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What is Celiac Disease?
Celiac disease (aka coeliac disease) is a genetic autoimmune disorder where ingesting gluten (a protein in wheat, barley, and rye) triggers an immune response that damages the small intestine's lining. This damage leads to inflammation and atrophy of the villi, tiny finger-like projections in the intestine responsible for nutrient absorption. As a result, individuals with celiac disease may experience symptoms like diarrhea, bloating, fatigue, and malnutrition. Over time, untreated celiac disease can lead to more severe health problems, including anemia, osteoporosis, weight loss, and increased risk of certain cancers. A strict gluten-free diet is the only effective treatment. Celiac disease is an autoimmune disease, not a wheat allergy. It's also different from non-celiac gluten sensitivity, gluten intolerance, or sensitivity to gluten.
My Long Journey to Celiac Disease Diagnosis
Like many people, I spent a lot of years, a lot of dollars, and endured many tests and misdiagnoses, before doctors finally discovered that I had celiac disease (also known as coeliac disease or celiac sprue), and needed to eliminate gluten and all gluten-containing ingredients from my diet. Gluten is a protein found in the three main gluten-containing grains: wheat, rye, and barley; and is often hidden in processed foods, and things like soy sauce and beer...[READ MORE about my long and winding road to a celiac disease diagnosis and recovery.]
Gluten-Free Diet
To treat my celiac disease I had to go on a gluten-free diet for life. That meant learning to read food labels to avoid gluten ingredients, and eating a diet of mostly naturally gluten-free foods like meats, fruits, nuts, vegetables, and packaged foods only if they are certified gluten-free or labeled gluten-free, for example gluten-free breads made using gluten-free grains.
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Recent Activity
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- Hummer01 replied to Hummer01's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms4
Diagnosis confusion
Oh yes, I figured 50g of bread would contain way less than that in gluten. I just meant to say that I tried to make my 2 daily slices count instead of 2 tiny Wonder bread slices haha. Thanks for the insight trents, I appreciate someone validating that what I'm going through isn't all in my head or something! This process has been so frustrating and... -
- Scott Adams replied to CJF's topic in Gluten-Free Foods, Products, Shopping & Medications4
Gluten free wheat flour????
Thanks for sharing that. For what it's worth, a majority of celiacs can eat such products without villi damage--which has been documented in many studies that you can read here: https://www.celiac.com/celiac-disease/miscellaneous-information-on-celiac-disease/gluten-free-diet-celiac-disease-amp-codex-alimentarius-wheat-starch/ But super sensitive... -
- knitty kitty replied to Alibu's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms21
Waiting on biopsy after positive bloodwork, but also not really believing this is real
@Alibu, It's the thiamine (in the forms TTFD or Benfotiamine) that can get into the brain easily and improve migraines. The magnesium Threonate won't help by itself. Taking the thiamine regularly will keep them away. Sounds to me like your doctor is looking for the Marsh 3C or 4 Stage (total villus damage) to make his diagnosis. Those studies... -
- trents replied to Hummer01's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms4
Diagnosis confusion
A slice of bread weighing 50g isn't the same as 50g of gluten. Bread dough contains other components besides gluten. At any rate, at the end of the day, the antidote for celiac disease and for NCGS is the same, life-long avoidance of gluten. My hunch is that you do have celiac disease but are in the early stages of it. Some experts in the field believe... -
- Hummer01 replied to Hummer01's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms4
Diagnosis confusion
Hi trents, thanks for the response. I started the challenge the 2nd week of April with 2 slices of sandwich bread per day (tried to get a larger loaf size, each slice weighed 50g) and continued that through April/May/June up until my scope this past week. On weekends I had extra gluten foods like noodles, cookies, etc. But couldn't tolerate much more...
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