming gluten free.  Also, check out the University of Chicago's celiac website to learn about celiac disease.  Knowledge is power!   Everyone has different degrees of damage, but I would say that learning the diet and healing can take months to a year or longer.  The good news is that this is an autoimmune disorder that is treatable -- avoid gluten at all costs!   Take care and welcome to the forum!   
    • does your diet have to be like a perfection?
      Not sure what you mean by perfecting your diet? Do you mean accidentally eating gluten?   As to re-introducing gluten again, if you have celiac disease, please DO NOT ever re-introduce gluten again. It's an auto-immune disease, not a food intolerance. It will damage your gut again if you do.  Hope this helps.
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