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Medication For Stomach Pains
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4 posts in this topic

Good morning everyone,

Okay heres my new thing. I went to the doctor yesterday (again) and explained my pains/problems and what not and was asking about why my tests a year ago came back neg. eventhough the gluten-free diet helps so much. She looked into my charts and my doctor showed that my old doctor only did one of the 3 blood tests. Uugh, should have done them all at once. They still incist that my wheat allergies would have showed up even though I had been gluten-free.... whatever.

Long story short, they referred me to a gasterolinterologist (i killed that spelling huh!) so Im on the ball to a recovery. Scared as hell though. :unsure: I absolutely hate doctors.

My doctor said that since I had previously been diagnosed with IBS that she could help me with the cramping and all that stomach crap with a medication called.. (Ill name it Esactly how it is on the label) "DICYCLOMINE 20MG TAB (MYLAN)". When I asked she said that she was pretty sure that it was gluten-free....

I dont know about you but "pretty sure" isn't good enough for me. I looked on the celiac medications page and it wasnt there... Does that mean that it is forsurely not gluten-free. Or are there more that arent on there because they arent common.

Also... Have any of you taken this medication If so how did you react to it? Did it even help? Did it cause more diarreah or constipation? I tried researching it online but I didnt find much.

THANKS!!!!! :)

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I took dicyclomine (brand name is bentyl) for about 2 months, 3 times a day. It had no side effects that I noticed and seemed to be a very safe drug. It's the same drug they sometimes give to newborns who have colic and stomach pain. The only complaint I had with dicyclomine is that it isn't particularly effective. The one thing it did do was slow down my bowel movements, so I went every other day instead of once or twice every day. It tells you to take it before meals, I think, but I felt best taking it with or just after meals. I stopped taking it simply because it didn't really change my symptoms and I figured why be on it if it isn't really helping, but for you it may be very effective. Congrats on being referred to a GI doc, that will point you in the right direction!

Oh, and P.S., it is gluten-free, at least when I called the company they said it was! But maybe a lot of companies manufacture it and it could be different, call your pharmacy and get the listing of who they get their dicyclomine from, then call and double check.

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:D Thanks so much for your input. I am always peranoid how things will effect me when I eat them or take medications... I guess I wont know if I dont try it. I do hope to see results.

Thanks!!!!!!!!!!!!!!!!!!!!!!!!! :)

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My gastroenterologist (sp?) also prescribed it to me and he diagnosed my celiac disease so it better be gluten-free! It makes me soooooooo sleepy. Jenni

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    • I think the posters above have given you very good information and I will throw in my 2 cents worth.  I am surprised that they did not test her DGP IgA also.  I am sure that would have been positive.  They switched off with antibody classes and usually they do both tests for both antibodies.  IgA is more specific to Celiac but the IgG is also useful.  The testing shows your daughter is producing antibodies to the gluten in her diet. (DGP IGG). THe tTg shows positive for some damage or inflammation. You know........your daughter is only 4.  She hasn't been on the planet or eating gluten that long. It can take years for enough damage to occur for it to be able to be found on biopsy.  I would say it is highly likely that this is Celiac, especially with her symptoms. But because the damage hasn't graduated to bad enough yet, they won't diagnose her. I think you need to do what others have said and get all copies of testing and find someone else who will take a look and give a diagnosis, especially if they have you do a dietary trial and her symptoms go away.  That might be the only recourse if you want faster proof. I know I would want faster.  I would not really be happy if I thought I had to keep feeding her something that was making her sick.  If you keep her on gluten long enough, the diarrhea will probably show up. BTW.........the criteria mentioned regarding diagnosis does not apply to kids.  I know it's silly and stupid but most leading Celiac specialists do not go by this criteria for kids.......adults only.  Keep that in mind because it might come up.  You could recognize it but they might not. Have you considered gene testing, to help bolster a diagnosis? As far as false positives go, it's the other way around. False negatives happen more frequently than many people think.  It's a recurring theme here.  With her symptoms, which is what I had, a bloated belly and tummy aches are telling.  Have they tested her for lactose intolerance?  That can cause similar symptoms, although it sure won't raise those 2 blood tests.  Keep looking for Celiac because there are many red flags here.
    • This 4 out of 5 criteria does not apply to children. I was never given a reason why, but it isn't.     That said, you may try to get a second opinion from another GI who may be willing to give her a firm dx.  We were in your boat 6 years ago and while I'm sure I'll get slammed for it, I wish we had kept gluten in our kiddos diet till he scoped positive for a variety of reasons.  Again, even family is different and you have to find what is best for you!
    • Mnoosh, I had swollen lymph nodes prior to celiac dx and for a while after going gluten free. My neck as well as groin. The groin ones were the worst. Guess what? All gone! It's hard to recall a time line & consider that everyone is different but I think mine completely resolved within a year.  You've been given great information. Just breathe and then again, breathe. You're going to be fine. 
    • It is the only thing you have eaten, so it can't be anything else?  I eat it with no issues so I am not sure how you can be certain that is the problem.  All I am saying is that its sort of "your word against mine and the company's word".  
    • Thanks cyclinglady & manasota! I appreciate it. I came to give an update...... I'm still 99% itch free. I get a "place" like a bug bite once in a while that itches and I just use the prescription steroid cream on it & that takes care of the itch. My rash is healing up rapidly everywhere. Almost clear skin now! Yaaaaayyyyyyyyyy! Now for a rundown of the "treatment". For 20 days I took a 100mg doxycycline twice a day. Then we upped it to two 100mg doxy twice per day. I took those for 5 days & made rapid progress and the itching stopped. The doxy was getting my tummy though. It was getting really rough despite my eating yogurt. So on day 6 and day 7, I took two 100mg doxy in the am but in the pm I just took 1 of them. On day 7, I was nauseous for hours on end. So since I was still doing well without itching and the rash was healing everywhere, I decided to cut back some more. On days 8, 9, & 10 I have only taken two 100mg doxy in the am and none at night. I'm doing good and my tummy is much, much happier! No more nausea!  I'll update as things go along.
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