Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Tendonitis And Broken Bones


chi1968

Recommended Posts

chi1968 Rookie

I would just like to know what people's experiences are with any sort of tendonitis; back, joint, or hip pain, other kinds of "itis"; and broken bones.

I'm 44 and was just diagnosed positively about a month ago. Before that, I didn't have any sort of GI symptoms or anything to point that DRs to test for celiac. I found out about this by accident (long story).

In the past few years, I've had plantar faciitis, achilles issues (ongoing), my shoulder joints "pop" when doing certain exercises and I actually found out I have a micro tear in one shoulder's tendon. Two days ago, my big toe on my right foot started hurting -- seemingly for NO reason -- as if I have a stress fracture. I can't put any pressure on it at all. The pain is constant. (ie, not getting better or worse with rest or exercise). I had a stress fracture in this same foot YEARS ago (like 35?) while in college, and it is sort of the same feeling but a bit worse. I had done some lower body weight training that day -- which had included walking lunges -- but nothing seemed to hurt me at the time. I was actually in bed sleeping(!) when the toe started to hurt.

So, my question is, have any of you experienced what you feel is these sorts of pains, either for seemingly no reason or, if you exercise, for example, do you find yourself getting injured way too much?

I had a DEXA scan after my diagnosis. And, although the numbers are in the negative percentile, they seem within a normal range (I haven't yet discussed this with my DR).


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



UKGail Rookie

I finally started on the road to twigging to my gluten intolerance when my physio pointed out to me that having 2 frozen shoulders (one with bone loss) in as many years is not normal, and probably indicates an underlying inflammatory process. Anyway, after lots of blood tests which did indicate a high level of inflammation, but no obvious cause for it, a gluten free trial diet resolved my chronic headaches, the frozen shoulder released and various nagging aches and pains pretty much went away.

Some years ago I struggled with rehab from a car accident due to persistent inflammatory responses on trying to exercise. I took prescription level anti-inflammatories and pain killers for well over a year. It only really resolved after many months of gentle physio-led pilates and a microbiotic diet which happened to be, you guessed it, gluten free.

The MRIs from the car accident showed that I have something called Scheuermann' disease, which is a condition where the end-plates of the spinal vertebrae don't develop properly. It can cause curvature of the spine, and may cause back pain, or may be symptom free. It develops in teenagers during the final stages of growth, and is often seen in athletes, leading to speculation that it might be caused by exercise-induced oxygen deprivation in the body tissues. Now I am not especially athletic, and did no more running around than an average teenager. I do sometimes wonder if underlying systemic inflammation might have had a hand in the development of this condition too.

ravenwoodglass Mentor

The inflammation we get can have some nasty effects on the muscles, tendons and joints. I have definately had my share of issues most of which resolved when I had been gluten free for a while and the inflammation went away.

However with it being your big toe, having no relief when your off it and with it's sudden appearance you may want to run this by your doctor to make sure you are not suffering an attack of gout.

BrittLoves2Run Apprentice

What initally drove me to go to the doctors and push for more testing was a foot that was Extremely painful and I couldn

Duhlina Apprentice

I have had terrible tendonitis in the past in both of my elbows, so bad that I couldn't even squeeze the toothpaste tube! I tried everything from the brace to the cortisone shots and nothing solved it. The ONLY and I mean ONLY thing that solved it was acupuncture.

Since going gluten free I haven't had any flareups which has been great!

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - trents commented on Scott Adams's article in Kids and Celiac Disease
      2

      New Study Reveals Age and Racial Gaps in Pediatric Celiac Testing

    2. - Russ H replied to pothosqueen's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      3

      Positive biopsy

    3. - Scott Adams replied to pothosqueen's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      3

      Positive biopsy

    4. - Scott Adams commented on Scott Adams's article in Latest Research
      3

      New "Glowing Bacteria" Pill Could Transform Gut Disease Detection (+Video)

    5. - trents replied to mamaof7's topic in Parents, Friends and Loved Ones of Celiacs
      7

      Help understand results

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      133,000
    • Most Online (within 30 mins)
      7,748

    Klutziblonde
    Newest Member
    Klutziblonde
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Upcoming Events

  • Posts

    • Russ H
      What you describe is seronegative villous atrophy (negative antibody tests but positive biopsy). It is uncommon in coeliac disease, and there are other causes, but the most common cause is coeliac disease. I would pursue this with your healthcare provider if possible. Based on clinical history, test results and possible genetic testing for susceptibility to coeliac disease it should be possible to give a diagnosis. There is a bit more here: Seronegative coeliac disease
    • Scott Adams
      If you are still eating gluten you could get a celiac disease blood panel done, but I agree with @trents and the gold standard for diagnosing celiac disease would be your endoscopy results. Is it possible they did do a celiac disease panel before your biopsy? This would be the normal chain of events. This article might be helpful. It breaks down each type of test, and what a positive results means in terms of the probability that you might have celiac disease. One test that always needs to be done is the IgA Levels/Deficiency Test (often called "Total IGA") because some people are naturally IGA deficient, and if this is the case, then certain blood tests for celiac disease might be false-negative, and other types of tests need to be done to make an accurate diagnosis. The article includes the "Mayo Clinic Protocol," which is the best overall protocol for results to be ~98% accurate.    
    • trents
      Actually, it would be more correct to say that the genetic potential to develop celiac disease is passed down from parents to children. About 40% of the general population has the genetic potential to develop celiac disease but only about 1% of the general population actually do. But it is also true that the offspring of those who do have active celiac disease are at a considerably higher risk of developing active celiac disease than those of parents who have the genes but don't develop the disease. Some recent, larger studies put the risk at near 50% for the first degree relatives of those who have active celiac disease.
    • Jordan Carlson
      Hello everyone! Been a while since I posted. The past few moths have been the best by for recovery for myself. I have been the least bloated I have ever been, my constant throat clearing is almost gone, I have stopped almost all medication I was prevously taking (was taking vyvanse for adhd, pristiq for anxiety,fomotadine/blexten for histamine blockers and singulair). Only thing I take now is Tecta. I also no longer get any rashes after eating. Things are going very well. Most success came actually once I upped my B12 daily dose to 5,000 mcg. I do have one thing I am un able to figure out and want to see if anyone else has this issue or has experience working around it. Ever since I was born I have always had a issue getting fruits and veggies down. No matter how hard I tried, it would always result in gagging or throwing up. Always just thought I was a picky eater. Now that my stomach and system has healed enough that I can feel when something is off almost istantly, I notice that after eating most fruits (sometimes I am ok with bananas) and veggies, my stomach instantly starts burning and my heart starts to pound and I get really anxious as if my body doesnt know what to do with what just enetered it. So I am thinking now that this is what probably was going on when I was born and my body started rejecting it before which caused this weird sensory issue with it causing the gagging. Hoping someone has some exprience with this as well because I would love to be able to enjoy a nice fruit smoothie once in a while haha. Thanks everyone!
    • wellthatsfun
      i know i've been rather cynical and sad about being fully diagnosed in june 2025, but my boyfriend has been consistently showing me the wonderful world that is gluten free cooking and baking. in the past couple of days he's made me a gluten free rice paper-wrapped spanakopita "pastry", plus a wonderful mac and cheese bechamel-ish sauce with gluten free pasta (san remo brand if you're in australia/if you can get your hands on it wherever you are).  those meals are notably gluten free, but mainly he's been making me easy gluten free meals - chili mince with white rice and sour cream, chicken soup with homemade stock from the chicken remains, and roast chickens with rice flour gravy and roast veggies. i'm a bit too thankful and grateful lol. how lucky could i possibly be? and, of course, for those who don't have someone to cook for them, it's quite easy to learn to cook for yourself. i've been making a lot of meals for us too. honestly, cooking is pretty darn fun! knowing basic knife skills and sanitary practices are all you really need. experimenting with spices will help you get on track to creating some really flavourful and yummy dishes. coeliac is a pain, but you can use it to your advantage. healthier eating and having fun in the kitchen are major upsides. much luck to all of you! let's be healthy!
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.