Posted 20 March 2004 - 07:02 PM
I really thought I would be ok to just sit there and order a pop, seeing as I was full. I HATED sitting there and not getting some of the yummy coconut shrimp and pasta stuff and all the good smelling food.
I had fun, got to see people I hadn't seen in a while, but I hate feeling the way I felt tonight. Waiters kept asking why I wasn't eating etc etc. My waiter even bought my pop for me because he felt so bad!!
I really haven't had one of these "poor me" days in a while. I guess I'm due for one. Thanks for listening.
Gluten Free since 12-31-2002!!
Posted 20 March 2004 - 07:27 PM
I get them when I go grocery shopping when I'm hungry. I learned not to, but not until a couple times in the grocery store where I just about cried when I went past the frozen foods aisle, with all those pizzas. Now I've learned to shop when I'm not as hungry, and instead of crying, I stick my tongue out at things I can't eat.
Tonight, however, it's me and a bottle of champagne and a lot of Sex & the City videos and everything is good....(Dinner was cheeseburgers wrapped in corn tortillas...mmm) Gluten-free cookies later? Or ice cream? It's nice every now and then to take a night to have things I want and can have, and be totally decadent about it just for me. Then I don't feel so bad next time I can't have something I want.
Posted 20 March 2004 - 08:10 PM
But on a happier note, I came home to find my (celiac) mommy had sent me super yummy gluten-free macaroons in the mail. Such a nice surprise and made me feel sooo much better.
So best wishes to everyone and hooray for the help this message board gives in keeping our chins up.
Posted 21 March 2004 - 09:42 AM
Maybe next time you and your friends can meet at a place where you will be able to not only enjoy their company but some of the yummy food too!
Hang in there
Posted 21 March 2004 - 09:51 AM
Posted 25 March 2004 - 04:19 PM
Husband misdiagnosed for 27 yrs -
The misdiagnosis was: IBS or colitis
Mis-diagnosed from 1977 to 2003 by various gastros including one of the largest,
most prestigious medical groups in northern NJ which constantly advertises themselves as
being the "best." This GI told him it was "all in his head."
Serious Depressive state ensued
Finally Diagnosed with celiac disease in 2003
Other food sensitivities: almost all fruits, vegetables, spices, eggs, nuts, yeast, fried foods, roughage, soy.
Needs to gain back at least 25 lbs. of the 40 lbs pounds he lost - lost a great amout of body fat and muscle
Developed neuropathy in 2005
Now has lymphadema 2006It is my opinion that his subsequent disorders could have been avoided had he been diagnosed sooner by any of the dozen or so doctors he saw between 1977 to 2003
Posted 26 March 2004 - 09:07 PM
Remember my post about my daughter going to this day camp thing and how cool it was 'cause they were going to make food for her especially? ha. "it's too expensive to make non-gluten food, so we're having subs, she can eat the stuff on it and just leave the bread."
I didn't even bother to explain about the condiments and the meats and etc etc etc.
i'm just sending food with her that she can eat. But good gosh. I thought we'd made some progress.
Posted 26 March 2004 - 09:20 PM
Posted 26 March 2004 - 10:32 PM
It's also important to remember, for all of us, that the food situation gets better and better. In the 1970s my mom knew a woman whose son had celiac disease and she told my mom about trying to make him a birthday cake out of cornmeal. Now when I want cake, I just go to the grocery store and have several mixes to choose from, and so many different gluten-free flours to use to bake from scratch. As more doctors learn what to look for, there'll be more of us eating gluten-free, and more incentive for companies to make more and better foods for us to eat.
There are always going to be hard days, for sure. I have them often enough too. But at least on my birthday I can have a real cake!
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