Struggling With Ibs/cd
Posted 31 March 2005 - 12:09 PM
I'm new to the site and am looking for information and support...
My names Val and i was diagnosed with IBS-D at 12 yrs old. I'm currently 21 and have been struggling since with pretty debilitating GI issues. At 12 i lost 25lbs because of what my MD said was IBS-D. I know that he came to this conclusion because of a lack of anything else to call it. However, i was never tested for celiac disease. Recently, it's gotten worse, so my mom told me about Celiac Disease. After a week of a strictly wheat/gluten free diet I've felt great, except for that fact that it left me constipated. I decided to eat some breakfast this morning contained wheat (nutri-grain bar/WHEAT THINS!) and three hours later i was in the bathroom and really sick. I've made an appt with a Gastroenterologist that i saw for liver issues, and I'm hoping to find out if this is really celiac disease and now IBS-D.
Has anyone had similar issues or experiences? It hard for me to trust MDs, after all the things I went through when i was younger. I feel like if they cant come to a concrete conclusion, they settle for what seems most fitting.
Also, i read that celiac disease is an autoimmune disease, is that true? I currently have Hashimoto Thyroiditis which is also autoimmune, and im wondering if there could be a connection.
Thanks to anyone who reads and/or replys.
Posted 31 March 2005 - 12:20 PM
These are the common tests you should ask for
-Anti-Gliadin (AGA) IgA
-Anti-Gliadin (AGA) IgG
-Anti-Endomysial (EMA) IgA
-Anti-Tissue Transglutaminase (tTG) IgA
-Total Serum IgA
This is a great place for support and answers when you need them
If you need any help just let me know....
Gluten-free since January 2004
Jeremiah 29:11- "For I know the plans that I have for you, declares the Lord, plans for you to prosper and not harm you,plans to give you a hope and future"
"One Nation, Under God"
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Posted 31 March 2005 - 12:41 PM
After a week of a strictly wheat/gluten free diet I've felt great, except for that fact that it left me constipated. I decided to eat some breakfast this morning contained wheat (nutri-grain bar/WHEAT THINS!) and three hours later i was in the bathroom and really sick.
That's great that the diet made you feel better. BUT... In order to get accurate results on the celiac blood test or a biopsy of the small intestine, you have to be eating gluten. If you've been gluten free for awhile (like 2 weeks) you may get a false negative.
I think you should get tested especially when you got so sick after having gluten.
Diagnosed with Celiac Disease in March 2004
Postitive tTg Blood Test, December 2003
Positive Biopsy, March 3, 2004
Posted 31 March 2005 - 01:52 PM
also, this gastro appt is just to discuss the possibility of celiac disease. i've felt so much better this week that i dont want to go back on reg diet if he doesnt want to/wont test for celiac disease. id rather go back in 3 weeks when i KNOW he agrees with me.
i know celiac disease is genetic, but do you know anything about the rates of celiac disease found in twins? ive heard 70% of identical twins (which i am, have a sister named Karin ) both have if one does, but ive also heard percentages closer to 40%. my sister has had symptoms her whole life as well, but not as severe as mine. She seems to be the luckier twin when it comes to health. ive always been a little skinnier and a lot sicker. anyway..thanks again!
Posted 31 March 2005 - 01:55 PM
Gluten Free since 12-31-2002!!
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