Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

  • Record is Archived

    This article is now archived and is closed to further replies.

    Scott Adams
    Scott Adams

    By Scott Adams •

    Call to Unite All Celiac Support Groups in the United States of America

    Reviewed and edited by a celiac disease expert.

    The University Of Maryland Center For Celiac Research (CFCR) was established as an impartial, non-profit organization to improve the lifestyle of Celiacs through scientific research. As many of you know, we are presently conducting a nationwide six center serological study to determine the prevalence of Celiac Disease in the United States.

    Celiac.com Sponsor (A12):
    Scott Adams’ call for "... a conference among the different Celiac organizations to reach an agreement on what is safe and what is not?" sound like a reasonable approach to at least beginning the discussions essential to resolving this very difficult problem. Ann Whelan, in her May-June issue of "Gluten-free Living" enclosed an insert entitled "Time to Act...Unite Now". Maybe this single issue is a good place to start.

    We at the CFCR would like to offer our impartial auspices in putting together such a "Celiac Food Forum". Inviting food scientists, dieticians, nutritionists, support group leaders and interested Celiacs from the United States, Canada and other countries to discuss in open forum these very important issues.

    Please let us know if you think we may be of service by responding to Bob Levy, CFCR Volunteer, via his e-mail address "Open Original Shared Link" or by calling him at 410-486-0292.

    Dr. Alessio Fasano and Dr. Karoly Horvath, Co-Medical Directors - University Of Maryland Center For Celiac Research.


     Share
    Go to articles

    User Feedback

    Recommended Comments

    There are no comments to display.



    Guest
    This is now closed for further comments

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • About Me

    Scott Adams

    Scott Adams was diagnosed with celiac disease in 1994, and, due to the nearly total lack of information available at that time, was forced to become an expert on the disease in order to recover. In 1995 he launched the site that later became Celiac.com to help as many people as possible with celiac disease get diagnosed so they can begin to live happy, healthy gluten-free lives.  He is co-author of the book Cereal Killers, and founder and publisher of the (formerly paper) newsletter Journal of Gluten Sensitivity. In 1998 he founded The Gluten-Free Mall which he sold in 2014. Celiac.com does not sell any products, and is 100% advertiser supported.

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):



    Celiac.com Sponsors (A17-M):



  • Related Articles

    Scott Adams
    Nutritionist Melissa Diane Smith, author of Going Against the Grain, has written a new book, Gluten Free Throughout the Year: A Two-Year, Month-to-Month Guide for Healthy Eating. I’m happy that today we at Celiac.com have the exclusive first interview with Melissa about her book.
    Scott: Hi Melissa, thank you for stopping by to answer my questions about your new book. I think this is a book that will interest many Celiac.com readers and we’re delighted to have you here.
    Melissa: I am delighted to be here. I really admire the work you do on this site and I’m thrilled to have Celiac.com be the first place to begin spreading the word about my new book.
    Q: Let’s start with this question: What was your primary goal in writing Gluten Free Throughout the Year?
    A: My primary goal wa...
    Jefferson Adams
    Celiac.com 11/04/2011 - For many folks, fall means changing leaves, crisp weather, football, and beer. Or just crisp weather and beer. Fortunately, for those with gluten sensitivities, the explosion of diagnoses for celiac disease and gluten-intolerance has given rise to an explosion of gluten-free products, including a number of gluten-free beers.
    "People are becoming more knowledgeable of the symptoms in which gluten can cause on one's health," said New Planet Beer Marketing Director Danielle Quatrochi, "so people are being diagnosed sooner and more often than before. There's also been a lot of press around the benefits of a gluten-free diet, opening the door for companies to add gluten-free options to their product mix."
    Gluten-free beers have often lacked depth compared to their...
    Miranda Jade
    Raise Awareness for Celiac Disease
    Celiac.com 04/13/2012 - There is a disease that affects one in every hundred Americans and causes physical and mental agony yet once it’s diagnosed, it can be easily treated with a change in diet and without the administration of drugs. You maybe haven’t even heard of it. You would think that the sufferers of this disease would be rather lucky to have such an easy treatment option available to them, right? As a matter of fact, it turns out that this disease—celiac, or coeliac, disease—may be easy to treat, but it’s very difficult for doctors to diagnose, and for the very reason that doctors haven’t heard of it either. It’s estimated that three out of every hundred of the people with celiac disease has been diagnosed. Only three out of every hundred!
    So why is it that most celiacs suffe...
    Miranda Jade
    Introducing Gluten to Your Infant
    This article originally appeared in the Autumn 2012 edition of Celiac.com's Journal of Gluten-Sensitivity.
    Celiac.com 11/25/2014 - As a celiac patient or relative of a celiac patient, many have come to understand the mental and physical symptoms of celiac disease directly or indirectly. Now the time has come for your infant to delve into the world of eating solid foods, most of which happen to contain gluten, especially the first baby cereals. If you’re like most mothers, it’s understandable that you would be nervous. In my gluten-free advocacy work and as a child of a celiac mother, I understand these concerns and am pleased to inform others of the fruits of celiac disease research regarding infants at risk for the disease, introducing gluten, and breastfeeding. These studies indi...

  • Recent Activity

    1. knitty kitty
      - knitty kitty replied to thejayland10's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      5

      TTG IgA and IGA elevated mildy

      Hi, @thejayland10, Do you still consume dairy? Dairy can cause increased tTg IgA levels in some people with celiac disease who react to casein, the protein in dairy, just like to gluten. You might try cutting out the processed gluten free foods. Try a whole foods, no carbohydrate Paleo diet instead, like the AIP diet (the Autoimmune Protocol...
    2. trents
      - trents replied to boy-wonder's topic in Introduce Yourself / Share Stuff
      1

      New to gluten free living, in5ro and small question

      First, welcome to the forum, @boy-wonder! Second, a little clarification in terminology is in order. Granted, inconsistency is rampant when it comes to the terminology associated with gluten disorders, but it has more or less become settled in this fashion: "Gluten intolerance" is a general term that car refer to either celiac disease or NCGS (Non Celiac...
    3. AllyJR
      - AllyJR posted a topic in Gluten-Free Foods, Products, Shopping & Medications
      0

      Gluten free parakeet food

      Has anyone found a gluten free parakeet seed mix? I can't find a single one! My doctor wants me to make sure all pet food in the house is gluten free but I'm not sure if that's even possible with parakeets. We love our birds so much! I'm wondering if anyone has ever made their own bird seed mix if gluten free ones are not available.
    4. boy-wonder
      - boy-wonder posted a topic in Introduce Yourself / Share Stuff
      1

      New to gluten free living, in5ro and small question

      Hi, new member. About me, I had been suffering with weight gain, bloating and irregular and extreme bowel habits for a year or so. For example, I went on holiday in 2023, then again I 2024 at the same time of year and every shirt I wore in 2023 didn't fit anymore, couldn't even do the buttons up. Being in my mid 50s I put it down to age and middle...
    5. ValerieC
      - ValerieC posted a topic in Traveling with Celiac Disease
      0

      Guide to colleges for celiac disease

      Does anybody know of a guide that ranks reevaluates universities and colleges in terms of their accommodation of celiac disease or food allergies? Thanks in advance for any leads! Valerie
  • Celiac.com Sponsor (A19):


  • Member Statistics

    • Total Members
      130,196
    • Most Online (within 30 mins)
      7,748
    Paulette Carter
    Newest Member
    Paulette Carter
    Joined
  • Celiac.com Sponsor (A20):

  • Forum Statistics

    • Total Topics
      121.3k
    • Total Posts
      1m
  • Celiac.com Sponsor (A22):



  • Celiac.com Sponsor (A21):


  • Popular Now

    • thejayland10
      5
      TTG IgA and IGA elevated mildy

      By thejayland10
      Started

    • jeriM
      6
      Can Celiac flares affect my eyes?

      By jeriM
      Started

  • Popular Articles

    • Scott Adams
      60
      The Gluten-Free Diet 101 - A Beginner's Guide to Going Gluten-Free

      By Scott Adams

    • Scott Adams
      78
      Forbidden Gluten Food List (Unsafe Ingredients)

      By Scott Adams

    • Scott Adams
      66
      Safe Gluten-Free Food List (Safe Ingredients)

      By Scott Adams

    • Scott Adams
      144
      What Are the Symptoms of Celiac Disease?

      By Scott Adams

    • Scott Adams
      72
      Gluten-Free Alcoholic Beverages

      By Scott Adams

  • Upcoming Events

×
×
  • Create New...