Get email alerts Get Celiac.com E-mail Alerts  




Celiac.com Sponsor:
Celiac.com Sponsor:




Ads by Google:






   Get email alerts  Subscribe to FREE Celiac.com email alerts

Getting Tests Done
0

1 post in this topic

Here's my story. Last year I was dx'd with a b 12 deficiency and with the GI symptoms that I was having ended up having celiac blood tests done and an endoscopy. Unforunately my GI only took 2 biopsies in my small intestine, the rest were in my stomach and esophagus. All of those tests were negative. My GI told me celiac was impossible because my tests were negative with no family history. However, by then I had noticed that my GI problems were connected with gluten. My allergist at the time tested me for IgE allergies for wheat, barley, and rye. I came back with a weak positive for barley. He told me that if avoiding gluten bothered me to do so. Well I moved and my new allergist thinks that my asthma isn't asthma but a complication from the acid reflux I've never experienced. In two weeks I go back to see him where he wants to put me of a trial of prilosec to see if it helps. However, if I am going to have to add another permenant medication to my list, I want a firm reason to do so. My endoscopy did not show reflux a small patch of minor gastritis in my stomach but that was it. What I want is to be tested again. For both celiac and allergies spesifically IgG allergies. So, I guess my question is do doctors actually exist. I have heard both positive and negative things about that type of test. That some people do react to things but, it tends to have lots of false positives.

I guess I just want to know what tests to ask for.

0

Share this post


Link to post
Share on other sites


Ads by Google:

Create an account or sign in to comment

You need to be a member in order to leave a comment

Create an account

Sign up for a new account in our community. It's easy!


Register a new account

Sign in

Already have an account? Sign in here.


Sign In Now
0

  • Forum Statistics

    • Total Topics
      104,118
    • Total Posts
      919,454
  • Topics

  • Posts

    • So, I have just yesterday had blood work done to test for Celiac so I am waiting on my results.  This was prompted when my Dr discovered that I was severely anemic and after other testing sent me to  Hematology.  I actually inquired if I could possibly have a gluten sensitive because of the anemia (which has improved with an iron supplement) and feeling bloated after eating and well most of the time actually and after some research I found that this could be a sign that of a gluten sensitivity.   The Hematology Dr also recommend an upper GI.  Do you think that I am on the right course to see if I possibly have Celiac?  Can this develope later in life ( I'm 46)?  I ate a meal last night that was gluten free and did not feel like nearly as bloated after eating, would I notice a change that quickly?  Thanksort for your input.   ANN
    • Yes, the first time you use gluten free flours, it feels like a challenge. ... of a gluten-free living after her elder kid was diagnosed with Celiac Disease. View the full article
    • I figured I would update those who were wondering.  I have gotten the appt. so far moved up to August 30. I am waiting to have gene testing done via swab for all 3 of my kiddos tomorrow. My daughters celiac antibodies came up negative but her IgA is low which the ped said could cause false negative antibodies for celiac so she will need to see a GI dr. also. The pediatrician is going to call the GI to try to get them in sooner. I am keeping them all on a gluten diet until the GI dr. decides what to do. I am on the cancellation list already for my son, however I am not going to be persistent with my phone calls to them until I have the results of the gene test. I really want that result in my hand before going to the GI dr if I can. Maybe if he is positive, along with his bloodwork and my history they can forgo the endoscopy. But he will eat gluten till then.  My husband and I have been very honest and upfront with him as to what is going on and the possibility of the endoscopy and what that entails and although scared in general he seems ok after assuring him that since I have it he has me to help him every step of the way.  Going through his current diet with him I realized that he is truly on such a low gluten diet that I am actually surprised his bloodwork shows antibodies at all!  So I told him to make a list of allllll the gluten he could possibly think of eating and he needs to pound it until the GI visit or endoscopy. Funny thing is everything he keeps thinking of to want to eat...is already gluten free!  The other night we were at a friends and he asked if he could be done with his hotdog. I made him finish just the bread 😂 Thanks for your help and advise and I will keep y'all posted on both kids!  My oldest is a ok as far as all his antibodies. Just actually had a follow up for other immune issues and all his levels are now normal!
    • I like your plan Cara, I may have to include it in my sons.    Poor little guy is still very very sick. I think he is resisting and cheating, despite having the support of two other siblings and a 100% gluten-free home. 
    • Despite it being a nightmare, I did wait for my kids to get biopsies. At one point I had one severely ill child gluten-free and two more waiting having to eat it. It was worth the wait though and I think long term a biopsy may be worthwhile, especially for school. I have already had issues with schools and camps so having a firm diagnosis has been helpful. 
  • Upcoming Events

  • Blog Entries

  • Recent Status Updates

  • Who's Online (See full list)

  • Member Statistics

    • Total Members
      61,157
    • Most Online
      1,763

    Newest Member
    Anns
    Joined