Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Doing Better Avoiding Gluten


mela14

Recommended Posts

mela14 Enthusiast

Thank God I haven't been glutened in a while. I think I am getting better at scrutinizing things and I am also refraining from things that I am not sure about. I had 2 communion parties last month and took my own food to both. At least I didn't get sick!

I am still having a rough time with what to eat though. It seems that I am still not able to tolerate a lot of other foods. Rice and starches do me in. I can have a little piece of potatoe but if I have anything more I get bloated and feel ill....(but not gluten sick!) I have to rotate raw nuts.......if I eat anything roasted the oils get me sick. I tried potatoe chips but the oil make me sick too........again...not gluten sick just sour bloated gut that lasts a while.

I still can't have any type of beans or lentils...........I had the smallest amount of fresh lentils that I made and was blown up for 2 days.......NOT FUN!

I have been talking with the nutrionist at Columbia Presbyterian and she has been guiding me a lot. the thing is that I am getting discouraged. I am trying so hard to eat more and vary my diet but it is not working. The only thing that makes me feel better is avoidance of all the things that I am intolerant to. Trying to add back a little at a time is not working. I think I might have to accept the fact that I have to keep a very simple and limited diet.

To make things more difficult my Interstitial Cystitis is really acting up and I can't tolerate any fruits and some vegetables (especially those high in potassium or acidity) they are a killer on the bladder. I have been addressing the bladder problems with my urololgist so I'll spare you the horrible details.......but it hasn't been fun. Of course this now means I am not getting enough fiber which brings on a whole bunch of other problems. I just can't seem to get it balanced yet. When I feel that I want a snack I usually wind up having something and then paying for it later...........with IBS or bladder pain. As for gluten though..........I am doing pretty good keeping away from it. I have read that if you stop the gluten then a lot fo the other intolerances might get better. so far that has not been the case with me and doesn't look like it will be. I am tired of having gut problems :(


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Guest gfinnebraska

Have you read the book Breaking the Vicious Cycle: Intestinal Health through Diet?? There are some of us on here that have read it and are currently following the diet. It really "cleans" you out and helps you to heal. It should help with all your conditions and problems. Hey, it is worth a shot, right?? :)

Hope today finds you feeling better!!

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - Wheatwacked replied to Larzipan's topic in Related Issues & Disorders
      36

      Has anyone had terrible TMJ/ Jaw Pain from undiagnosed Celiac?

    2. - Wheatwacked replied to Larzipan's topic in Related Issues & Disorders
      36

      Has anyone had terrible TMJ/ Jaw Pain from undiagnosed Celiac?

    3. - trents replied to kpf's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      13

      ttg iga high (646 mg/dl) other results are normal

    4. - Wheatwacked replied to kpf's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      13

      ttg iga high (646 mg/dl) other results are normal

    5. - Wheatwacked replied to Trish G's topic in Gluten-Free Foods, Products, Shopping & Medications
      5

      Fiber Supplement


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      132,342
    • Most Online (within 30 mins)
      7,748

    Mariebelle
    Newest Member
    Mariebelle
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • Wheatwacked
      If you were wondering why milk protein bothers you with Celiac Disease.  Commercial dairies supplement the cow feed with wheat, which becomes incorporated in the milk protein. Milk omega 6 to omega 3 ratio: Commercial Dairies: 5:1 Organic Milk: 3:1 Grass fed milk: 1:1
    • Wheatwacked
      My TMJ ended when I lost a middle lower molar.  I had an amalgam filling from youth (1960s) that failed and the tooth broke.  I had what was left pulled and did not bother to replace it.  My bite shifted and the TMJ went away.  I just had to be careful eating M&M Peanuts because they would get stuck in the hole.
    • trents
      Yes, I wondered about the units as well. That large number sure looked more like what we're used to seeing in connection with total IGA scores rather than TTG-IGA. The total IGA test is given to determine if you are IGA deficient. In the case of IGA deficiency, other IGA tests will b skewed and their scores cannot be trusted. Elevated total IGA can point to other health issues, some of them potentially serious, or it can mean nothing. But it doesn't look like you have celiac disease.
    • Wheatwacked
      So, since total iga 646, was high ,  was tTg iga even tested? It is not uncommon to test negative for antibodies and even biopsies to still have Celiac Disease.  Many on this forum have gone 10 years testing negative and surviving multiple misdiagnoses before finally being diagnosed as celiac. If trial GFD after all the negative tests are concluded brings improvement, will you continue to eat gluten and suffering since the doctor says you are not sick? Your list of symptoms, mostly unrelated to each other, certainly fits the pattern of celiac disease.  Do you really have nine different diseases, all with cause unknown?  
    • Wheatwacked
      If you don't like prunes, Figs are rich in fiber, with 3-5 dried figs providing about 5 grams.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.