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Enterolab Results


koshy

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koshy Newbie

Hi, my enterolab results suggest gluten sensitivity. Does this mean I have celiac disease?


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celiac3270 Collaborator

Celiac disease can be the same thing as gluten sensitivity...it's not celiac if it's "non-celiac gluten sensitivity"

I don't know if they mean celiac disease on this or not... <_< Maybe someone who has used Enterolab before can help you. ;)

Guest barbara3675

My results came back suggesting that I have a gluten sensitivity and from what I understand, it I don't eat gluten-free, then there is a chance that I will get celiac disease. If I eat food with gluten, then I get uncontollable diarreah, but I don't get sick to my stomach as severe celiacs do. That is enough proof for me that I should not be eating gluten. I also think I am healthier now that I am not eating gluten. It isn't worth the risk to me so I choose to eat gluten-free. I had the gene testing through Enterolab as well as all the rest of the tests and have a granddaughter with celiac disease. Best wishes to you. Barbara

tarnalberry Community Regular

Enterolab does not "diagnose" celiac disease itself, as they do not do a biopsy. (Dr. Fine plays it safe with his terminology here.) But it still means you need to avoid gluten.

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    • Scott Adams
      This is a very common question, and the most important thing to know is that no, Guinness is not considered safe for individuals with coeliac disease. While it's fascinating to hear anecdotes from other coeliacs who can drink it without immediate issues, this is a risky exception rather than the rule. The core issue is that Guinness is brewed from barley, which contains gluten, and the standard brewing process does not remove the gluten protein to a level safe for coeliacs (below 20ppm). For someone like you who experiences dermatitis herpetiformis, the reaction is particularly significant. DH is triggered by gluten ingestion, even without immediate gastrointestinal symptoms. So, while you may not feel an instant stomach upset, drinking a gluten-containing beer like Guinness could very well provoke a flare-up of your skin condition days later. It would be a gamble with a potentially uncomfortable and long-lasting consequence. Fortunately, there are excellent, certified gluten-free stouts available now that can provide a safe and satisfying alternative without the risk.
    • MogwaiStripe
      Interestingly, this thought occurred to me last night. I did find that there are studies investigating whether vitamin D deficiency can actually trigger celiac disease.  Source: National Institutes of Health https://pmc.ncbi.nlm.nih.gov/articles/PMC7231074/ 
    • Butch68
      Before being diagnosed coeliac I used to love Guinness. Being made from barley it should be something a coeliac shouldn’t drink. But taking to another coeliac and they can drink it with no ill effects and have heard of others who can drink it too.  is this everyone’s experience?  Can I drink it?  I get dermatitis herpetiformis and don’t get instant reactions to gluten so can’t try it to see for myself. 
    • trents
      NCGS does not cause damage to the small bowel villi so, if indeed you were not skimping on gluten when you had the antibody blood testing done, it is likely you have celiac disease.
    • Scott Adams
      I will assume you did the gluten challenge properly and were eating a lot of gluten daily for 6-8 weeks before your test, but if not, that could be the issue. You can still have celiac disease with negative blood test results, although it's not as common:  Clinical and genetic profile of patients with seronegative coeliac disease: the natural history and response to gluten-free diet: https://www.ncbi.nlm.nih.gov/pmc/articles/PMC5606118/  Seronegative Celiac Disease - A Challenging Case: https://www.ncbi.nlm.nih.gov/pmc/articles/PMC9441776/  Enteropathies with villous atrophy but negative coeliac serology in adults: current issues: https://pubmed.ncbi.nlm.nih.gov/34764141/  Approximately 10x more people have non-celiac gluten sensitivity than have celiac disease, but there isn’t yet a test for NCGS. If your symptoms go away on a gluten-free diet it would likely signal NCGS.
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