Get email alerts Get Celiac.com E-mail Alerts  




Celiac.com Sponsor:
Celiac.com Sponsor:




Ads by Google:






   Get email alerts  Subscribe to FREE Celiac.com email alerts

Test Results Lost
0

4 posts in this topic

Dear All,

The lab that did my initial stool testing now says 10 weeks later that they lost the results! The lab is a well-known nationwide corporation - LabCorp. I have called for the results every week after the first and they said they were still working on it. Now they admit that they lost them. The trouble is not simply redoing them - I was on gluten then and went gluten-free a day later. It may take months to recover that initial condition.

If they lose things like stool samples, not simple small items in this case, what else can they lose? Can we trust them? I have told my doctor I will not be tested by them again, even though they have their offices in the hospital I attend. And if they can make mistakes like this how many more do they make that we do not hear about? Or how many are not really the results of a particular patient?

This is serious stuff, affecting the lives of patients. I think we should raise our voices to congress to investigate. I have read revcent reports of overcharging or mis-charging.

Andrew

San Diego

0

Share this post


Link to post
Share on other sites


Ads by Google:

I'm sorry, that must be so frustrating. I can see why you would be very angry.

A few months ago I was scheduled for an emergency c-section. My doctor did an amniocentesis (a very hairy procedure, which involved 3 VERY large needles being stuck in my VERY pregnant abdomen) to check for fetal lung maturity. My c-section was scheduled the next day pending the lab tests, which were flown out of state(to San Diego, actually LOL) to be done by a certain lab. Lo and behold, just as I was getting prepped for surgery, with IV already in place they called the lab and the results were lost! We couldn't go forward with the surgery without it, and we ended up losing valuable time which could have endangered my life or my baby's. Fortunately, all turned out well in the end, but it was a long and frustrating ordeal which resulted in some not too pleasant words said about that lab.

Anyway, my point is, I concur that something needs to be done. It is no small thing when labs get lost and peoples' lives are at stake.

0

Share this post


Link to post
Share on other sites

Well, The problem is worse than getting things lost. Getting things lost is just when the problems are seen. But, what percentage of cases are mishandled or mixed up internally? We will never know.

I have had another experience of late with this lab. They had to do special tests, not commonly done for my blood analysis (nothing to do with all the typical Celiac tests). Several weeks after it was done I was called back in to get it redone because the staff had not been told that for this case the blood had to be keep chilled after withdrawing it. I am glad that they found out in time on this occasion.

But, together with all the cases I hear about people getting billed for the wrong tests or tests not being done I fear we are using a very expensive and unreliable resaource. In my case I asked for second tests to be done - and yes there were real differences! In future I may seek a second lab for each test.

My message is - it is important to investgate the accuracy and reliability of the testing lab before one goes ahead, as I see here so often, to balme or question the doctor.

Andrew

0

Share this post


Link to post
Share on other sites

I understand how frustrating that must be. Prometheus is probably the best lab for celiac testing.

0

Share this post


Link to post
Share on other sites

Create an account or sign in to comment

You need to be a member in order to leave a comment

Create an account

Sign up for a new account in our community. It's easy!


Register a new account

Sign in

Already have an account? Sign in here.


Sign In Now
0

  • Forum Statistics

    • Total Topics
      104,144
    • Total Posts
      919,569
  • Topics

  • Posts

    • Thanks Stephanie & Gemini for the info. that the 4 of 5 doesn't apply to children. I wasn't aware of that until now. 
    • I think the posters above have given you very good information and I will throw in my 2 cents worth.  I am surprised that they did not test her DGP IgA also.  I am sure that would have been positive.  They switched off with antibody classes and usually they do both tests for both antibodies.  IgA is more specific to Celiac but the IgG is also useful.  The testing shows your daughter is producing antibodies to the gluten in her diet. (DGP IGG). THe tTg shows positive for some damage or inflammation. You know........your daughter is only 4.  She hasn't been on the planet or eating gluten that long. It can take years for enough damage to occur for it to be able to be found on biopsy.  I would say it is highly likely that this is Celiac, especially with her symptoms. But because the damage hasn't graduated to bad enough yet, they won't diagnose her. I think you need to do what others have said and get all copies of testing and find someone else who will take a look and give a diagnosis, especially if they have you do a dietary trial and her symptoms go away.  That might be the only recourse if you want faster proof. I know I would want faster.  I would not really be happy if I thought I had to keep feeding her something that was making her sick.  If you keep her on gluten long enough, the diarrhea will probably show up. BTW.........the criteria mentioned regarding diagnosis does not apply to kids.  I know it's silly and stupid but most leading Celiac specialists do not go by this criteria for kids.......adults only.  Keep that in mind because it might come up.  You could recognize it but they might not. Have you considered gene testing, to help bolster a diagnosis? As far as false positives go, it's the other way around. False negatives happen more frequently than many people think.  It's a recurring theme here.  With her symptoms, which is what I had, a bloated belly and tummy aches are telling.  Have they tested her for lactose intolerance?  That can cause similar symptoms, although it sure won't raise those 2 blood tests.  Keep looking for Celiac because there are many red flags here.
    • This 4 out of 5 criteria does not apply to children. I was never given a reason why, but it isn't.     That said, you may try to get a second opinion from another GI who may be willing to give her a firm dx.  We were in your boat 6 years ago and while I'm sure I'll get slammed for it, I wish we had kept gluten in our kiddos diet till he scoped positive for a variety of reasons.  Again, even family is different and you have to find what is best for you!
    • Mnoosh, I had swollen lymph nodes prior to celiac dx and for a while after going gluten free. My neck as well as groin. The groin ones were the worst. Guess what? All gone! It's hard to recall a time line & consider that everyone is different but I think mine completely resolved within a year.  You've been given great information. Just breathe and then again, breathe. You're going to be fine. 
    • It is the only thing you have eaten, so it can't be anything else?  I eat it with no issues so I am not sure how you can be certain that is the problem.  All I am saying is that its sort of "your word against mine and the company's word".  
  • Upcoming Events

  • Blog Entries

  • Recent Status Updates

  • Who's Online (See full list)

  • Member Statistics

    • Total Members
      61,176
    • Most Online
      1,763

    Newest Member
    Red Butt in hemet
    Joined