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Neg. Blood Result With Stomach Pains Present
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hello i am new to this board. hope everyone is doing well. my daughter will be 6 in April. she has had food allergies to wheat, eggs, food colors chicken , fish. so her diet is very minimal. now she has developed a new set of problems. the stomach aches. . In sept she started full day kG. so she eats when she come home but everything gives her a stomach ache. I stopped the dairy hoping things will improve but she still has pains.

The doctors suspect celiac disease. they did the blood test (IGA) but it came out neg. we are in New jersey. Is the entrolab gene test for all the US residents? HOW about the proth... lab. i read about those 2 labs in other posts. Other than the stool test what else can the doctor check? any one with similiar problems?

plus can i have some hints on breakfast food( without egg pls)? she doesn't like the packaged gluten-free foods. i tried some with her since she has the wheat allergy.

sarah N

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how about apples and peanut butter?

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Hi Sara, welcome!!! :D

I read where your daughter has an allergy to wheat but is she currently on a gluten-free diet?? If not that could explain the stomach pain she is experiencing. Even after going gluten-free she may still have some stomach pain for a few weeks/months. It must take a while for all the toxins (gluten) to get out of our system. I have been gluten-free since Sept and still have the occasional pains as well as my 8-year-old daughter. ;)

Just because the blood test your doctor ordered came back negative does not mean your daughter does not have celiac disease/gluten sensitivity. Some people go many years and endure many blood test and medical procedures only to be told the results are negative. It takes a while for the damage to occur and for it to show up in the blood. But there is another way, as you have read about Enterolab, Dr. Fine which has celiac disease came up with the stool panel test which he says is more sensitive than the blood, so the test are very accurate!!! You can order the Enterolab tests from anywhere in the States. They ship Via Airborne Express and add the shipping charges to your total.

As far as breakfast ideas, (cold cerals) Rice Crunch-Ems or Corn Crunch-Ems, Vans makes a wonderful gluten-free/WF dairy free frozen waffle, frsh fruit, gluten-free bagles.

I wish you luck and hope you find some answers soon!

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Rice pudding is one of my daughters favorite breakfasts.

Wendy

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Sarah,

I want to recommend that your doctor perform an endoscopy, since that will give you a definitive answer to the Celiac question but it is so intrusive and I don't wish it on anyone much less a 5 year old. Good Luck ;)

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Hun, I have come to know that some doctors just dont get Celiac because they dont know much about it, it is a hiding disease.. most people who have it probably dont know they do... Mine for surely doesnt! Research some doctors specifically in Celiac and see if you can get a referral to one of them.

Just cause the test is negative doesnt mean she doesnt have celiac disease, thats what happened to me.... I was given a blood test and they said I was just eating dairy but i new better because i was on a gluten-free diet and already starting to feel a little better over time.

As for breakfast foods ... i am allergic to it all. Wheat, eggs, dairy, soy, corn, and nuts... So I feel your pain. I used to starve for breakfast foods like french toast and eggs but no more....

I have come to love these breakfast foods.......

"Food For Life" brand Rice Breads. They are wonderful. I toast it and put a little water on it so some sugar and McCormic cinnamon can stick to it. Its a lot better than nothing and actualy doesnt taste half bad. www.foodforlife.com

I also have found that Dole all natural yellow cling sliced peaches (in a plastic jar) are great. It is all natural... no corn syrup in it so if your allergic to corn it will be a new addition to your food list. www.dole.com

Nabisco has a well known cream of wheat cereal... Which we CAN'T eat but they do also have a Cream of Rice cereal that is wonderful. It is gluten gree, fat free, and cholesterol free.... A little water added to make it not as thick and some sugar makes it a great morning treat. www.creamofwheat.com

As for breakfast drinks.. I wouldn't survive without my Celestial Seasons Decaffinated Green tea. www.celestialseasonings.com

hope these help you! :-) good eating!

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thanks to everyone that replied. i will try the suggestions. B)

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    • Hi everyone, I've been reading this forum sporadically and have some questions of my own. I'm in my 40s and was diagnosed with celiac last December by biopsy and blood work after months of tests by my primary and then a gastro. My husband, around the same age as me, was dx'd with stage 4 cancer a month later, so admittedly it's took me longer than I'd have liked to learn about celiac. Now I feel pretty on top of my diet. I mostly make my own food - proteins and veggies, with some certified gluten-free snacks in the mix - and am pretty strict about what I will/won't eat at friend's houses or in restaurants (I prefer to go to dedicated gluten-free kitchens whenever possible). I'm doing okay on the diet, but still getting glutened every so often, usually when I let me guard down outside the home. I also periodically see my primary and a naturopath (who happens to have celiac!), but still, I have many questions if anyone would care to answer:

      -FATIGUE. I'm still so tired, fatigued so much of the time. My doctors blame this on the stress of my husband's diagnosis and my periodic trouble sleeping. But even during weeks where I'm sleeping enough (8-10 hrs a day), eating right, exercising as I can, trying to keep stress at bay, I'm still so bleeping tired. Maybe not when I wake up, but by late afternoon. Often my legs even feel weak/wooden. Has anyone else experienced greater fatigue early on after being diagnosed? This will pass, yes? I know I could cut out the sweets and that could help, but also, being a caregiver is hard and sometimes it's nice to eat your feelings between therapy sessions.  

      -SYMPTOMS CAUSED BY FATIGUE? Sometimes I'll have other "feels like I've been glutened" symptoms if I haven't gotten enough sleep, though I'm trying so hard to sleep at least 8 hours a night these days. Hasn't happened in a while thankfully, but there was a point this summer where my insomnia was bad and my arms were achy and I had some crazy flank/back pain I'd never experienced before. For weeks. Doctor ordered me to sleep sleep sleep, taking Benedryl if needed. I did, and the symptoms went away, but weird, yes? Has this happened to you? I ask because I want to make sure I'm getting all strange pains tested to the full extent if there's a chance it's something other than celiac. I do sometimes still feel that strange side stitch after a CC incident.

      -SKIN PROBLEMS. I have had a smidge of eczema since I was a teen and it - and the dermatitis herpetiformis I've acquired with my dx - are out of control right now. I recognize the connection with stress, but also, has anyone found any great natural remedies for DH to stop the itching? I've tried so many useless ointments and medicated creams, a number of them given to my by a dermo months ago. I see my naturopath this week, but thought I'd ask here too.

      -MOSTLY gluten-free KITCHEN GOOD ENOUGH? My husband is supportive of my diet and mostly eats gluten free meals with me, but we still keep a gluten-y toaster for him and the gluten-y dog food in a corner of the kitchen and he still makes the occasional meal with gluten for himself on his own cookware (ravioli, pizza, mac n cheese, etc). Or sometimes I make eggs/toast and the like for him when he's too sick to move. Otherwise, we're militant about how we cook, which cookware we use, etc. He even has a kitchen nook off our den where he makes sandwiches. But sometimes I wonder if having two separate sponges in our shared-ish main kitchen is enough and I should just banish all gluten whatsoever from the kitchen. I can't be the only one with a mixed kitchen, right? How do you do it if you have a mixed-eating family?

      Thank you so much!  
    • Hang in there!  Count your blessings.  Do something you like to do and relax. I know that is hard to do as a young mother (as I sit here in the kitchen sipping coffee quietly as my teenager is sleeping in after a late football game last night where she marched in 90 degree plus weather in full uniform).   But seriously, take a few minutes to relax!  
    • Meredith, this is very true. A colonoscopy is for diagnosis of the lower intestine, endoscopy for the upper intestine.  How did your doctor interpret the tests? I suggest you read the link Cycling Lady gave you because it contains a lot of good information. 
    • Sorry, but this product (supplement) is not even certified gluten free.   Seems odd that a product geared to Non-Celiac Gluten Intolerance would not take the extra step of getting certified.   I guess I am a Nervous Nellie, especially after the reports that several probiotics were contaminated with gluten.   https://celiac.org/blog/2015/06/probiotics-your-friend-or-foe/
    • Thank you for posting that. I've had a lot of that bloodwork done and everything is normal. At the peak of this belly bug I had blood work done and my white count was fine. I think it's just my health anxiety scaring me into thinking this is something scarier (to me) than celiac. Maybe the anxiety will subside once I go gluten-free. The anxiety is brutal.
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