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Toes Burn At Night


porkchop60c

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porkchop60c Apprentice

Every once in a while I get woken up by a feeling of burning in my right toes. It only lasts for 30-60 minutes. I thought maybe it is from eating a food that I may be sensitive to but not sure why I get that. Does anyone get this and could it be from getting some gluten by accident?


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cavernio Enthusiast

I have what I and doctors have assumed (never been tested) to be peripheral neuropathy. I have no reason to believe that's not it, plus I took some medication that's supposed to help nerve pain, and it did help a lot. B vitamin deficiency or overdose can cause it, and I figured that's why I have it. However, if that's the case, then I'd expect it to have gotten better, but it hasn't. It was better for a little bit, but then got as bad as it was when I found out I had celiac disease.

Other things cause peripheral neuropathy too, like diabetes or (I think) any other problem that makes your blood thick.

Usually I get tingling, not really burning, that's pretty much constant. But then when it's bad I'll get almost shooting/stabbing that comes and goes in, the vast majority of the time, spurts that last less than a minute. (Thankfully)

I think it might be caused by gluten ingestion but it's too hard to say, especially since once you get nerve damage, there's no saying it will ever get better. Nerves aren't like the rest of our body that seems to automatically heal itself once damged. I may be getting CC from eating at relatives homes or simply eating too many products that are labelled gluten free but in fact have trace amounts of gluten...I'm still eating a ton of food.

You may also simply be experiencing some sort of physical nerve pinching. You may notice when you wake up and the burning's there, that you tend to be sleeping one way but other mornings when it doesn't burn, you're sleeping differently. Carpal tunnel is far from the only place where physical pressure causes nerve damage; I've got issues in both ankles, my elbows, and my shoulders. My husband, if he sleeps on his back, can get burning in his thigh from a pressure point on his back, despite no other nerve problems. If I'm not careful how I sleep, I'll wake up multiple times at night with extremities totally numb.

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      In the U.S., most regular wheat breads are required to be enriched with certain B-vitamins and iron, but gluten-free breads are not required to be. Since many gluten-free products are not enriched, we usually encourage people with celiac disease to consider a multivitamin.  In the early 1900s, refined white flour replaced whole grains, and people began developing serious vitamin-deficiency diseases: Beriberi → caused by a lack of thiamin (vitamin B1) Pellagra → caused by a lack of niacin (vitamin B3) Anemia → linked to low iron and lack of folate By the 1930s–40s, these problems were common in the U.S., especially in poorer regions. Public-health officials responded by requiring wheat flour and the breads made from it to be “enriched” with thiamin, riboflavin, niacin, and iron. Folic acid was added later (1998) to prevent neural-tube birth defects. Why gluten-free bread isn’t required to be enriched? The U.S. enrichment standards were written specifically for wheat flour. Gluten-free breads use rice, tapioca, corn, sorghum, etc.—so they fall outside that rule—but they probably should be for the same reason wheat products are.
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      Keep in mind that there are drawbacks to a formal diagnosis, for example more expensive life and private health insurance, as well as possibly needing to disclose it on job applications. Normally I am in favor of the formal diagnosis process, but if you've already figured out that you can't tolerate gluten and will likely stay gluten-free anyway, I wanted to at least mention the possible negative sides of having a formal diagnosis. While I understand wanting a formal diagnosis, it sounds like she will likely remain gluten-free either way, even if she should test negative for celiac disease (Approximately 10x more people have non-celiac gluten sensitivity than have celiac disease, but there isn’t yet a test for NCGS. If her symptoms go away on a gluten-free diet, it would likely signal NCGS).        
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