Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Question About Whey


carleyq

Recommended Posts

carleyq Rookie

i believe that i am sensitive to foods with whey in them, however i just recently discovered that whey is a milk protien.(hey i'm new at this)

would this mean that i should avoid all dairy? i always recognized avoiding dairy as an intollerance to dairy products (which i already have) or as an allerty to caseins.

it would be very helpfull if someone could clear this up for me!


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



lauradawn Explorer

Im not sure if I understood your question totally, but from my understanding if you are allergic to Whey or Casein ( they are both derivitaves of dairy) than you should be avoiding all dairy products. That's my udnerstanding anyway.

As a side note, casein and whey are in a lot of things!!!...Most cookies, crackers, baked things....etc...

gf4life Enthusiast

Here is what I have found, but if it is not correct, then someone please correct me.

There is a difference between lactose (milk sugar) intolerance and casein (milk protein) intolerance. I have never heard of being specifically intolerant to whey, but whey contains both lactose and casein, so an intolerance to either of the others would cause a reaction. Lactose intolerance is often temporary (and is very common with celiac disease in the early healing stages), so if that is your problem then you may not need to give up dairy forever. If it is casein you have a problem with, then you must give up ALL dairy. And Laura is right, read the labels, many foods contain milk derivatives in some form!

But many gluten-free companies recognize that many of us can't have dairy, and offer many gluten free/dairy free items as well. If it says casein free then it is dairy free.

God bless,

Mariann

carleyq Rookie

thanks for the insights...i'm still struggling to figure out exactly what is hurting me and what isn't. whaaat a challange indeed :rolleyes:

Guest Margawitty

Just to share another experience with dairy:

My girlfriend Andrea went on the gluten free diet about 7 months ago. That went well at first and she felt soooo much better than she ever has that we didnt really think much of her being sick sparatically maybe once a week or so.

Eventually we tied the sparatic sickness to dairy, and she has since also cut out soy. Since cutting out all things she has been fine (with the exception of a particularly horrible incident last night that we still aren't sure what the cause was).

My uncle who has an autistic-celiac son has explained to me that the proteins in gluten, caesine and soy are all VERY similar and that in many cases a celiacs body is so damaged from gluten that it looses the ability to distinguish between these proteins. From what I've read, celiacs that stay on the strict gluten-free, cf, sf diet for several years usually gain back the ability to properly digest caesine and soy.

My suggestion would be to try cutting out dairy, and maybe soy too, if you stop feeling sick then there ya go!

:)

Emmy

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - Scott Adams replied to MauraBue's topic in Gluten-Free Foods, Products, Shopping & Medications
      1

      Have Tru Joy Sweets Choco Chews been discontinued??

    2. - Scott Adams replied to chrish42's topic in Doctors
      5

      Doctors and Celiac.com

    3. - trents replied to catnapt's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      5

      how much gluten do I need to eat before blood tests?

    4. - MauraBue posted a topic in Gluten-Free Foods, Products, Shopping & Medications
      1

      Have Tru Joy Sweets Choco Chews been discontinued??

    5. - catnapt replied to catnapt's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      5

      how much gluten do I need to eat before blood tests?

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      133,259
    • Most Online (within 30 mins)
      7,748

    MauraBue
    Newest Member
    MauraBue
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.6k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Upcoming Events

  • Posts

    • Scott Adams
      Some of the Cocomels are gluten and dairy-free: https://cocomels.com/collections/shop-page
    • Scott Adams
      Thank you for the kind words! I keep thinking that things in the medical community are improving, but a shocking number of people still post here who have already discovered gluten is their issue, and their doctors ordered a blood test and/or endoscopy for celiac disease, yet never mentioned that the protocol for such screening requires them to be eating gluten daily for weeks beforehand. Many have already gone gluten-free during their pre-screening period, thus their test results end up false negative, leaving them confused and sometimes untreated. It is sad that so few doctors attended your workshops, but it doesn't surprise me. It seems like the protocols for any type of screening should just pop up on their computer screens whenever any type of medical test is ordered, not just for celiac disease--such basic technological solutions could actually educate those in the medical community over time.
    • trents
      The rate of damage to the villous lining of the SB and the corresponding loss of nutrient absorbing efficiency varies tremendously from celiac to celiac. Yes, probably is dose dependent if, by dose dependent you mean the amount of exposure to gluten. But damage rates and level of sensitivity also seem to depend on the genetic profile. Those with both genes HLA-DQ2 and HLA-DQ8 seem to be more sensitive to minor amounts of gluten exposure than those with just one of those genes and those with only DQ2 seem to be more sensitive than those with only DQ8. But there are probably many factors that influence the damage rate to the villi as well as intensity of reaction to exposure. There is still a lot we don't know. One of the gray areas is in regard to those who are "silent" celiacs, i.e. those who seem to be asymptomatic or whose symptoms are so minor that they don't garner attention. When they get a small exposure (such as happens in cross contamination) and have no symptoms does that equate to no inflammation? We don't necessarily know. The "sensitive" celiac knows without a doubt, however, when they get exposure from cross contamination and the helps them know better what food products to avoid.
    • MauraBue
      Help!  My 5 year old daughter just stopped eating dairy and gluten due to her EoE and Celiac.  Her favorite candy in the world is tootsie rolls.  I did some research, and it sounds like these are the only options for finding something similar, but I can't find them anywhere to actually purchase.  Have they been discontinued??  Does anyone have another recommendation for a gluten-free/DF tootsie roll option?
    • catnapt
      I wonder how long it usually takes and if it is dose dependent as well... or if some ppl have a more pronounced reaction to gluten than others   thanks again for all the great info    
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.