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What is Celiac Disease?
Celiac disease (aka coeliac disease) is a genetic autoimmune disorder where ingesting gluten (a protein in wheat, barley, and rye) triggers an immune response that damages the small intestine's lining. This damage leads to inflammation and atrophy of the villi, tiny finger-like projections in the intestine responsible for nutrient absorption. As a result, individuals with celiac disease may experience symptoms like diarrhea, bloating, fatigue, and malnutrition. Over time, untreated celiac disease can lead to more severe health problems, including anemia, osteoporosis, weight loss, and increased risk of certain cancers. A strict gluten-free diet is the only effective treatment. Celiac disease is an autoimmune disease, not a wheat allergy. It's also different from non-celiac gluten sensitivity, gluten intolerance, or sensitivity to gluten.
My Long Journey to Celiac Disease Diagnosis
Like many people, I spent a lot of years, a lot of dollars, and endured many tests and misdiagnoses, before doctors finally discovered that I had celiac disease (also known as coeliac disease or celiac sprue), and needed to eliminate gluten and all gluten-containing ingredients from my diet. Gluten is a protein found in the three main gluten-containing grains: wheat, rye, and barley; and is often hidden in processed foods, and things like soy sauce and beer...[READ MORE about my long and winding road to a celiac disease diagnosis and recovery.]
Gluten-Free Diet
To treat my celiac disease I had to go on a gluten-free diet for life. That meant learning to read food labels to avoid gluten ingredients, and eating a diet of mostly naturally gluten-free foods like meats, fruits, nuts, vegetables, and packaged foods only if they are certified gluten-free or labeled gluten-free, for example gluten-free breads made using gluten-free grains.
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Recent Activity
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- Scott Adams replied to RondaM's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms2
Don’t understand lab results..Help please
Approximately 10x more people have non-celiac gluten sensitivity than have celiac disease, but there isn’t yet a test for NCGS. If your symptoms go away on a gluten-free diet it would likely signal NCGS. -
- Scott Adams replied to Dave-C's topic in Related Issues & Disorders9
Seeking Advice about Fecal Transplant to Treat Celiac Disease
Since you keep linking to the same site that has a focus on the microbiome, it's clear that you have a strong focus on the topic, but here it usually comes up in relation to untreated celiac disease, thus I've shared the research summaries that we've done over the years on how the two are related. Like many disorders, including celiac disease, it's clear... -
- trents replied to RondaM's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms2
Don’t understand lab results..Help please
Welcome to the forum, @RondaM! These two tests are celiac antibody tests and they both look to be negative: Endomysial Antibody IgA: Negative t-Transglutaminase (tTG): <2 We commonly refer to the t-Transglutaminase (tTG) as tTG-IGA. This one is what we commonly call "total IGA" and is on the high side: Immunoglobulin... -
- MaximilianKohler replied to Dave-C's topic in Related Issues & Disorders9
Seeking Advice about Fecal Transplant to Treat Celiac Disease
What do you think of the contrary information on SIBO I shared which argues that the term itself is misleading, erroneous, and even harmful? There are current patient-led efforts to get FMT approved by the FDA. Anyone interested in FMT should get involved. Do you have a citation for this? The wiki I shared in my previous comment... -
- RondaM posted a topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms2
Don’t understand lab results..Help please
Recent Labcorp lab results show these results. Endomysial Antibody IgA: Negative t-Transglutaminase (tTG): <2 Range for tTG lab is : negative= 0-3, weak positive =4-10 , Positive >10 Immunoglobulin A, Qn Serum : 417. H lab range 87-352 mg/dl What is this telling me? Any recommendations?
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