Get email alerts Get Celiac.com E-mail Alerts  




Celiac.com Sponsor:
Celiac.com Sponsor:




Ads by Google:






   Get email alerts  Subscribe to FREE Celiac.com email alerts

  • Announcements

    • admin

      Frequently Asked Questions About Celiac Disease   09/30/2015

      This Celiac.com FAQ on celiac disease will guide you to all of the basic information you will need to know about the disease, its diagnosis, testing methods, a gluten-free diet, etc.   Subscribe to FREE Celiac.com email alerts What are the major symptoms of celiac disease? Celiac Disease Symptoms What testing is available for celiac disease? - list blood tests, endo with biopsy, genetic test and enterolab (not diagnostic) Celiac Disease Screening Interpretation of Celiac Disease Blood Test Results Can I be tested even though I am eating gluten free? How long must gluten be taken for the serological tests to be meaningful? The Gluten-Free Diet 101 - A Beginner's Guide to Going Gluten-Free Is celiac inherited? Should my children be tested? Ten Facts About Celiac Disease Genetic Testing Is there a link between celiac and other autoimmune diseases? Celiac Disease Research: Associated Diseases and Disorders Is there a list of gluten foods to avoid? Unsafe Gluten-Free Food List (Unsafe Ingredients) Is there a list of gluten free foods? Safe Gluten-Free Food List (Safe Ingredients) Gluten-Free Alcoholic Beverages Distilled Spirits (Grain Alcohols) and Vinegar: Are they Gluten-Free? Where does gluten hide? Additional Things to Beware of to Maintain a 100% Gluten-Free Diet Free recipes: Gluten-Free Recipes Where can I buy gluten-free stuff? Support this site by shopping at The Celiac.com Store.

Not Diagnosed But.......
0

5 posts in this topic

Last February my Endo gave me the Celiac blood workup. My Mom has Celiac and my sister and I have diabetes, so there is a good chance of problems in this area as well.

Well, my IgA showed an irregularity (I think it was a 60 and normal was 30). Every other test was totally negative and in fact could not be even conducted. They sent me for a bone scan, which showed very little problem and they also checked for anemia etc. I didnt show any signs or symptoms of anything.

This year I have started to show a slight problem with anemia, though they are not concerned about it. Now the problem with my stomach is a rather constant problem of (what we call on another board "Burbbling.") Bubbles bursting, and some gas but no other problems at all. I know there is a possibility of thyroid problems causing stomach trouble, and I have been treated for Graves disease and am now hypo thyroid. I could easily also have diabetes related stomach damage.

I have no desire to have the old tube down the throat, but my physicians wouldnt mind ordering another blood test. Is this something that might show a change? I assume if everything was still negative, it might mean I had a different sort of problem?

again, I have no symptoms but this bubbling feeling, and it is bothersome but not something that makes you feel sick. I have tried to check what causes it, and am more led to believe it comes from Diet Soda, Onions, Cabbage, and for some reason Instant Oatmeal. I can not tie it in to eating breads of any kind. Last night I intentionally made a meal of stir fried veggies and rice, and today the problem has been just awful. I know there are hidden sources of Gluten though, but it just doesnt seem to be connected to that.

Any thoughts?

0

Share this post


Link to post
Share on other sites


Ads by Google:

Hi Tasha,

I don't have a definite yes or no answer, the best I can say is maybe! The only definitive test for Celiac is the endoscopic biopsy (camera down the throat). Even that is not foolproof, as the skill and experience of both the gastroenterologist taking the biopsies and the pathologist examining the biopsy slides are crucial. However, it is much more determinative than the blood tests.

As for your reservations about the endoscopy, fear not! They will give you a mild sedative and you will not remember a thing. Mine was a breeze and I would consent to have another one in a heartbeat!

Unfortunately, there are no hard and fast symptoms of Celiac Disease. That is one of the things that makes this disease so difficult to diagnose. I recommend discussing the possibility of an endoscopy with your gastroenterologist, and if he/she thinks it's warranted (I think it is), get it done!

0

Share this post


Link to post
Share on other sites

Thanks, I just went ahead and had the Endo put another blood test on the paperwork so I can see if there is any difference over one year. I figured that was a safe place to start!

0

Share this post


Link to post
Share on other sites

From all that I have read I t hink you probably are pre-celiac, and you could do a stool test with "enterolab" which is more sensitive than the blood test.

The Italian Doctors who are way ahead have now come up with a test similar to the stool test, they think this is the way of the future because the blood test doesn't pick up everyone.

Good luck!

0

Share this post


Link to post
Share on other sites

I know, I read the research on this and I think it would be very beneficial, but I dont have the money to invest in it!

Wonder if they ever do research studies? I would be perfect for it.

And I agree, I think one day I could have Celiac.

Mom didnt get really sick until she was 65, but by then she was pretty miserable.

0

Share this post


Link to post
Share on other sites

Create an account or sign in to comment

You need to be a member in order to leave a comment

Create an account

Sign up for a new account in our community. It's easy!


Register a new account

Sign in

Already have an account? Sign in here.


Sign In Now
0

  • Forum Statistics

    • Total Topics
      103,393
    • Total Posts
      917,597
  • Topics

  • Posts

    • Can treatment for Giardia reverse active Celiac
      SugarCube, I saw your other posting today.  I can not believe that I missed your original posting!  Maybe I was doing something super fun that week (oh, my parents were visiting!).   Your celiac blood panel was positive and you had intestinal damage that was caused by both celiac disease and Giardia?  After treating the Giardia, your CD resolved or went into remission?  Are you consuming a diet containing gluten still?  Have you had a follow-up biopsy?   I read your link to the study, but that feature just one patient (a child).  Have you found any other larger studies?  Inquiring minds want to know!       
    • Week late aftershock!?
      Remember, celiac disease is an autoimmune disorder like lupus, MS or R.  Arthritis except the trigger for a flare-up is known -- gluten.  Unfortunately, no one knows what causes lupus or MS to flare-up (lots of theories, but no definitive answers).  For some celiacs, a flare-up is just a day or so.  For others a week or months!  I can vouch for months!  My antibodies were sky high after a glutening last summer six weeks after the occurrence.  I also became lactose intolerant for three months!  I was so bummed!   Plus, my symtoms were so different from when I was diagnosed.   I am sorry that you were glutened.  I hope you feel better soon.   Oh, I tend to alter my gluten-free diet to include soft easy-to-digest foods after a glutening.  Maybe this will help you.   
    • Emergen-c All Flavors gluten-free
      I hope this information is still accurate because according to their website they do not actually test the end product. http://www.emergenc.com/misc/faq Are your products free of Gluten? We do not use Gluten during the manufacturing process. However, we are unable to confirm its presence or absence as the end product is not tested for gluten
    • Week late aftershock!?
      I got glutened a little over a week ago.  It took me a couple days to feel the effects but they came in the form or diarrhea, headaches, fatigue, and anxiety.  During this time I also developed a sinus infection.  It took a few days then I started feeling better.  Now a little over a week after I got glutened I'm having another set of diarrhea, nausea and fatigue.   This has happened to me before and I always assumed I was glutened again but I have been eating at home and very careful.  I don't think it is another glutening but maybe when I feel better I start eating more that might aggravate my gut? or do you think it might have to do with my sinus infection?  I didn't take anything but mucinex.  Does this "aftershock" happen to anyone else? 
    • Celiac.com: Celiac Disease Screening An Uncertainty
      Thanks for the links Gee eff! I was able to leave comments. Yay!
  • Upcoming Events

  • Blog Entries

  • Recent Status Updates

    • Larry Gessner  »  cyclinglady

      Hi There, I don't know if there is a place for videos in the forum. I just watched "The Truth About Gluten" I think it is a good video. I would like to share it somewhere but don't know where it should go. Any help would be greatly appreciated.
      Here is the link if you have never watched it.
      https://youtu.be/IU6jVEwpjnE Thank You,
      Larry
      · 2 replies
    • ChiaChick  »  Peaceflower

      Hi Peaceflower, Just wanted to say thank you for the chat.
      · 0 replies
    • ukuleleerika

      Hello! I am new to this Celiac website... Is there anyone out there with Celiac AND extensive food allergies? My allergies include shellfish, dairy, eggs, cantaloupe, kiwi, mango, nuts, oranges, red dye, and more I can't think of. I went to the allergist about a year ago to see why I wasn't feeling well, and once everything was eliminated, I still didn't feel well. We did more testing to find out I had celiac as well as allergies to cattle as well as rye grass (I live on a farm basically). This was back in January 2016. I recently had my endoscopy with the gastroenterologist a week ago. I have no idea what to do or what to eat... So fish and potatoes for me!
      · 2 replies
  • Who's Online (See full list)

  • Member Statistics

    • Total Members
      60,527
    • Most Online
      1,763

    Newest Member
    MBrooks985
    Joined