Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.


  • Celiac.com Sponsor (A1):
    Celiac.com Sponsor (A1-M):
  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Tendonitis And Broken Bones


chi1968

Recommended Posts

chi1968 Rookie

I would just like to know what people's experiences are with any sort of tendonitis; back, joint, or hip pain, other kinds of "itis"; and broken bones.

I'm 44 and was just diagnosed positively about a month ago. Before that, I didn't have any sort of GI symptoms or anything to point that DRs to test for celiac. I found out about this by accident (long story).

In the past few years, I've had plantar faciitis, achilles issues (ongoing), my shoulder joints "pop" when doing certain exercises and I actually found out I have a micro tear in one shoulder's tendon. Two days ago, my big toe on my right foot started hurting -- seemingly for NO reason -- as if I have a stress fracture. I can't put any pressure on it at all. The pain is constant. (ie, not getting better or worse with rest or exercise). I had a stress fracture in this same foot YEARS ago (like 35?) while in college, and it is sort of the same feeling but a bit worse. I had done some lower body weight training that day -- which had included walking lunges -- but nothing seemed to hurt me at the time. I was actually in bed sleeping(!) when the toe started to hurt.

So, my question is, have any of you experienced what you feel is these sorts of pains, either for seemingly no reason or, if you exercise, for example, do you find yourself getting injured way too much?

I had a DEXA scan after my diagnosis. And, although the numbers are in the negative percentile, they seem within a normal range (I haven't yet discussed this with my DR).


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



UKGail Rookie

I finally started on the road to twigging to my gluten intolerance when my physio pointed out to me that having 2 frozen shoulders (one with bone loss) in as many years is not normal, and probably indicates an underlying inflammatory process. Anyway, after lots of blood tests which did indicate a high level of inflammation, but no obvious cause for it, a gluten free trial diet resolved my chronic headaches, the frozen shoulder released and various nagging aches and pains pretty much went away.

Some years ago I struggled with rehab from a car accident due to persistent inflammatory responses on trying to exercise. I took prescription level anti-inflammatories and pain killers for well over a year. It only really resolved after many months of gentle physio-led pilates and a microbiotic diet which happened to be, you guessed it, gluten free.

The MRIs from the car accident showed that I have something called Scheuermann' disease, which is a condition where the end-plates of the spinal vertebrae don't develop properly. It can cause curvature of the spine, and may cause back pain, or may be symptom free. It develops in teenagers during the final stages of growth, and is often seen in athletes, leading to speculation that it might be caused by exercise-induced oxygen deprivation in the body tissues. Now I am not especially athletic, and did no more running around than an average teenager. I do sometimes wonder if underlying systemic inflammation might have had a hand in the development of this condition too.

ravenwoodglass Mentor

The inflammation we get can have some nasty effects on the muscles, tendons and joints. I have definately had my share of issues most of which resolved when I had been gluten free for a while and the inflammation went away.

However with it being your big toe, having no relief when your off it and with it's sudden appearance you may want to run this by your doctor to make sure you are not suffering an attack of gout.

BrittLoves2Run Apprentice

What initally drove me to go to the doctors and push for more testing was a foot that was Extremely painful and I couldn

Duhlina Apprentice

I have had terrible tendonitis in the past in both of my elbows, so bad that I couldn't even squeeze the toothpaste tube! I tried everything from the brace to the cortisone shots and nothing solved it. The ONLY and I mean ONLY thing that solved it was acupuncture.

Since going gluten free I haven't had any flareups which has been great!

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - DebD5 commented on Scott Adams's article in Spring 2026 Issue
      1

      The Dark Side of Gluten-Free: Counterfeit Labels and Global Food Safety Failures

    2. - Jmartes71 replied to Jmartes71's topic in Doctors
      6

      Second chance

    3. - trents replied to EssexMum's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      2

      Concerning GP advice

    4. - knitty kitty replied to HectorConvector's topic in Related Issues & Disorders
      327

      Terrible Neurological Symptoms

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      133,641
    • Most Online (within 30 mins)
      7,748

    JennaK23222
    Newest Member
    JennaK23222
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.6k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Who's Online (See full list)

    • There are no registered users currently online
  • Upcoming Events

  • Posts

    • Jmartes71
      Thats the thing, diagnosed in 1994 before foods eliminated celiac by biopsy colonoscopy at Kaiser in Santa Clara  now condo's but it has to be somewhere in medical land.1999 got married, moved, changed doctor's was with former for 25 years told him I waz celiac and that.Fast forward to last year.i googled celiac specialist and what popped up was a former well known heard of hospital. I thought I would get answers to be put through unnecessary colonoscopy KNOWING im glutenfree and she wasn't listening to me for help rather than screening me for celiac! Im already diagnosed seeking medical help.I did all the appointments ask from her and when I wanted my records se t to my pcp, thats when the with holding my records when I repeatedly messaged, it was down played the seriousness and I was labeled unruly when I asked why am I going through all this when its the celiac name that IS what my issue and All my ailments surrounding it related. I am dea6eoth the autoimmune part though my blood work is supposedly fabulous. Im sibo positive,HLA-DQ2 positive, dealing with skin, eye and now ms.I was employed as a bus driver making good money, I loved it for the few years my body let me do until I was yet again fired.i went to seek medical help because my body isn't well just to be made a disability chaser. Im exhausted,glutenfree, no lawyer will help and disability is in limbo thanks to the lax on my health from the fabulous none celiac Google bay area dr snd team. Its not right.
    • trents
      Welcome to the celiac.com community @EssexMum! First, let me correct some misinformation you have been given. Except in the case of what is known as "refractory" celiac disease, which is very rare, it is not true that the "fingers" will not grow back once a consistently gluten free diet is adopted. Celiac disease is an autoimmune condition whereby the ingestion of gluten triggers an inflammatory process that damages the millions of tiny finger-like projections that make up the lining of the small bowel. We call this the "villous lining". Over time, continued ingestion of gluten on a regular basis results in the wearing down of these fingers which greatly reduces the surface area of this very important membrane. It is where essentially all the nutrition from what we eat is absorbed. So, losing this surface area results in inefficiency in nutrient absorption and often to medical problems related to nutrient deficiencies. Again, if a gluten-free diet is consistently observed, the villous lining of the small bowel should rebound. "We was informed that her body absorbs the gluten rather then rejecting it and that is why she doesn't react to the gluten straight away, it will be a build up and then the pains start. " That sounds like unscientific BS to me. But it does sound like your stepdaughter may have a type of celiac disease we know as "silent" celiac disease, meaning, she is asymptomatic or at least the symptoms are not intense enough to usually notice. She is not completely asymptomatic, however, because you stated was experiencing tummy aches off and on. Cristiana gives some good suggestions about ordering "safe" food for your stepdaughter from restaurant menus in Europe. You must realize that as the step parent who only has her part of the time you have no real control over how cooperative her other set of parents are with regard to your stepdaughter's needs to eat gluten free. It sounds like they don't really understand the seriousness of the matter. This is very common in family settings where other members are ignorant about celiac disease and the damage it can do to body systems. So, they don't take it seriously. The best you can do is make suggestions. Perhaps print out some info about celiac disease from the Internet to send them. Being inconsistent with the gluten free diet keeps the inflammation smoldering and delays or inhibits healing of the villous lining. 
    • Scott Adams
      Here are some articles on cross-reactivity and celiac disease:      
    • knitty kitty
      @HectorConvector, Here are some articles about "dry Beriberi" and neuropathy.  I hope you've been able to acquire thiamine hydrochloride or Benfotiamine.  I'm concerned.   Dry Beriberi Due to Thiamine Deficiency Associated with Peripheral Neuropathy and Wernicke's Encephalopathy Mimicking Guillain-Barré syndrome: A Case Report and Review of the Literature https://pubmed.ncbi.nlm.nih.gov/30862772/ Dry Beriberi Manifesting as Acute Inflammatory Demyelinating Polyneuropathy in a Patient With Decompensated Alcohol-Induced Cirrhosis https://pmc.ncbi.nlm.nih.gov/articles/PMC7707918/ A Rare Case of Thiamine Deficiency Leading to Dry Beriberi, Peripheral Neuropathy, and Torsades De Pointes https://pmc.ncbi.nlm.nih.gov/articles/PMC10723625/
    • cristiana
      Good evening @EssexMum You are quite right to be concerned about this situation.  Once diagnosed as coeliac, always a coeliac, and the way to heal  is through adopting and sticking to a strict gluten diet. That said... I have travelled twice to France since my diagnosis, firstly in May 2013 and again in August 2019.   My spoken French isn't bad, and whilst there I tried my best to explain my needs to chefs and catering staff, and I read labels very carefully when shopping in supermarkets, but both times I came away with worsening gastric symptoms and pain. Interestingly,  after the second holiday, my annual coeliac review took place the following month and although I'd been very careful to avoid gluten all year, thanks to that August holiday my coeliac antibodies were elevated,  Clearly I hadn't been imagining these symptoms and they must have been caused by gluten sneaking in somehow. When I spoke to my gastroenterologist on my return, who is an excellent doctor, he told me with a smile that this was a very common experience in France among his patients, and not to worry too much about it! In fact, before we went away in May 2013, which was just after I had been formally diagnosed, he told me not to even bother trying to adopt a gluten free diet until I returned, knowing what France was like, but I was feeling so awful at that time I ignored his advice and at least tried to make a start with it. (I ought to say - both these visits were some time ago, so perhaps things are a lot better there now.) So what to do?  I would say at least try to explain to catering staff the situation - they should be able to rustle up a plate of cheese, boiled eggs, tuna, salad and fruit, and if things like crackers and gluten-free pot noodle or oats can be packed in the UK, those can be produced at mealtimes.    Of course, most larger supermarkets in France do now cater for coeliacs, but when I was last there the the choice wasn't as wide a range as we have in the UK but I think that is partly because the French like to cook from scratch, whereas our gluten-free aisles have quite a lot of dried or pre-baked goods in them/convenience foods, because I think we as a nation tend to use them more. I would be worth doing a bit of research on the internet before the trip, - the words you want are 'sans gluten'.  I've just googled 'sans gluten Disney Paris" and this came up.  I do hope at least some of this is of help. https://www.tripadvisor.co.uk/Restaurants-g2079053-zfz10992-Disneyland_Paris_Ile_de_France.html  Whatever befalls in France, at least your stepdaughter can resume her usual diet on her return. On a related tack, would you be happy to post any positive findings/tips upon her return - it might be of use to others travelling to Disneyland Paris with children in future? Cristiana
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.