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Has Anybody Just Tried This?

PattyBoots

By PattyBoots
in Coping with Celiac Disease

Recommended Posts

PattyBoots Apprentice
PattyBoots
Posted

I'm new to the gluten-free diet, but not new to the "picky" diet.

Whenever anyone has ever offered me anything I didn't want/didn't like/gave me troubles, I just said "No thank you." I never offered a diatribe. I never tried to educate anyone. I just said, "No thanks." They moved on. No questions asked, no questions answered. Even when they "pushed" I just simply said, "No thanks." and they said, "Okay".

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Skylark Collaborator
Skylark
Posted

That works fine with strangers and it generally works for me at work and in casual social situations. It's very normal to offer to share cookies or snacks, and equally normal to turn them down.

It does not work so well with friends and family. I've educated my friends (gently) and many of them bring gluten free food to my parties so we can share treats. It's fun when they say "look what I found!" and discover a new gluten-free food I haven't tried. I educated my family and my SIL had a basket of gluten-free goodies from the health food store last time I came to their house. Educating my mother lead to her discovering her own gluten sensitivity.

It also doesn't work in restaurants, where glancing down the menu does not necessarily tell you what you can and can't eat.

PattyBoots Apprentice
PattyBoots
Posted
  • Author

I guess since I LITERALLY have no family - they've all died, and I suspect my mother from undiagnosed gluten issues, I really don't give a rat's ass if anyone is offended anyway. Having worked in the food service industry years ago, I don't like going out to eat anyway just because of the filth. Although, there is ONE pizza chain I'm partial to and that's going to be tough. Especially since I only got it every 3-4 years to begin with.

In the next two weeks I will be moving into a brand new house. Nobody has EVER lived there. Just as my husband understands there will be no smoking in the house (and it's a lot easier coming to that understanding since I'm a FORMER smoker), there will be no gluten in the house. Oh, okay, he can have beer in cans, but that's it.

Cypressmyst Explorer
Cypressmyst
Posted

I can certainly understand the sentiment and I think if I wasn't feeling up to talking about it I'd have no problem just saying no. ;)

However, I do like to educate people on this issue whenever possible. Saying "No I'm Gluten Intolerant." often provokes more questions about it. The more people who know the better off we all are.

With 40-50% of the population having a Gluten issue the more we bring it up the more people can get the help that the current medical system is failing them on.

In only 3 months I've helped 2 other people realize they are Gluten intolerant and they feel so much better having cut it out of their diets. :)

I'm never pushy about it but if people ask I will tell them and about half the time they really do listen or know someone who could benefit from looking into it.

It is a sad fact but it appears to be up to us to help heal our community, the overpaid doctors of the world sure aren't doing it. ;)

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      I wanted to respond to your post as much for other people who read this later on (I'm not trying to contradict your experience or decisions) > Kirkland Signature Super Extra-Large Peanuts, 2.5 lbs, are labeled "gluten free" in the Calif Costcos I've been in. If they are selling non-gluten-free in your store, I suggest talking to customer service to see if they can get you the gluten-free version (they are tasty) > This past week I bought "Sliced Raw Almonds, Baking Nuts, 5 lbs Item 1495072 Best if used by Jun-10-26 W-261-6-L1A 12:47" at Costco. The package has the standard warning that it was made on machinery that <may> have processed wheat. Based on that alone, I would not eat these. However, I contacted customer service and asked them "are Costco's Sliced Almonds gluten free?" Within a day I got this response:  "This is [xyz] with the Costco Member Service Resolutions Team. I am happy to let you know we got a reply back from our Kirkland Signature team. Here is their response:  This item does not have a risk of cross contamination with gluten, barley or rye." Based on this, I will eat them. Based on experience, I believe they will be fine. Sometimes, for other products, the answer has been "they really do have cross-contamination risk" (eg, Kirkland Signature Dry Roasted Macadamia Nuts, Salted, 1.5 lbs Item 1195303). When they give me that answer I return them for cash. You might reasonably ask, "Why would Costco use that label if they actually are safe?" I can't speak for Costco but I've worked in Corporate America and I've seen this kind of thing first hand and up close. (1) This kind of regulatory label represents risk/cost to the company. What if they are mistaken? In one direction, the cost is loss of maybe 1% of sales (if celiacs don't buy when they would have). In the other direction, the risk is reputational damage and open-ended litigation (bad reviews and celiacs suing them). Expect them to play it safe. (2) There is a team tasked with getting each product out to market quickly and cheaply, and there is also a committee tasked with reviewing the packaging before it is released. If the team chooses the simplest, safest, pre-approved label, this becomes a quick check box. On the other hand, if they choose something else, it has to be carefully scrutinized through a long process. It's more efficient for the team to say there <could> be risk. (3) There is probably some plug and play in production. Some lots of the very same product could be made in a safe facility while others are made in an unsafe facility. Uniform packaging (saying there is risk) for all packages regardless of gluten risk is easier, cheaper, and safer (for Costco). Everything I wrote here is about my Costco experience, but the principles will be true at other vendors, particularly if they have extensive quality control infrastructure. The first hurdle of gluten-free diet is to remove/replace all the labeled gluten ingredients. The second, more difficult hurdle is to remove/replace all the hidden gluten. Each of us have to assess gray zones and make judgement calls knowing there is a penalty for being wrong. One penalty would be getting glutened but the other penalty could be eating an unnecessarily boring or malnourishing diet.
    • trents
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