Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Question About Whey


carleyq

Recommended Posts

carleyq Rookie

i believe that i am sensitive to foods with whey in them, however i just recently discovered that whey is a milk protien.(hey i'm new at this)

would this mean that i should avoid all dairy? i always recognized avoiding dairy as an intollerance to dairy products (which i already have) or as an allerty to caseins.

it would be very helpfull if someone could clear this up for me!


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



lauradawn Explorer

Im not sure if I understood your question totally, but from my understanding if you are allergic to Whey or Casein ( they are both derivitaves of dairy) than you should be avoiding all dairy products. That's my udnerstanding anyway.

As a side note, casein and whey are in a lot of things!!!...Most cookies, crackers, baked things....etc...

gf4life Enthusiast

Here is what I have found, but if it is not correct, then someone please correct me.

There is a difference between lactose (milk sugar) intolerance and casein (milk protein) intolerance. I have never heard of being specifically intolerant to whey, but whey contains both lactose and casein, so an intolerance to either of the others would cause a reaction. Lactose intolerance is often temporary (and is very common with celiac disease in the early healing stages), so if that is your problem then you may not need to give up dairy forever. If it is casein you have a problem with, then you must give up ALL dairy. And Laura is right, read the labels, many foods contain milk derivatives in some form!

But many gluten-free companies recognize that many of us can't have dairy, and offer many gluten free/dairy free items as well. If it says casein free then it is dairy free.

God bless,

Mariann

carleyq Rookie

thanks for the insights...i'm still struggling to figure out exactly what is hurting me and what isn't. whaaat a challange indeed :rolleyes:

Guest Margawitty

Just to share another experience with dairy:

My girlfriend Andrea went on the gluten free diet about 7 months ago. That went well at first and she felt soooo much better than she ever has that we didnt really think much of her being sick sparatically maybe once a week or so.

Eventually we tied the sparatic sickness to dairy, and she has since also cut out soy. Since cutting out all things she has been fine (with the exception of a particularly horrible incident last night that we still aren't sure what the cause was).

My uncle who has an autistic-celiac son has explained to me that the proteins in gluten, caesine and soy are all VERY similar and that in many cases a celiacs body is so damaged from gluten that it looses the ability to distinguish between these proteins. From what I've read, celiacs that stay on the strict gluten-free, cf, sf diet for several years usually gain back the ability to properly digest caesine and soy.

My suggestion would be to try cutting out dairy, and maybe soy too, if you stop feeling sick then there ya go!

:)

Emmy

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - kpf replied to kpf's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      9

      ttg iga high (646 mg/dl) other results are normal

    2. - knitty kitty replied to Rejoicephd's topic in Related Issues & Disorders
      4

      Basic metabolic panel results - more flags

    3. - trents replied to kpf's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      9

      ttg iga high (646 mg/dl) other results are normal

    4. - kpf replied to kpf's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      9

      ttg iga high (646 mg/dl) other results are normal


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      132,330
    • Most Online (within 30 mins)
      7,748

    Strider55
    Newest Member
    Strider55
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • kpf
      Abdominal pain and an itchy stomach were the symptoms I asked to see a GI about. Now I’ve learned these other symptoms—that I have but attributed to other issues—could also be related to celiac disease:  fatigue joint pain canker sores numbness or tingling in hands or feet difficulty with coordination anemia headaches neutropenia I never dreamed in a million years she would consider celiac disease. It was a shock to me. It’s definitely not what I went to her for. 
    • knitty kitty
      @Rejoicephd, I'm not a doctor, but I experienced severe thiamine deficiency.  Your symptoms seem really familiar.  Malabsorption is a real thing that happens with Celiac.  A multivitamin is not going to prevent nor correct nutritional deficiencies.    Doctors do not recognize nutritional deficiency symptoms.  Gastrointestinal Beriberi is not recognized often.  Caused by thiamine deficiency, high dose thiamine supplements or IV administration with other vitamins, minerals and glucose under doctor's care is needed.   Thiamine deficiency is found in anemia.  Thiamine deficiency in the kidneys can result in electrolyte imbalances and cloudy urine.  Thiamine deficiency can cause high blood sugar which can cause cloudy urine.  Dehydration can cause cloudy urine.   I'm linking some PubMed articles.  You see if your symptoms match.  Discuss the possibility of Gastrointestinal Beriberi with one of your specialists soon!  Just to rule it out.  I'm very concerned.   I'm linking some PubMed articles.  You see if your symptoms match.   Thiamine, gastrointestinal beriberi and acetylcholine signaling https://pmc.ncbi.nlm.nih.gov/articles/PMC12014454/#ref3 From Section 3: "In conclusion, TD limited to the gastrointestinal system may be an overlooked and underdiagnosed cause of the increasingly common gastrointestinal disorders encountered in modern medical settings. Left unattended, it may progress to wet or dry beriberi, most often observed as Wernicke encephalopathy.". . And... Refeeding Syndrome https://www.ncbi.nlm.nih.gov/books/NBK564513/
    • trents
      What are your symptoms? What has brought you to the point where you sought celiac disease testing?
    • kpf
      Thanks so much. This is what I thought but really wanted a second opinion. I appreciate this. 
    • xxnonamexx
      I have heard about numerous food sensitivity tests blood and the prick and how nothing is very reliable I think trial and error probably best bet.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.