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Having Issues With The Restroom
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Hello everyone,

I was diagnosed with the celiac disease roughly 5 months ago after having the problem for 2 years (finally leaving he**). Believe it or not, this is my first visit to this sight. I have local grocery stores that sells gluten free products and I have made a concious effort to avoid all of the suspect ingredients, as if it is possible?? Even though I swear that I am not eating anything with gluten in it, I still have to use the restroom 3x every morning within a 2-3 hour period of waking up. Given, this is down from the 6x a day before my diagnosis. However, it makes getting to work difficult and uncomfortable. I think anyone with the problem can relate to the suddon unstoppable urge I am speaking of. Is this normal? I understand that soy and other substitutes can aggravate the issue w/o any true danger to the intestines. This problem has ruined a good portion of my life and I am trying to seek any help I can find to make this situation better.

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You might want to begin keeping a food diary. Write down everything that goes into your mouth and the approximate times that it does. Even write things down like medicines.

See if you can pinpoint anything that might be causing an aggrivation to your system.

Another option would be to post on here what you eat and folks can try to help you sift out the problem areas. People are very helpful on this site. Welcome and post often. There is a great wealth of information here.

-Jessica :rolleyes:

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Hi, Welcome to the site and as Jessica said there are wonderful people here that are very supportive and informative!!! :D

Yes I can totally relate to your problem!!! I have been gluten-free since Sept 03 and still have that (BM) problem. Luckily for me I quit my job last Sept so I do not have to struggle with getting to work anymore or making sudden stops at the local drug store to use their restrooms but it still interferes with my life. I usually do not leave my house if I have not gone to the restroom. ;)

I do not know if this is normal, all I can say is maybe it takes some of us a little more time for our body to heal from the toxins of the gluten than others!?!?!?! I do hope you begin to feel better soon. Click Here for a list of forbidden foods that may help you when looking at ingredients. Take care

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I found out that dairy and soy are total issues for me. I kind of knew about the dairy, but the soy was a new one for me. I can't handle any butter, no puddings, even the safe ones, no peanut butter either, although peanuts are okay. I totally agree with keeping a food diary. There were alot of "safe" foods listed by the doctor that diagnosed us, but we found them to not be safe for us at all, major reactions. And definitely watch the vitamins or any other supplements you are taking, they have been my downfall more than any other thing. Spices are often coated with flour to prevent them from caking, so we've had to make lots of phone calls to companies. Also, watch for "natural flavors" "natural colors".

I kind of started this out by eating nothing but cheese puffs(from the health store) and water, so it was pretty easy for me to start nailing the culprits as they came back into my diet.

OH! And something that I've noticed, for myself, is that the bean flours keep me in the bathroom ALOT. I've tried working them in gradually, but it doesn't help. So, I've put the beans away, just can't handle them. :blink:

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You also may want to have your doctor test you for a bacterial overgrowth in the small intestine. This is a real simple breath test - nothing invasive. I had that recently and after 10 days of antibiotics, no more problems!

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I have bad days and good days since I went gluten-free. I think I got glutened today though... I accidentally licked an envelope, and 30 minutes later I almost soiled myself. Had 3 more close calls within the next couple of hours.

I still get diarrhea, just not like I used to. I have only been gluten-free since 2-23-04.

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Dear Neff: Sorry my husband can't/won't reply himself - he is so depressed & can't bring himself to talk about celiac just yet. He was diagnosed in 10/03 after over 25 years as celiac without knowing it. Yes, he has same problem. He can't leave the house until about noon time. He hasn't worked in over 25 years due to this problem. Now that he's been gluten free since 10/03 he still isn't what one would call regular. Don't know if he'll ever be. He has the same 2-3 X within a 2-3 hr period of waking up. He tries to be out of bed by 5:30 AM so that he can get all of this bathroom nonsense out of the way. That's how he handles it. Maybe this is regular for a celiac patient (2-3 X etc.)? What does the consenus say?

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I still have BM problems. Most of the time it is in the morning and I usually know the night before if I'm going to have trouble (Stomach noise/pain).

It is getting a little better-2 to 3 days a week instead of everyday-

A few thing that I know get me are

SOY

Dairy

Yeast

Too much Fiber (Beans,Asparagus)

Maybe Eggs

and the worst is when I'm stressed-after having so many close calls over the past 5 years my GI BM cycle kicks in if I get stressed out at all. It

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Your hubby and I were diagnosed around the same time(10/03). I had been seriously sick for three years before I finally got the Celiac diagnosis. I used to have regular emergency runs to the restroom, which definately causes problems with working!, but that has slowed down quit a bit. Now I have regular bathroom habits except if I eat something bad.

You may want to check and recheck everything he is eating, touching, bathing with, etc. I do get reactions from touching gluten. If nothing better, go see the doctor again and get more guidance.

Best of luck!

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Im not an expert about this at all, but I just wanted to add. Has anyone thought about what they use in the morning. IE: toothpaste, or mouthwash, or medicines, or flavored floss. Those things could affect the morning routine...I would think.. Just an idea.

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Good point about the floss/toothepast/mouth rinse. It is all supposed to be "safe" if it's manufactured in the USA, but I checked with the company anyway...not bashing any labelling issues here! Just paranoid and trying to get all those poisons away from me.

It seems like alot of us were diagnosed last fall...I know that for the most part i'm now finally okay with the potty, but it did take about 3 months before everything calmed down so that I can go out on a shopping trip without planning ahead for potty stopping spots. And I have also learned the other things I can't handle. I was disheartened to read, at first, about the other trigger foods living along with the celiac disease. But, taking a practical view has helped me alot. I wouldn't stick a grenade in my shoe before I put it on, etc. I know that seems like it's pretty far-fetched, but it is as practical as that for me. Food is tougher because it is so emotional for us, it's survival, but there are alot of things available that weren't even a few years ago. I can find most creature comforts if I search around long enough(okay, not all the same, but close enough that i can delude myself enough to get through the rough spot!) :P

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    • First, do you have celiac disease?  Have you recently had a celiac antibodies follow-up blood test panel to see if gluten has been actually getting into your diet by accident or through cross contamination?  If you haven't had the test, you should ask your doctor for one.  You could also also ask for a follow-up endoscopy to see if you intestines have truly healed.  This will rule out if gluten is really the problem.    If you don't have celiac, I assume you have Non-celiac gluten Intolerance because no one would stick to the gluten-free diet for six years unless you have had reductions in symptoms.  There is no test for NCGI unfortunately.  So, it is hard to say if gluten has been sneaking into your diet.  You really are going to have to try to figure out if you are getting gluten into your diet.  If gluten is not the problem, then your doctor needs to check you for other issues, like SIBO. There is a test to check for SIBO.  Has this been done?   Once a celiac, always a celiac.  There is no cure for celiac disease except to remain on a gluten free diet for life.  I am not sure about NCGI.  Not much research has been done.  Maybe others can chime in?    
    • I am so confused right now.... 6 years ago I went on gluten free diet... after being on it for the first yr I was 100%better up until 5 months ago in got the "flu" the doctors told me to cut out dairy sonic did and my diarrhea  became better but not completely gone would not have it every day tho. I went to the gi doctor and they said to cut out fructose and dairy and keep gluten out... yesterday I went to the dietitian to see what I can eat and she gave me the list for fructose... she said it should have been on a antibiotic for sibo.... eventually I will be able to add dairy back and maybe gluten.... I said how can I add gluten back when this was my first problem... she goes well through fructose goes hand in hand with it... I said with gluten I vomit and am sick for weeks.... fructose isn't that bad I vomit sometimes but I'm not sick for weeks.... I'm just confused on really what is going on and was wondering if you or someone you know had sibo from gluten and or fructose and how Is this all related?
    • I see no one has responded to your query.  Unfortunately I have yet to try making a pie crust.  It was something I never mastered before going gluten free.  Have you looked on Pinterest?  You might find something there.
    • I honestly feel like both doctors think it's all in my head even though there is proof.  Yeah there was a point when I felt crazy.  That was when I was being shuffled from dr to dr being given individual diagnoses of my problems.  None of those diagnoses ever made me get better.  Seriously I was diagnosed with heart palpitations, neurocardiogenic syncope, I was given a butt load of steroids because a dr felt like I was producing too much adrenaline, freaking had a few tell me I was depressed, and the good ol IBS.  It seemed most wanted to push pills.  It's all just ridiculous!
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