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Muscle Tension A Frequent Celiac Problem Or Rare?


Liquidceliac

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Liquidceliac Rookie

I have one more question and I promise ill stop posting until I go to the doctors again. My main symptom apart from digestive problems is muscle tension/ pain.I get frequent back of the neck tension and aches, upper back and shoulder tension, sometimes ill also get muscle pain like a sun burn but under neath the skin.And lastly like a lower back ache , but minor,and muscle weakness if I eat the wrong stuff like McDonald mcmuffins ,donuts etc but usually the day after and not right away.Since my digestion is either sloth slow or in overdrive. Just wondering because I have read recent posts but I don't see a lot of muscle problems ??


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alesusy Explorer

Hello

I don't know if this is valid for everybody but yes, in my personal experience celiac disease has a close relation to muscle tension although I don't know why. In my worse month pre-diagnosis, last November, I had a headache every single day, generally around the left eye or the left temple, sometimes just a distant thump thump sometimes strong pains. I had read celiac disease and headaches were related but was very worried. Then I went to my dentist and she touched my jaw and did I jump on that chair... To make a long story short: I have been suffering from tension headaches from the extreme tension in my jaw, but I felt the ache around the eye and in the neck. I have been clenching my jaws at night for years and I do have a bite but it never was THAT bad. It's been much better since going gluten free and I believe it might get better still in time (up to a few years ago I did not clench my jaws at all..) I have read several topic with people saying they clenched or ground their teeth at night and the problem seemed to get better going gluten free.

mushroom Proficient

My sister and I (sister also celiac) had a terrible teeth-clenching problem before gluten free. I had also extreme muscle tension throughout my body, which did not relax with massage therapy. I took a relaxation class, and the more I tried to relax a part of the body, the greater the tension became :rolleyes:

I still have some problems with my legs and shoulders, but no longer clench my teeth.

Liquidceliac Rookie

Great info for me,thank you very much for the responses this gives me hope

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    • cristiana
      Hi @Charlie1946 I am so sorry to hear you are suffering with this problem.   Just a few other thoughts.  I had debilitating anxiety prior to my diagnosis.  I was never admitted to a hospital but thankfully had a lot of support from friends and family, and found a couple of publications contained really helpful advice:  for depression, The Depression Cure: The Six-Step Programme to Beat Depression Without Drugs by Dr Steve Llardi, and for debilitating anxiety, At Last A Life by Paul David.  Both can be ordered online, there is also a website for the latter.  If you are deficient in or have low iron or B12 this can cause or worsen mental health issues.  I am sure my own issues were caused by long-term deficiencies.   If you can get your blood tested, it would be useful.  In the case of iron, make sure you only supplement if you have a deficiency, and levels can be monitored, as too much iron can be dangerous. If you have burning mouth issues, very bad TMJ or neuralgia,  I understand the pain can be managed by the use of a certain class of medication like amitriptyline, which is also used to treat depression.  But there again, it is possible with the correct diet and supplementation these issues might improve? I do hope that you find relief soon. Cristiana
    • trents
      @Charlie1946, as an alternative to milk-based protein shakes, let me suggest whey protein. Whey and casein are the two main proteins found in milk but whey doesn't cause issues like casein can for celiacs. Concerning your question about celiac safe mental health facilities, unfortunately, healthcare facilities in general do not have good reputations for being celiac safe. Most celiacs find that they need to depend on family members to advocate for them diligently or bring in food from the outside. Training of staff is inconsistent and there is the issue of turnover and also cross contamination.
    • Charlie1946
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    • Charlie1946
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