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Hmm.


Macmuireadhaigh

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Macmuireadhaigh Enthusiast

Althought I don't know what's wrong with me yet (seen a doctor, ordered tests, insurance lapsed and now I'm waiting for re-enrollment before I can reschedule for tests), lately I've been eating more breads, pastas, and various things with gluten in it, and I've been noticing that I'm starting to taste a little metal again (like before) and my joints are starting to hurt again. For a while I cut myself off of a lot of gluten foods because I realized my joints stopped hurting and I didn't taste metal, but I got curious and wanted to start eating regular foods again and now this.

Are there definitive differences in symptoms between a celiac and a gluten-intolerant person? Would I know one from another by specific symptoms?


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mushroom Proficient

Are there definitive differences in symptoms between a celiac and a gluten-intolerant person? Would I know one from another by specific symptoms?

I wouldn't think so. That's why they run all the tests in the first instance. Really, the only difference between the two up to this point has been the biopsy showing damage to the small intestine which has always been used as the hallmark of celiac disease.. This may or may not change as further research is done into non-celiac gluten intolerance.

Of course, there is also dermatitis herpetiformis, which is also classified as celiac disease, and many doctors also diagnose celiac now based on neurological symptoms, but for gastrointestinal celiac disease there really is no difference in the presenting symptoms.

GFinDC Veteran

Right, not difference, but the range of symptoms is very wide. Some people have no symptoms at all, and they call that "silent celiac". Others have only nuerolgical symptoms, or joint pain, or some combo of those and other symptoms etc. Endless possibilities of symptom combinations.

Non-celiac wheat sensitivity article

http://www.celiac.co...ists/Page1.html

Relevant markers to distinguish wheat sensitivity from IBS include Anemia, weight loss and history of food allergy in infancy. Wheat sensitive patients also tended to have more coexistent atopic diseases.

From this study, we know that non-celiac wheat sensitivity exists. Further studies will explore the distinction between the celiac-like and allergy-like types of the condition.

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    • par18
      Thanks for the reply. 
    • Scott Adams
      What you’re describing is actually very common, and unfortunately the timing of the biopsy likely explains the confusion. Yes, it is absolutely possible for the small intestine to heal enough in three months on a strict gluten-free diet to produce a normal or near-normal biopsy, especially when damage was mild to begin with. In contrast, celiac antibodies can stay elevated for many months or even years after gluten removal, so persistently high antibody levels alongside the celiac genes and clear nutrient deficiencies strongly point to celiac disease, even if you don’t feel symptoms. Many people with celiac are asymptomatic but still develop iron and vitamin deficiencies and silent intestinal damage. The lack of immediate symptoms makes it harder emotionally, but it doesn’t mean gluten isn’t harming you. Most specialists would consider this a case of celiac disease with a false-negative biopsy due to early healing rather than “something else,” and staying consistently gluten-free is what protects you long-term—even when your body doesn’t protest right away.
    • Scott Adams
      Yes, I meant if you had celiac disease but went gluten-free before screening, your results would end up false-negative. As @trents mentioned, this can also happen when a total IGA test isn't done.
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