New Guidelines Urged for Diagnosis of Non-Celiac Gluten Sensitivity

When the nutritionist put me on an elimination diet to test for allergies, I had to go without questionable items for three weeks to ensure that my system had cleared out potential allergens. I have read that reactions to gluten can be delayed for up to three days, so one-week challenges seem to be a poorly-designed test that are destined to muddy the water.

I had a DNA test done after searching for answers for 37 years. It came back that I have 2 genes which predispose to gluten sensitivity. (Subsequently both my mother & sister came back with celiac genes....) I cut ALL gluten out of my diet, cosmetics, etc. and shortly thereafter I quit throwing up after eating. When I am cross contaminated during eating out I turn into The Exorcist and it's not pretty among other things. The THOUGHT of having to do a 'gluten challenge' completely turns me off and repulses me. I avoid gluten every chance I get - and these JOKERS want me to ingest it just to prove to them that I react to it??? I DON'T THINK SO! The DNA test gave me ALL THE INFORMATION I need! It's either in the genes or not... I get so ill from gluten exposure the thought of what they are suggesting is CRAZY!

I agree with the other comment. While this may work for fast respondents to a gluten free diet (who get sick immediately upon eating gluten), some people are not going to see a significant resolution in their symptoms for weeks or months. This seems to be true of some celiacs too so why hold NCGS suffers to such a high standard?

I agree with Gene Ann. A one week wash out is a critical flaw in this protocol. I know I still have symptoms for more than a week from being accidentally cross contaminated once. Eating gluten every day for a week? It would take closer to a month for my body to recover. How do they expect accurate results? Humans are not test tubes. You can't just wash them out and reuse them.

I wonder about the the testing method as well. I am allergic to wheat, and sensitive to gluten. I did a gene test that did not prove with the current gene defining of celiac, however if I told you everything that I have- symptom wise it would be celiac. I think we are a long way from learning the truth. Testing is often funded in one direction to what the outcome is expected. I think that celiac should be one illness that should be based on symptom and outcome on a GFD.