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My Closed Minded,know It All Aunt
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:angry: I have this aunt who has a husben with a wheat allergy and thinks he grew out of it.Now as we all know CELIAC is a life long pain in the butt that only a gluten free diet can make better.BUT SHE HAS TO BE RIGHT!!Now get this,he's not the only one with it.His cuz has a ''wheat allergy''to.My aunt's son is bracking out with theses lovely red spots whitch itch.She calls it hivs.ITS DH!!!This women is a know it all.Got a computer at home.I've told her about celiac disease.Laughs in my face.LETS her husben eat gluten foods.Tells me my doctor is crazy and so I'm I.

WE'VE had blows about this and realy don't want to be around her for the holydays or any other time.It's her family.Let her dell with the heart brake.I want to stay heathy.

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Why not talk to her sun and husband instead of with her? They are the ones who need to know and belive about it, not her.

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I've tried but thay lessen to her.It's like thay don't have a brain of there own.My aunt loves to control poeple.If her son or hubby looks up any thing on the computer she looking over there sholders.

This lovely women has to be right.She thinks celiac disease is some made up thing.Her faverit line is''I DON'T THINK SO''.

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It sounds like you have tried to provide all of them with the information they need to improve their health and they are making the choice to disregard it. What a shame for them, but you really can't do anything about it. This woman is who she is. It may save you some frustration if you can aviod the topic with her. She clearly is incapable of listening to others when she believes she "knows" something. You could continue to provide information to her husband and sons in a discreet way but it is still out of your hands whether they will do anything with it or not.

I have found that people in my family are unwilling to even consider getting tested for this. Maybe they are afraid? I believe my Dad has it and I suspect my twin sister (fraternal) and older sister have it. They have never been rude and ugly acting like your Aunt sounds but they are really unwilling to even get the blood test!

I know it is hard to have her disregard something this serious. However, you can't control other peoples reactions. You have done the best you can do by sharing the information. What they do with it is up to them.

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Yes, I have the same problem with a good friend of mine and her daughter. When that little girl was younger doctors told this woman her daughter can't have wheat. And she has this "oh, a little bit can't hurt attitude" and smiles in your face. When I refused to eat a strawberry with a little bit of that dip at one side once, she made fun out of me and said, what, a little bit like that already hurts? And if somebody treats me like that I get snappy real easy. And I said, yeah, because it's NOT an allergy. Next time eat a bit of rat poison and tell me how you feel afterwards. :angry:

And her daughter has DH, too. Well, i'm convinced, it is DH. She doesn't want to hear it. But I asked the same question on this message board about this woman and I was told: You only can lead a horse to water, it has to drink on its own. Or something similar. I think, that's sooo right. You just give yourself a headache. They have to live with the pain. I just try to avoid the subject and when I gave them their gifts for christmas I didn't get her any candy and her brother something wheatfree from Hershey's kisses, in case he offers her something.

Well, I think you've done your job. If I were you I wouldn't do more.

Stef

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That's too bad... It's really hard to believe that people can be that ignorant about the health of their loved ones. It's just sad actually... I would find it very hard to wtach someone act that way.

Does she know the long term complications of Celiac Disease if left untreated, like cancer (Lymphoma and adenocarcinoma), osteoporosis, seizures, anemia...

I know it may be harsh to say, but if I were you I would ask her how she would feel if her son or husband got seriously ill because of how ignorant she is being about the whole thing?

Just a thought...

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I saw my uncle this past cristmas.He had rashy thing all over his body.I know he was uncomfertable.My aunt only looks up things on the internet that she can sling at some one later with.The thing is is that there are others now in the famiely that think thay may have celiac disease and DH who want to be tested.They are now hearing her grip to.She got told off,but still thinks shes right.If Celiac is found to be true,shes going to have a duck.SHES not wanting to be tested so that's just tough.But that also means that my cuz has to tested.She likes her power trips and it don't matter who gets hurt in the cross-fire.

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    • Thanks Stephanie & Gemini for the info. that the 4 of 5 doesn't apply to children. I wasn't aware of that until now. 
    • I think the posters above have given you very good information and I will throw in my 2 cents worth.  I am surprised that they did not test her DGP IgA also.  I am sure that would have been positive.  They switched off with antibody classes and usually they do both tests for both antibodies.  IgA is more specific to Celiac but the IgG is also useful.  The testing shows your daughter is producing antibodies to the gluten in her diet. (DGP IGG). THe tTg shows positive for some damage or inflammation. You know........your daughter is only 4.  She hasn't been on the planet or eating gluten that long. It can take years for enough damage to occur for it to be able to be found on biopsy.  I would say it is highly likely that this is Celiac, especially with her symptoms. But because the damage hasn't graduated to bad enough yet, they won't diagnose her. I think you need to do what others have said and get all copies of testing and find someone else who will take a look and give a diagnosis, especially if they have you do a dietary trial and her symptoms go away.  That might be the only recourse if you want faster proof. I know I would want faster.  I would not really be happy if I thought I had to keep feeding her something that was making her sick.  If you keep her on gluten long enough, the diarrhea will probably show up. BTW.........the criteria mentioned regarding diagnosis does not apply to kids.  I know it's silly and stupid but most leading Celiac specialists do not go by this criteria for kids.......adults only.  Keep that in mind because it might come up.  You could recognize it but they might not. Have you considered gene testing, to help bolster a diagnosis? As far as false positives go, it's the other way around. False negatives happen more frequently than many people think.  It's a recurring theme here.  With her symptoms, which is what I had, a bloated belly and tummy aches are telling.  Have they tested her for lactose intolerance?  That can cause similar symptoms, although it sure won't raise those 2 blood tests.  Keep looking for Celiac because there are many red flags here.
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