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Clan Thompson
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I was trying to think of something new I could share and....

I just started getting the free Clan Thompson newsletter a little while ago. They also have archives of past articles and such on their site here. I just thought that some here who don't already subscribe might be interested. Clan Thompson also has great pocket sized product books (w/ phone #s so you can verify and the date of verification. You can see the format at the bottom of the newsletter where they have some of the recently verified products). I got the booklets for free last year--in a sample, I think.

Also, here is an example of a newsletter-- actually, the last one. Sorry, it's kinda long:

The Clan Thompson Celiac Newsletter

Issue #65 January 21, 2005

Copyright 2005 by Clan Thompson

All rights reserved. Subscribers may print copies of this newsletter for others to read or send copies to their friends as long as the ENTIRE publication is printed or sent along with all copyright notices and attributions. Sending and/or printing excerpts is not allowed without written permission.

To learn more about celiac disease, visit us online at: http://www.clanthompson.com/

To subscribe to this newsletter: http://www.clanthompson.com/celiacsite/news_subscribe.html

****************************

In this issue:

1. News: "SAFE LEVELS OF GLUTEN" - What Does It Really Mean?

ECONOMIC COMPARISON OF CURRENT ENDOSCOPIC PRACTICES

NEUROLOGICAL MANIFESTATIONS OF CELIAC DISEASE

CELIAC SPRUE PRESENTING AS SEVERE HEMORRHAGIC DIATHESIS DUE TO VITAMIN K DEFICIENCY

GUIDELINE FOR THE DIAGNOSIS AND TREATMENT OF CELIAC DISEASE IN CHILDREN

2. Where To Find Gluten Free "Stuff"

3. The Cook's Corner: TORTILLA TOWER

4. Ask the Cook: MY PIECRUSTS AREN'T FLAKY. CAN YOU HELP?

5. Announcements: 2005 FOOD POCKETGUIDE IS NOW OUT

6. Ask the Doctor: WHY DID I HAVE A DH REACTION?

7. This Month's List: GLUTEN FREE FOODS

****************************

1. SAFE LEVELS OF GLUTEN - What Does It Really Mean?

(Editor's Note: The following article first appeared in the Celiac Disease Foundation Newsletter: Summer 2004 and is reprinted here, with their permission. You can visit CDF online at http://www.celiac.org.)

Putting it in Perspective: How much is 100 ppm in real life?

by Dimitrios Douros 7/04

The new study claiming 100 ppm gluten is safe for celiacs resulted in many folks asking what that meant "in real life." So I decided to put PPM in perspective.

Simply put, 100 ppm means if you have one million of something, 100 out of that million makes 100ppm. It can be a million of anythin -- oranges, cars, grams of fat or ounces of gluten.

So, let's stick to our favorite topic: gluten. To make the math easier, I first calculated what 150 ppm amounts to in real life.

* Total protein (not all of it is gluten) composition of wheat ranges from 8% to 15%. In ppm that translates to 80,000 ppm to 150,000 ppm protein (mostly gluten).

* So, product with 150 ppm gluten has 1/1000 (150/150,000) the gluten of wheat. In human terms, take a slice of wheat bread and cut it into 1000 pieces-crumbs. 150ppm is the gluten you would get in one of those crumbs.

* How much gluten is that in weight? Take a 16 slice loaf of bread baked with 500g (a bit more than 1 lb.) of wheat flour:

500grams X 15% divided by 16 slices X 1000' crumbs/slice' = 0.005 grams, about 0.0002 oz.

The new study that claims 100 ppm of gluten is safe for celiacs, translates to 100ppm/150ppm or 2/3 of the number calculated above.

Therefore, 100 ppm is euvalent to about 0.003 grams or 0.001 oz. of gluten.

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ECONOMIC COMPARISON OF CURRENT ENDOSCOPIC PRACTICES:

Barrett's Surveillance vs. Ulcerative Colitis Surveillance vs. Biopsy for Sprue vs. Biopsy for Microscopic Colitis

Harewood GC.

Division of Gastroenterology and Hepatology, Mayo Clinic, Rochester, Minnesota 55905, USA. harewood.gavin@mayo.edu

Health care costs are an increasingly important study outcome. Endoscopic practice consumes a large proportion of gastroenterology-related health expenses. An economic comparison of several currently accepted endoscopic practices was performed, ranking them according their cost-effectiveness, as viewed from the payer perspective. The cost-effectiveness of four currently accepted standard endoscopic practices was examined: small bowel biopsy to assess for celiac sprue, colonoscopic biopsy to assess for microscopic colitis, surveillance of Barrett's esophagus, and surveillance of chronic ulcerative colitis (CUC). Parameter estimates were obtained from the published literature. Charges were based on Medicare professional plus facility/technical fees.

Performing colonoscopic biopsies for microscopic colitis in the setting of chronic nonbloody diarrhea was the most cost-effective practice ($2447/case detected), while small bowel biopsy for sprue in the setting of a patient with a first-degree relative with sprue ($3042/case detected) or with anemia ($2982/case detected) was also a cost-effective approach. Small bowel biopsy in the setting of diarrhea ($3900/case detected) was less cost-effective, while CUC surveillance ($14,119/detection of dysplasia) and performance of small bowel biopsy in an asymptomatic patient ($15,209/case detected) were clearly the least economical. As efforts are made to reduce the costs of health care, more attention will be focused on the cost-effectiveness of routine endoscopic practices. Although, our findings put endoscopic practices into economic perspective, future perspective, future prospective trials are required to confirm the validity of these findings.

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NEUROLOGICAL MANIFESTATIONS OF CELIAC DISEASE

Jos

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ooh! GREAT thanks for posting this! I checked out their site and it is very informationional!!!

Sada

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Dear celiac3270,

THANKS! Great resource!

Hey...I know you are having surgery today...I am sending love your way...

Happy Valentine's Day, Coult!

Gina

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Yes thanks for posting that..it is an awesome resource to have. Thanks for sharing that...and we are thinking about you today and hope everything goes well :D

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    • Depression / anxiety issues
      G'day Chris and welcome to the forum. You have found what I think is the single best resource on the web for advice, support and understanding for this condition. There is so much info here it's difficult to know where to start, but that's what this thread is for, please check it out. I think I got the recommendation for 'Real life with Celiac Disease' by Dennis and Leffler there, I'll second that, there's a lot of very useful info in there which helps to answer a lot of your questions. May be useful for your partner also. Chapters are short and informative so you can dip in and out.  There will doubtless be more advice to come from others with more experience but there's a few things which occur. Firstly, 10 weeks is very early days. Your body has been under an assault for many, many years. Your immune system has been working overtime and like so many others you've only reached diagnosis after reaching a crisis point. You are now healing but it won't be instant and it won't be without ups and downs, speedier and slower phases.  Second, being strict on gluten is essential, but it's only one part of the puzzle. You also need to eat really healthily and try to heal your gut. As you remove gluten you may find that your body starts telling you that other foods are also an issue. Don't panic, it doesn't mean that will always be the case. But you need to approach the next 6 months as a period where you're giving your body the easiest ride possible. That may mean taking probiotics, bone broths or it could also mean avoiding dairy or other foods, at least until your body has had a chance to heal. If you think you may still be getting gluteny effects keeping a food diary, noting what you eat, when and how you feel would help to track down any further issues.  I too battled through the anxiety, had an all too brief moment of bliss as the diet kicked in, then faced a bumpier recovery period in the weeks that followed. It gets easier but it's still difficult for me from time to time. I tried to articulate some of this recently here, it's a long read but maybe some of it will strike a chord. It will get better and you will become better equipped to deal with it. If you're like me you'll find other things getting better over time that you would never have thought to connect to gluten. Now, I've been exceedlingly nice here and not mentioned the England Rugby drubbing but I can feel my self control beginning to slip. So I'll leave it there   Matt
    • Depression / anxiety issues
      Thanks for the advice Irene. I will look into that book. I know I'm a long away from healed but I got my hopes up when I felt better in that first week, it's just constantly a battle. I am hoping and praying that I get better soon 
    • Celiac - How many symptoms can there be?
      Do you take digestive enzymes and probiotics? That may help. Have you met with a dietician for help figuring out how you're getting glutened?
    • Depression / anxiety issues
      You should read the book' Jennifer's Way" you might find her story similar.  You will find better health- but be patient- it's an up and down road and takes a long time! For me it's been 7-8 months and I'm not well but slowly improving I hope
    • Celiac - How many symptoms can there be?
      Hi Everyone I am new here and wanted to see if anyone else is experiencing the same thing I am.  I was diagnosed positive for celiac in 2/2016 via biopsy from an endoscopy.  I was negative for blood work because I self-eliminated gluten 9 months prior; so I guess I had not antibodies register in my lab work.  Prior to 2/2016 I was having symptoms for almost an entire year.  Despite cutting out grains in general for 9 months, I would have a gluten attack at least once a month.  I have had a history of sinus, bronchial infection.  I remember as young as 17 getting sick but I always bounced back and was active in sports and working out.  But in the past year I developed the following symptoms - Sudden desire to pass out, nausea, headaches, heart palpitation, crashing exhaustion as if I was recuperating from the flu, wheezing in my chest. I was bounced around to an allergist at this and was told I was asthmatic and I had food sensitivities to dairy, nuts, corn or corn derivatives (including corn syrup) and grains.  so I cut everything out!  Despite cutting everything out I was still have episodes at least monthly, possibly cross contamination.  In April 2015 I traveled to the Carribean for 2 weeks,  I became very ill with a urinary tract infection, stomach bug and severe back pain with constant fever.  I was treated with antibiotics (Bactrim) for 10 days which did clear up the situation. I came home and dismissed everything to a coincidence.  Six weeks later the GI distress woke me up in the middle of night.  The pain was so excruciating that when I sat on the toilet thinking I had to go, I almost past out from the pain.  I lay myself down on the floor until it subsided.  The next day I contacted my primary and was immediately seen.  She referred me to a GI specialist but the appointment was not until August.  Then 2 weeks before my GI appointment they called and rescheduled for late September.  I saw him and by then I was feeling better; no epsides for almost 2 months.  So we did nothing.... boy did I talk to soon.  Immediately after the appointment I had an attack.  These were the symptoms: Nausea, crashing fatigue (as if I was hit with the flu), diarrhea, dizziness,, loss of appetite,  lower back pain, specifically in the middle; intestinal discomfort and body aches which lasted 10 days!! and abruptly disappeared, thank God.
      . I had to wait to see the GI until 1/2016.  Once I saw him he did labs which were all normal.  He checked my liver, kidney, pancreas, blood count which was all normal.  He also scheduled the endo/colonoscopy for end of 1/2016.  Speeding forward in time....since the Endo/Colonscopy procedures, I had attacks January through March which last 7-10 days each time.  I finally had a break for 2 months and today as I type this I am on day 6 of another episode.  What I wanted to see if anyone has experience the following.  For me each episode is getting worse with the following symptoms: Nausea (horrible), back pain on the left side both in the rib cage (the front and back) at times this pain also gravitates toward my left hip.  I also get diarrhea, bloating, intestinal distress, crashing fatigue and loss of appetite.  What really hits me hard is the rib cage pain that is in the front and back on my left side.  I will be seeing the GI doctor in August; but I am hoping to see him sooner Any input in reference to symptoms is appreciated.    
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      Hello Admin!
      I don't know whether this is of interest to post on your articles feed:
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      Hi There, I don't know if there is a place for videos in the forum. I just watched "The Truth About Gluten" I think it is a good video. I would like to share it somewhere but don't know where it should go. Any help would be greatly appreciated.
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