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Toes Burn At Night


porkchop60c

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porkchop60c Apprentice

Every once in a while I get woken up by a feeling of burning in my right toes. It only lasts for 30-60 minutes. I thought maybe it is from eating a food that I may be sensitive to but not sure why I get that. Does anyone get this and could it be from getting some gluten by accident?


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cavernio Enthusiast

I have what I and doctors have assumed (never been tested) to be peripheral neuropathy. I have no reason to believe that's not it, plus I took some medication that's supposed to help nerve pain, and it did help a lot. B vitamin deficiency or overdose can cause it, and I figured that's why I have it. However, if that's the case, then I'd expect it to have gotten better, but it hasn't. It was better for a little bit, but then got as bad as it was when I found out I had celiac disease.

Other things cause peripheral neuropathy too, like diabetes or (I think) any other problem that makes your blood thick.

Usually I get tingling, not really burning, that's pretty much constant. But then when it's bad I'll get almost shooting/stabbing that comes and goes in, the vast majority of the time, spurts that last less than a minute. (Thankfully)

I think it might be caused by gluten ingestion but it's too hard to say, especially since once you get nerve damage, there's no saying it will ever get better. Nerves aren't like the rest of our body that seems to automatically heal itself once damged. I may be getting CC from eating at relatives homes or simply eating too many products that are labelled gluten free but in fact have trace amounts of gluten...I'm still eating a ton of food.

You may also simply be experiencing some sort of physical nerve pinching. You may notice when you wake up and the burning's there, that you tend to be sleeping one way but other mornings when it doesn't burn, you're sleeping differently. Carpal tunnel is far from the only place where physical pressure causes nerve damage; I've got issues in both ankles, my elbows, and my shoulders. My husband, if he sleeps on his back, can get burning in his thigh from a pressure point on his back, despite no other nerve problems. If I'm not careful how I sleep, I'll wake up multiple times at night with extremities totally numb.

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    • trents
      You might consider asking for a referral to a RD (Registered Dietician) to help with food choices and planning a diet. Even apart from any gluten issues, you will likely find there are some foods you need to avoid because of the shorter bowel but you may also find that your system may make adjustments over time and that symptoms may improve.
    • Ello
      I wish Dr’s would have these discussions with their patients. So frustrating but will continue to do research. Absolutely love this website. I will post any updates on my testing and results.  Thank you
    • trents
      Losing 12" of your small bowel is going to present challenges for you in nutritional uptake because you are losing a significant amount of nutritional absorption surface area. You will need to focus on consuming foods that are nutritionally dense and also probably look at some good supplements. If indeed you are having issues with gluten you will need to educate yourself as to how gluten is hidden in the food supply. There's more to it than just avoiding the major sources of gluten like bread and pasta. It is hidden in so many things you would never expect to find it in like canned tomato soup and soy sauce just to name a few. It can be in pills and medications.  Also, your "yellow diarrhea, constipation and bloating" though these are classic signs of a gluten disorder, could also be related to the post surgical shorter length of your small bowel causing incomplete processing/digestion of food.
    • Ello
      Yes this information helps. I will continue to be pro active with this issues I am having. More testing to be done. Thank you so much for your response. 
    • trents
      There are two gluten-related disorders that share many of the same symptoms but differ in nature from each other. One is known as celiac disease or "gluten intolerance". By nature, it is an autoimmune disorder, meaning the ingestion of gluten triggers the body to attack it's own tissues, specifically the lining of the small bowel. This attack causes inflammation and produces antibodies that can be detected in the blood by specific tests like the TTG-IGA test you had. Over time, if gluten is not withheld, this inflammation can cause severe damage to the lining of the small bowel and even result in nutrient deficiency related health issues since the small bowel lining is organ where all the nutrition found in our food is absorbed.  The other is NCGS (Non Celiac Gluten Sensitivity or just "gluten sensitivity") which we know less about and are unsure of the exact mechanism of action. It is not an autoimmune disorder and unlike celiac disease it does not damage the lining of the small bowel, though, like celiac disease, it can cause GI distress and it can also do other kinds of damage to the body. It is thought to be more common than celiac disease. Currently, we cannot test for NCGS. Celiac disease must first be ruled out to arrive at a diagnosis of NCGS. Both disorders require elimination of gluten from the diet.  Either of these disorders can find their onset at any stage of life. We know that celiac disease has a genetic component but the genes are inactive until awakened by some stress event. About 40% of the general population has the genetic potential to develop celiac disease but only about 1% develop active celiac disease. The incidence of NCGS is thought to be considerably higher. I hope this helps.
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