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A List of Local Celiac Disease Support Groups/Chapters

Page 2 - USA Support Groups N-Z

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Celiac disease support groups in the United States - Includes national organization affiliation (if any).

Nebraska

Grand Island - Support Group
Contact: Keith McTavish
Central Nebraska Celiacs
P.O. Box 411
Wood River, NE 68883
Tel: (308) 583-2949.

Grand Island - Resource:
Contact: Diane D. Epp
Box 595
Henderson, NE 68371
Tel: (402) 723-4759

Lincoln - Support Group
Contact 1: Beckee Moreland
Star City Area Chapter (CSA)
1639 Sunset Rd.
Lincoln, Ne 68506
Tel: (402) 441-9621
E-mail: beckland@inebraska.com

Omaha - Celiac Sprue Association/USA
Contact: Mary A. Schluckebier
PO Box 31700
Omaha, NE 68131-0700
Tel: (402) 558-0600
E-mail: csaceliacs@csaceliacs.org

Omaha - Support Group
Contact 1: Lynn Samuel
Midlands Chapter (CSA)
6303 Kentucky Road
Papillion, NE 68133
Tel: (402) 339-1346
Contact 2: Rebecca Warren
Tel: (402) 235-3576

Seward - Resource:
Contact: Mary Schluckebier
1616 Plainview Avenue
Seward, NE 68434
Tel: (402) 643-4340


Nevada

Las Vegas - Support Group
Contact: Jennifer Sullivan
Tel: (702) 985-7664

Las Vegas - Resource:
Contact: Joanne B. Mathews
270 W. Basic Road
Henderson, NV 89015

Las Vegas - Resource:
Contact: Catherine Hammelrath
3355 Rolan Court
Las Vegas, NV 89121
Tel: (702) 733-7633
E-mail: vegascat53@cox.net

Reno Support Group
Contact: Kerry Seymour, MS, RD, CDE
Reno Celiacs & Nutrition Resources
475 Hill Street, Suite C
Reno, Nevada 89501
Tel: (775) 329-8811


New Hampshire

Laconia - Resource:
Contact: Ann Marie Shumway
2541 Old Parade Rd.
Laconia, NH 03246
Tel: (603) 528-1911

Nashua area - Support Group
Contact 1: John Waksmonski
Tel: (603) 437-1702
Contact 2: Christine Muir
E-mail: themuirs@charter.net

Portsmouth - Support Group
Contact: Dan Davis
6 Oakridge Rd.
Kensington, NH 03833
Tel: (603) 778-1938
E-mail: djdavis107@comcast.net


New Jersey

Brick - Resource:
Contact: Gary Powers
284 White Oak Court
Brick, NJ 08724
Tel: (732) 840-3718

Cherry Hill - Resource:
Contact: Fran Twersky
107 East Burgess Road
Marlton, NJ 08053-1202
Tel: (609) 983-3362

Hackettstown - Resource:
Contact: Mrs. Merle Morse
P.O. Box 148
Hackettstown, NJ 07840
Tel: (908) 852-7311

Long Branch - Support Group
Specialized Pediatric Celiac Group
Specialized Ped. Ambulatory Center
307 3rd Avenue
Long Branch, NJ 07740
Tel: (201) 870-5216

Maple Shade-Resource
Cindy Fisher
377 Crawford Ave.
Maple Shade, NJ 08052
Tel: (856) 779-1562
E-mail : hfishernj@aol.com

New Brunswick - Support Group
Contact 1: Diane Eve Paley
Celiac/DH Support Group and Cel-Kids Network CSA/USA Inc. #58
22 Island Drive
Old Bridge, NJ 08857-2518
Tel: (908) 679-6566
E-mail: DEPaley@AOL.COM
Contact 2: Alex Schwedack
5-c Twin Rivers Dr.
East Windsor, NJ 08520
Tel: (609) 443-6623
Contact 3: Rosanna Beck
Tel: (908) 225-7594
E-mail: B6724@aol.com

Old Bridge - Support Group
Contact: Diane Eve Paley
Central Jersey Celiac/DH Support Group, CSA/USA
22 Island Dr.
Old Bridge, NJ 08857
Tel: (732) 679-6566
E-mail: DEPaley@aol.com.

Paramus - Support Group
Contact: Lauri Schlussel
American Celiac Society Bergen County
11 Marz Road
Westwood, NJ 07675-8217
Tel: (201) 573-0397

Princeton - Resource:
Contact: Evelyn Sasmor
Tel: (609) 279-0770
E-mail: evelyn@sasmor.com

South Jersey - Support Group
CSA Southern New Jersey Chapter #9
Contact 1: Leah Edelstein, Co-chairperson
23 Stevens Drive
Voorhees, NJ 08043
Tel: (856) 435-6785
E-mail: ledelstein@comcast.net
Contact 2: Patti Townsend, Co-Chairperson, Membership
Collingswood, NJ
Tel: (856) 854-5508
E-Mail: pattitowns@verizon.net


New Mexico

Albuquerque - Support Group
Contact: Marilyn Johnson
Albuquerque Gluten Intolerance Support Group
Celiac Sprue Association New Mexico State Coordinator
Tel: (505) 299-5283
E-mail: marilynyj@comcast.net

Las Cruces - Support Group
Las Cruces Celiacs
Contact: Susan Pieper
4825 Senita
Las Cruces, NM 88011
Tel: (505) 522-8182
E-mail: spieper@huntel.com


New York

Albany - Support Group
Contact 1: Katie Marschilok
Capital District Celiac Support Group (Albany - ACS)
4 Fairlawn Lane
Troy, NY 12180
Tel: (518) 271-1784
E-mail: Marschilok@aol.com
Contact 2: Barbara Jordan
Tel: (518) 439-8652

Batavia - Resource:
Contact: Virginia R. Baldwin
P.O. Box 158
Pavilion, NY 14525
Tel: (716) 584-3422

Binghamton - Support Group
Contact: Nancy Dorfman
Celiac Self Help Group
12 Laurel Avenue
Binghamton, NY 13905
Tel: (607) 722-3848

Buffalo - Support Group
Contact 1: Mike Lodico
Gluten Free In WNY (GIG)
P.O. Box 24
N.Tonawanda, NY 14120
Tel: (716) 694-3287
E-mail: glutenfree2@gmail.com
Contact 2: Joanne Hameister
Tel: (716) 655-0849
E-mail: jeham@buffnet.net
Internet: http://www.glutenfreeinwny.com/

Hudson Valley Area - Support Group
Contact: Cathy Selber
Mid-Hudson Valley Gluten-Free Outings Meetup Group
E-mail: clselber@optonline.net

Ithaca/Cornell - Support Group
  Contact: Laura Johnson-Kelly
  48 Comfort Rd.
  Ithaca, NY 14850
  Tel: (607) 272-5902
  E-mail: LWJ1@cornell.edu.

Ithaca - Resource:
Contacts: Mary Ochs
18 Whig St.
Trumansburg, NY 14886
Tel: (607) 387-9221
E-mail: mao4@cornell.edu.

Long Island - Support Group
Contact 1: JoanAnn Defiglia
Long Island Celiacs
1023 Jackson Avenue
Franklin Square, NY 11010
Tel: (516) 437-0396
Contact 2: Ellen Mulligan
193-5th St.
Hicksville, NY 11801
Contact 3: James J. Callahan
Tel: (516) 794-1654.

Middletown - Support Group
Contact: Marisa Frederick
Celiac Kids' Club
264 Scotchtown Road
Goshen, NY 10924
Tel: (914) 294-1385

Mohawk Valley - Support Group
Contact: Eleanor P. Wallace
The Celiac Support Group of the Mohawk Valley
- chapter of Celiac Disease Foundation
10 Clinton St., Apt. 715
Whitesboro, NY 13492
Tel: (315) 736-6981
E-mail: elpar6@yahoo.com
Internet: http://www.csgmv.org/

New York - Support Group
Contact 1: Mary Ferry
Greater New York Celiac Support Group (CSA)
Tel: (212) 304-1026
Contact 2: Merle Cachia
Tel: (212) 662-2464
E-mail: pjc1@columbia.edu

Plattsburgh - Support Group
North Country Celiac Support Group
Contact: Shirley Koester
Tel: (518) 643-9461
E-mail: redwing2@localnet.com

Rochester - Support Group
Rochester Celiac Support Group
Contact 1: Susan Kath
1039 Moseley Road
Fairport, NY 14450
Tel: (585) 425-9994
Contact 2: Marvin Becker
210 Crandon Way
Rochester, NY 14618
Tel: (585) 442-9528
E-mail: http://www.rochesterceliacs.org/contact.htm
Internet: http://www.rochesterceliacs.org

Suffolk County - Support Group
Suffolk County (NY) Celiacs-a Branch of GIG
Contact 1: Les Doti
P.O. Box 13
Kings Park, NY 11754-0013
Contact 2: Michael Thorn
Tel: (631) 395-5071
E-mail: SuffolkCeliacs@aol.com
Internet: http://www.suffolkcountyceliacs.org

Syracuse - Support Group
Contact: Ruth Wyman
Central New York Celiac Support Group
263 Roxbury Road
Syracuse, NY 13206
Tel: (315) 463-4616
E-mail: info@CNYceliacs.org
Website: www.CNYceliacs.org

White Plains - Support Group
Contact 1: Chris Spreitzer
Westchester Celiac Sprue Support Group
P.O. Box 66
Montrose, NY 10548-0066
Tel: (914) 737-5291
E-mail: info@westchesterceliacs.org
Contact 2: Lou Zimet
E-mail: louzimet@optonline.net

Williamsville - Support Group
Contact: Cliff Hauck, Co-Chairperson
P.O. Box 1835
Williamsville, NY 14231
Western NY Gluten Free Diet Support Group (CSA/USA Chapter #33-1990)
Tel: (716) 636-6021
E-mail: hauckc@adelphia.net
Internet: http://www.buffaloglutenfree.org


North Carolina

Asheville - - Resource:
Contact: Leah R. Karpen
518 Ox Creek Road
Weaverville, NC 28787
Tel: (704) 645-9067

Boone - Resource:
Contact: Ernest Lane
827 Blairmont Dr.
Boone, NC 28607
Tel: (704) 264-4618 or (704) 262-2380
E-mail: epl@math.appstate.edu

Charlotte - Support Group
Contact: Janet Kline
Charlotte Celiac Connection
Tel: (704) 442-2997
E-mail: Janet@Charlotte-Celiac-Connection.org
Internet: www.Charlotte-Celiac-Connection.org

Durham - Fayetteville Support Group
Contact 1: Ruth Thomas
North Carolina Celiacs (CSA)
Tel: (919) 542-4030
Contact 2: Susan Black
Tel: (910) 875-3186

Raleigh-Durham - Support Group
Contact 1: Diana Clarke
Triangle Celiac Support Group
E-mail: DeBucket@aol.com
Contact 2: Connie Margolin
E-mail: ThirdEar0@aol.com


North Dakota

Bismarck - Support Group
Contact: Lila Brendel
Central ND Celiac Resource Group
1900 93 St. SE
Bismarck, ND 58504
Tel: (701) 258-7800
E-mail: CNDC_GIG@msn.com

Fargo - Support Group
Contact: Stacey Juhnke or Sara Vollmer 
GIG of Fargo-Moorhead
PO Box 464 Fargo ND 58107
Tel: (701) 237-4854, (701) 412-8110, (701) 238-0587
Internet: www.gluten.net/local-branches/north-dakota/gig-of-fargo-moorhead
Email: GIG_FM@hotmail.com

Oakes - Support Group
Contact: Juli Becker
North Dakota Celiacs (CSA)
10585 85th St. SE
Oakes, ND 58474
Tel: (701) 742-2738

Ohio

Bellevue - Support Group
Contact: Dennis & Cheryl Dendinger
North Coast Celiac Support Team
Bellevue, OH 44811
Tel: (419) 483-6529

Canton - Support Group
Contact: Denise Ramey
Alliance Area Celiac Support Group
E-mail: daramey33@netzero.net
Tel: (330) 966-1515

Cincinnati - Support Group
Contact: Denise Ramey
Cincinnati Celiac Support Group
Children's Hospital Medical Center
Cincinnati, OH 45229
Tel: (513) 887-7153
Internet: http://www.cinciceliac.com
E-mail: president@cinciceliac.com

Cleveland- Support Group
Northeast Ohio Celiac Support Group
E-mail: info@neohioceliac.com
Contact: Trisha Lyons, RD, LD
2500 MetroHealth Dr.
Cleveland, OH 44109
E-mail: TLyons@metrohealth.org
Tel: (216)-778-7835
Internet: www.neohioceliac.com

Cleveland - Support Group
Contact: Cindy Koller-Kass, President
Greater Cleveland Celiac Association
CSA/USA Chapter 50
33040 Rockford Drive
Solon, OH 44139
Tel: (440) 248-6671
E-mail: glutenfree1@yahoo.com

Gluten Free Support Group of NW Ohio
Contact: Holly McCollam
Email: glutenfreesupportgroupofnwohio@aol.com
Internet: https://www.facebook.com/groups/glutenfreesupportgroupofnwohio

Columbus - Support Group
Contact: Mary Kay Sharrett
Gluten Free Gang
700 Children Drive
Columbus, OH 43205-2696
Tel: (614) 722-3093
E-mail: sharretm@chi.osu.edu
Contact 2: Monica Hrabowy
663 Laurel Ridge Drive
Gahanna, OH 43230
Tel: (614) 337-1833
Tel: EHrabowy@aol.com.
Internet: http://www.glutenfreegang.org

Dayton - Support Group
Contact 1: Sandra Leonard
Miami Valley Celiac Sprue Support Group
560 Park Hills Crossing
Fairborn, OH 45324
Tel: (513) 878-3221
E-mail: thebaker_30@yahoo.com
Contact 2: Barbara Wieland
5903 S. Tecumseh Rd.
Springfield, OH 45502
Tel: (937) 324-8652
E-mail: wielandbj@aol.com

Mansfield - Support Group
Contact: Bev Messner
Richland County Celiac Support Group
First Presbyterian Church
399 S. Trimble Rd.
Mansfield, OH
E-mail: bevmessner@aol.com
Tel: (419) 589-5972
Internet: http://www.rccsg.com

Toledo - Support Group
Contact: Holly McCollam
Gluten Free Support Group of NW Ohio
E-mail: glutenfreesupportgroupofnwohio@aol.com
Internet: https://www.facebook.com/groups/glutenfreesupportgroupofnwohio/

 


Oklahoma

Norman - Resource
Contact: Kate Martin
Norman, OK
Tel: (405)364-5612
email: one4life@swbell.net
Internet: http://katesceliac.blogspot.com

Oklahoma City - Support Group
Contact: Heather Cline
Oklahoma Celiac Sprue Support Group (CSA)
1403 Classen Drive, Oklahoma City, OK 73106
Tel: (405) 235-1715
E-mail: HMCline@aol.com
Internet: http://www.OKceliac.com

Okmulgee - Resource:
Contact: Barbara Sipple
Rt. 1, Box 247
Morris, OK 74445
Tel: (918) 733-4571

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Tulsa - Support Group:
Contact: Jennifer Croley
Celiac Sprue Association
Tulsa Chapter #119
E-mail: csatulsa@gmail.com
Internet: www.csatulsa.org

 


Oregon

Bend - Support Group
Contact: Lynelle Thomas
Central Oregon Gluten Intolerance Group (GIG)
2442 NW Marken
Bend, OR 97701
Tel: (541) 389-1731

Burns - Resource:
Contact: Nici Bailey
449 S. Diamond
Burns, OR 97720
Tel: (541) 573-1164

Grants Pass - Support Group
Contact: Janine Chambers
1035 NE 6th St.
Grants Pass, OR 97526
Tel: (541) 218-0229

Portland/Vancouver - Support Group
Portland Metro GIG Branch Contacts
Contact: Mary Wikle - Branch Manager
PO Box 4204
Tualatin, OR 97062-4204
Tel: (503) 692-0724
E-mail: mwikle_carousel@yahoo.com

Salem - Support Group
Contact #1 - Ann Grafe
1328 Dogwood Drive
Woodburn OR 97071
Tel: (503) 982-3644


Pennsylvania

Bethlehem (Allentown area) - Support Group
Contact: Carla Madden
809 Race St
Catasauqua PA 18032
E-mail: kapanagia@yahoo.com

Danville - Support Group
Contact: Elaine M. Jeffreys
ACS Danville City Support Group
R.d.#6 Box 143 C
Danville, PA 17821
Tel: (717) 275-0654

Gluten Free Group of Gettysburg
Betsy Wargo, RD
717-339-2764
e-mail: bwargo@wellspan.org 

Harrisburg - Support Group:
Contact: Linda L. Weller
GIG of Harrisburg
Address: PO Box 312
Hershey, PA 17033
Tel: (717) 520-9817
E-mail: Harrisburg@gluten.net
Internet: http://www.harrisburgceliacs.org

Indiana - Support Group
Indiana Regional Medical Center Celiac Support Group
Contact: Brenda Shilling, Director of NFS
Indiana Regional Medical Center
Indiana, PA 15701
E-mail: bshilling@indianarmc.org

Lancaster Area - Support Group
George and Becky Maag
Tel: (717) 367-9257
E-mail: lancasterareaceliacs@yahoo.com
Internet: http://www.lancasterareaceliacs.org

Mount Pleasant - Support Group
Mount Pleasant Celiac Support Group
Contact: Vicky Vrabel
616 West Main Street
Mount Pleasant, Pennsylvania 15666
Tel: (724) 542-9745

Philadelphia - Support Group
Contact: Laura Sposito
ACS Whoo Sprue Group
1211 Tree Street
Philadelphia, PA 19148
Tel: (215) 336-5004

Philadelphia - Support Group
Contact: Karen Dalrymple
Greater Philadelphia Area Celiac Sprue Support Group
583 Valley View Rd.
Langhorne, PA 19047

Pittsburgh - Support Group
Contact: Elsie Janthey
Pittsburgh East Area Celiac Sprue Support
204 George Lane
Pittsburgh, PA 15235
Tel: (412) 823-2010
Contact 2: Lois Kosoglow
Tel: (412) 744-2356
Contact 3: Ruth Masengill
Tel: (412) 327-5564

Pittsburgh - Support Group
Contact 1: Lorraine Weaver, Treasurer and Membership
Greater Pittsburgh Celiac Sprue Support Group, Chapter #48 CSA/USA
1446 Greenbriar Court
Library, PA 15129
Tel: (412) 835-4983 or (412) 833-9507
Contact 2: Theresa Fogle
Tel: (724) 335-4892
E-mail: tfogle1@aol.com

State College - Support Group
Contact: Cindy Sunderland
Central Pennsylvania Celiac Support Group
RD 2, Box 189
McVeytown, PA 17051-9618
Tel: (717) 899-6482
E-mail ras@DD1.ARL.PSU.EDU

Wilkes-Barre/Scranton - Support Group
Contact: Rosemarie Butera
CSA/USA Wilkes-Barre/Scranton Celiac Support Group
Tel: (570) 655-0728

Wynnewood - Resource:
Contact: Rita M. Herskovitz
52 Rockglen Road
Wynnewood, PA 19096
Tel: (215) 642-9351


Rhode Island

Providence - Support Group
Contact: Tanis Collard
MA & RI Celiac Support Group for Children
11 Level Acres Road
Attleboro, MA 02703-6843
Tel: (508) 399-6229
Internet: http://members.home.net/kellyleech/celiac/csgc.html

Rhode Island - Support Group
Contact 1: Linda Monahan
American Celiac Family Support Group of RI
155 Reservoir Road
Pascoag, RI 02859
Tel: (401) 568-6110
E-mail: MonahanLinda@yahoo.com
Internet: http://www.celiacsupportgroup.com


South Carolina

Columbia - Support Group
Contact 1: Peggy Smith
Palmetto Celiac Support Group
1508 Anthony Drive
West Columbia, SC 29172
Tel: (803) 775-9466 or (803) 755-7291

Florence - Resource:
Contact: Lea E. Marshall
1214 Hillside Avenue
Florence, SC 29505
Tel: (803) 665-6290


Tennessee

Jackson - Support Group
Contact: Allan Clement
151 Lone Oak Dr.
Jackson, TN 38305
Tel: (731) 423-5315
E-mail: aclementhome@hotmail.com

Knoxville - support group
Contact: Theresa Cornelius, MS, RD, LDN
7424 Oaken Dr.
Knoxville, Tn 38938-4321
Tel: (865) 922-8780
E-mail: TheresaCornelius@Changing-Lifestyles.com

Memphis - Support Group
Contact 1: Lisa Trenthem
Memphis Area Celiac Support Group
1753 Carruthers Pl.
Memphis, TN 38112
Tel. (901) 276-7751
E-mail: ltrenthem@utmem.edu
Contact 2: Sally Damron
E-mail: srdamron@bellsouth.net

Nashville - Support Group
Nashville Celiac Support Group (CSA)
Contact 1: Gary Seise, Co-chair
Tel: 615-895-0398
E-mail: grseise@juno.com
Contact 2: Darryl Casey, Co-chair
Tel: 615-481-4445
E-mail: DarrylCasey@yahoo.com


Texas

Austin - Support Group
Contact : Francie Kelley
Alamo Celiac Austin
Alamo Celiac Gluten Intolerance Group
Tel: (512) 301-2224
E-mail: fkelley@austin.rr.com
Internet: http://www.alamoceliac.org

Brazoria County Texas Celiac Support Group
Contact: Cecilia McNeil
Tel: (979) 265 0819
E-mail: clmcneil@academicplanet.com

Corpus Christi - Support Group
Alamo Celiac Corpus Christi
Contact: Susan M. Revier, Secretary
Tel: (361) 855-6810
E-mail: jamesrevier@grandecom.net

Dallas - Support Group
Lone Star Celiac Gluten Intolerance Group
Contact: Rose Mary Simmons
2603 Dorrington Drive
Dallas, TX  75228
Tel: (214) 328-7286
E-mail: president@dfwceliac.org
Internet: http:www.dfwceliac.org

Eastland - Resource:
Contact: Jill Hollywood
P.O. Box 938
Eastland, TX 76448-0938
Tel: (254) 629-1299

Fort Worth - Support Group
Contact: Betty Barfield, President
North Texas Gluten Intolerance Group
6821 Nob Hill Dr.
North Richland Hills, TX 76182
Tel: (817) 929-9227
E-mail: manager@northtexasgig.com
Internet: http://www.northtexasgig.com

Houston - Support Group
Houston Celiac Sprue Association
Janet Y. Rinehart, Chairman
13722 Ashley Run
Houston, TX 77077
Tel: (281) 679-7608
E-mail: txjanet@swbell.net
Chapter web site: http://www.houstonceliacs.org

Lubbock - Support Group
Contact: Rebecca Holland
Lubbock Celiac Support Group
Internet:- http://www.lubbockceliacgroup.com

Midland - Support Group
Contact 1: Pat Gatlin
West Texas GF Awareness Group
11809 W. County Road, #54
Midland, TX 79707
Tel: (915) 563-4847
Contact 2: Lois Newbold
Tel: (915) 684-4671
Contact 3: Linda Blanchard
E-mail: linda@ccgs.com

San Antonio - Support Group
Alamo Celiac San Antonio
Contact 1: Anne Barfield
606 Jackson Keller
San Antonio TX 78216-7121
Tel: (210) 340-0648
E-mail: AnneBarfield@satx.rr.com
Contact 2: Lynn Rainwater
5014 Gemsbuck Chase
San Antonio TX 78251-4380
Tel. (210) 509-0179
E-mail: txlynnr@swbell.net

Texas Hill Country - Support Group
Austin Gluten-Free Friends
Contact: Kay Stence
1863 Greenwood Lane
Kingsland, TX 78639
Tel: (512) 632-3682 or (325) 388-3103
E-mail: kstence@marykay.com

Texarkana - Resource:
Contact: Marie Freeman
Rt 6, Box 465-F
Texarkana, TX 75501
Tel: (903) 793-1392


Utah

Utah Support Groups - Website
Gluten Intolerance Support Groups of Utah
Internet: http://www.gfutah.org

Northern Utah - Support Group
Celiac Support Group of Northern Utah,
a branch of the Gluten Intolerance Group
Contact: Marie Kawaguchi
E-mail: mkawag@msn.com
Tel: (801) 732-9363

Salt Lake Gluten Intolerance Group (GIG)
St. Mark's Hospital (meeting place)
Pam Ward - CoChair
Sandi Bigelow - CoChair
Tim Coda - CoChair
Marcie Coda, Branch Manager
E-mail: saltlakegig@gmail.com
Internet: http://www.gfutah.org

Utah County- Support Group
Contact: Paul Faris
E-mail: pfaris@juno.com
Tel: (801) 225-5828

Utah County - Support Group
Utah County Gluten Intolerance Group (GIG)
Contact: Robert and Amber Lee
Tel: (801) 763-0977
Email: info@gfutah.org
Internet: http://www.gfutah.org


Vermont

Bennington - Support Group
Contact: Lynn Grieger
Southern Vermont Celiacs
RD3 Box 586
Arlington, VT 05250
Tel: (802) 375-9069

St. Albans - Support Group
Contact: Suzanne Ludlam
Celiac Support Group of Vermont
E-mail: rsludlam@yahoo.com


Virginia

Alexandria, Arlington - Support Group
Contact: Jerry Malitz
Washington Area Celiac Support Group
Email: dcmetroceliacs@gmail.com
Internet: http://www.dcceliacs.typepad.com

Blacksburg - Support Group
Contact: John Tice
New River Valley CS Support Group
Blacksburg, VA
Tel: (540) 951-2126
E-mail: jtice1@johntice.com

Charlottesville - Support Group
Contact: Amy E. Pagano, MS, RD
Celia Sprue Support Group
Tel: (434) 243-4666
E-mail: ap8a@virginia.edu

Chesapeake, VA - Support Group
Contact: Dawn Ryan
Celiac Disease Foundation Chesapeake Tidewater Chapter
E-mail: ctcglutenfree@gmail.com
Internet: www.celiacsofva.com

Richmond - Support Group
Contact: Madelyn Smith
Gluten Intolerance Group of Richmond
E-mail: gigrva@comcast.net

Richmond - Support Group
Richmond Celiac Sprue Support Group
Contact: William & Deborah Locke
1347 Sweet Willow Drive
Midlothian, VA 23113
Tel: 804-794-7476
E-mail: csa_rcssg87@comcast.net


Washington

Bellingham - Support Group
Bellingham Gluten Intolerance Group
Contact: Kelle A. Rankin-Sunter
P.O. Box 28894
Bellingham, WA 98229
Tel: (360) 332-7435
E-mail: celiac@nuwworld.com
Internet: http://www.glutenfreeway.info

Seattle - Support Group
Gluten Intolerance Group
15110 10 Ave. SW, Suite A
Seattle, WA 98166-1820
Tel: (206) 246-6652
E-mail: gig@gluten.net
Internet: http://www.gluten.net

Renton - Support Group
Contact: Lynn Jameson
E-mail: Southseattlegfgroup@yahoo.com

Seattle - Support Group
Seattle Celiacs
Kirkland WA 98033
Tel: (425) 503-6126
E-mail: eric@seattleceliacs.com
Internet: http://www.seattleceliacs.com

Tacoma - Support Group
South Sound Gluten Free "Encouragement" Group
Contact: Gay McCray
Tel: (253) 851-4610
E-mail: gmccray@centurytel.net

 


West Virginia

Huntington - Support Group
Tri-State Celiac Sprue Support Group
Contact: Deborah Yeager
5425 Lea Hill Dr.
Huntington, WV 25705
Tel: (304) 733-5867


Wisconsin

Appleton - Support Group
Fox Valley Celiacs
Contact: Helen Morris
1369 Graystone Court
Depere, WI 54115
Tel: (920) 337-9235
E-mail: hbmorris1369@sbcglobal.net

La Crosse - Support Group
La Crosse Area CS Support Group
Contact: Mary Lou Balts
2601 Losey Blvd. South
La Crosse, WI 54601
Tel: (608) 788-7398
E-mail: baltskml@centurytel.net

Madison - Support Group
Group: Madison Area Gluten Intolerance Chapter (MAGIC)
Contact: Aaron Avery
Tel: (608) 271-4041
E-mail: aavery77@hotmail.com

Marshfield - Support Group
Marshfield Celiac Support Group
Contact: Marshfield Clinic Nutrition Services
Tel: (715) 387-5480
E-mail: carolasher46@gmail.com
Internet: www.marshfieldceliac.weebly.com

Milwaukee - Support Group
Milwaukee Sprue Crew
Contact: Bev Lieven
E-mail: milcs@aol.com


Wyoming

Casper - Support Group
Central Wyoming Celiac Association
Contact: Kim Attaway
P.O. Box 50124
Casper, WY 82605-0124
Tel: (307) 472-5889
E-mail: wyceliacassoc@alluretech.net

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7 Responses:

 
Nicole
Rating: ratingfullratingfullratingfullratingfullratingfull Unrated
said this on
27 Dec 2007 7:05:39 PM PDT
It's nice to see a list here.

 
Elena Brase
Rating: ratingfullratingfullratingfullratingfullratingfull Unrated
said this on
06 Jan 2008 6:07:26 AM PDT
This article is a lifesaver. I will call each support group when I go on a trip to get restaurant tips. Thanks!

 
Barbara
Rating: ratingfullratingfullratingfullratingfullratingfull Unrated
said this on
02 May 2008 5:22:07 AM PDT
My son has been diagnosed with celiac (gluten-free foods only). Since I have been a southern cook all my life I do not know how to cook biscuits, homemade cakes and all the food he enjoys. Thank you for any southern recipes you can assist me with.

 
Beulah Owens
Rating: ratingfullratingfullratingfullratingfullratingfull Unrated
said this on
09 Jun 2010 11:46:32 AM PDT
Nice to know where all the other support groups are located. Our Marion Area Celiac Support Group was started July 2008 in Marion Ohio. I am the contact person.

 
Gwen
Rating: ratingfullratingfullratingfullratingemptyratingempty Unrated
said this on
25 Jul 2012 4:07:51 PM PDT
No support groups listed for states after the letter M

 
gryphon
( Author)
said this on
26 Jul 2012 10:10:38 AM PDT
We are aware of the issue. Hopefully our programmer will get to it soon.

 
T o m
Rating: ratingfullratingfullratingfullratingemptyratingempty Unrated
said this on
16 Apr 2015 2:04:00 AM PDT
After M is on the next page.




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I prefer edible candy. I have glaucoma and celiac so it helps me on a daily basis for all of my medical problems. I wish I could find a strain that has laxative effects so I didn't need linsess. Leafly.com has a lot of strain information and cannabist is a good resource, too. You can use CBD or THC and not get 'stoned'. I function fine on 20 mg of the candy. I refuse to drive if I smoke though. Good luck, hope it helps.

Is it NCGS or Low stomach acid misdiagnosed Low Stomach Acid and Celiac Disease Dear Gluten Intolerant please consider Low Stomach Acid as a possible Differential Diagnosis as a possible way to achieve remission of your GI symptom's. ?Consider what I say; and the Lord give thee understanding in all things? 2 Timothy 2: 7 Low stomach acid has now been linked to a probable cause of damage to the Small Intestine before and/or occurring with a Non-Celiac Gluten Sensitivity (NCGS) or Celiac diagnosis. See this research as reported on celiac.com that discusses the increased risk of/for someone to develop celiac disease after taking PPI?s. http://www.celiac.com/articles/23432/1/Do-Proton-Pump-Inhibitors-Increase-Risk-of-Celiac-Disease/Page1.html Note how the article starts quoting ?Rates of celiac disease and the use of drugs to inhibit the secretion of stomach acid have both increased in recent decades. A research team recently set out to explore the association between anti-secretory medication exposure and subsequent development of celiac disease.? If these medicine are lowering stomach acid what cause effect relationship does/ could this have on Celaic/NCGS diagnosis is what he is postulating. He goes on to say without being very technical (read the whole article for yourself) that ?The data clearly show that patients who use anti-secretory medications are at much greater risk for developing celiac disease following the use of these medicines. The fact that this connection persisted even after the team excluded prescriptions for anti-secretory medicines in the year preceding the celiac disease diagnosis suggests a causal relationship?. If even after a year OFF these medicines your chances of developing Celiac Disease (celiac disease) not to mention even NCGS which is much more prominent surely the researcher is correct in postulating that there is a cause and effect relationship between low stomach acid and NCGS and/or Celiac disease. Surely there is something we can learn here. I now postulate some homework for the reader of this blog post. Do some research for yourself and see if achlorhydia or hypochlorhydia symptoms don?t at least resemble in some manner all of the GI symptoms you have been having. (I note some of the many symptom?s low stomach acid can present with below as referenced from Dr. Myatt?s online article ?What?s Burning You? for easy reference (It might not be what you think (my words)) It is important to note here that ?some? symptoms does not mean all but many or several. It is called a differential diagnosis. It is an important diagnostic tool in medicine. Think of the tv show ?House? where they spend the whole hour/over a week times going through the ?differential diagnosis? in short any one symptom can/have many different causes. The trick is how to quickly eliminate possible outcomes as symptoms (many) go up. All is usually never meet because that would make the disease in full outbreak and obvious even to the layman a condition described as ?frank? or ?classic? Scurvy or Rickets as an example. Sadly too often after 8 to 10+ years of testing after all the differential diagnosis?s are ruled out you are said by process of elimination to have Celiac Disease if you are lucky or maybe NCGS and not some other acronym GI disease as I like to refer to them as a group. GERD,IBS,UC, Chrons etc because if they turned down that street ? . you are/could be in/at a dead end for they stop looking at the trigger (gluten) as the cause of your gastric upset/digestive disorder(s). So in summary if 3 or 4 or 5 or 6 of these symptoms overlap ?many of? these symptoms could be Low Stomach Acid related. IF that is the cause/case for you then there is hope! For remission! From Dr. Myatts? Online article what?s burning you? From Dr. Myatts? Online article what?s burning you? http://healthbeatnews.com/whats-burning-you/ Diseases Associated with Low Gastric Function Low stomach acid is associated with the following conditions: * Acne rosacea * Addison?s disease * Allergic reactions * Candidiasis (chronic) * Cardiac arrhythmias * Celiac disease * Childhood asthma * Chronic autoimmune hepatitis * Chronic cough * Dermatitis herpeteformis * Diabetes (type I) * Eczema * Gallbladder disease * GERD * Graves disease (hyperthyroid) * Iron deficiency anemia * Laryngitis (chronic) * Lupus erythromatosis * Macular degeneration * Multiple sclerosis * Muscle Cramps * Myasthenia gravis * Mycobacterium avium complex (MAC) * Osteoporosis * Pernicious anemia * Polymyalgia rheumatica * Reynaud?s syndrome * Rheumatoid arthritis * Scleroderma * Sjogren?s syndrome * Stomach cancer * Ulcerative colitis * Vitiligo When low in stomach acid we become low in essential nutrients Quoting from Dr. Myatts ?what?s burning you? online article ?Our bodies need 60 or so essential nutrients. ?Essential? means that the body MUST have this nutrient or death will eventually ensue, and the nutrient must be obtained from diet because the body cannot manufacture it. Many of these essential nutrients require stomach acid for their assimilation. When stomach acid production declines, nutrient deficiencies begin. Calcium, for example, requires vigorous stomach acid in order to be assimilated. Interestingly, the rate of hip replacement surgery is much higher in people who routinely use antacids and acid-blocking drugs. We know that people who have ?acid stomach? were already having trouble assimilating calcium from food and nutritional supplements due to lack of normal stomach acid production. When these symptoms are ?band-aided? with drugs which decrease stomach acid even more, calcium assimilation can come to a near-halt. The result? Weak bones, hip fractures and joint complaints resulting in major surgery. Jonathan Wright, M.D., well-known and respected holistic physician, states that ?Although research in this area is entirely inadequate, its been my linical observation that calcium, magnesium, iron, zinc, copper, chromium, selenium, manganese, vanadium, molybdenum, cobalt, and many other micro-trace elements are not nearly as well-absorbed in those with poor stomach acid as they are in those whose acid levels are normal. When we test plasma amino acid levels for those with poor stomach function, we frequently find lower than usual levels of one or more of the eight essential amino acids: isoleucine, leucine, lysine, methionine, phenylalanine, threonine, tryptophan, and valine. Often there are functional insufficiencies of folic acid and/or vitamin B12.? Remember, these are essential nutrients. Deficiencies of any single one of them can cause serious health problems over time. Weak bones, diminish immune function, failing memory, loss of eyesight and many other ?diseases of aging? are often the result of decreased stomach function.? It is me again reader. So low stomach acid is the triggering agent (often) for low nutrients. Make too much sense! Now don?t take Vitamin?s for this condition where low Vitamins/Minerals are known to be low in patients who have this condition because . . . . (if you do you won?t need to keep coming back to the doctor) I can almost hear the doctor say now. Of course he/she doesn?t say that . . . just that the ?average person? doesn?t need to take Vitamins. Well I hate to break it too you . . . . but if you are having GI problems and reading this blog post on celac.com then you are not the ?average? person. You my friend or a sufferer or a friend of a sufferer still looking for answers. If that is you then consider taking either powdered stomach acid ? Betaine HCL or taking Niacinamide to help you reset your stress clock. A Canadian researcher wrote about this connection 15+ years ago but still most doctors? don?t understand this connection between about how ?Niacin treats digestive Problems? Here is the full link so you can research it more yourself. http://orthomolecular.org/library/jom/2001/articles/2001-v16n04-p225.shtml And you might not after a first reading. I didn?t believe it myself for over a year . . . but every time I thought about it ? it (Low Stomach Acid) made/makes the most sense to me. **** Note: research this yourself. Here is a link about how to take Betaine HCL (powdered stomach) for maximum effectiveness. http://20somethingallergies.com/how-much-hcl-do-i-take-learn-to-test-for-your-correct-dose/ Don?t take my blog post as medical advice. It is only what I did . . . it might not work for you but I think it is worth a try especially if you are not now taking an acid reducer. (see notes below about why this might) be more difficult if you are already taking an acid reducer . . . because the rebound wall (see chris kresser link) keeps us locked in . . . sometimes for years. Since I was not taking acid reducers at the time I took Betaine HCL my stomach problems improved and I am sharing this now in the hopes it might help yours too! Now back to (really) LOW stomach acid being diagnosed as HIGH stomach acid these days. How can we know if it truly high or low? You?ve heard the phrase timing is everything well it is here too! Timeline is important in any diagnosis. IF your stomach acid was HIGH as you often hear (everywhere) you hear take a Proton Pump Inhibitor aka acid reducer?s for heartburn/GERD (medical name for heartburn) then eating food (carbs, greasy things) wouldn?t bother you. The acid would cut it up but if it is already low/weak then even a little acid can burn your esophagus which is not coated like the stomach to protect you from high acid. BUT if it is low to start with then food will WEAKEN our/your acid so that you lose the food fight your in and things (carbs/fats) become to ferment, rancidify and cause heart burn. Leading in time to Non-Celiac disease first and with enough injury (and time) to Marsh lesions qualifying you for diagnosis as a Celiac candidate / patient. See above link between/about PPI?s in the year preceding a Celiac diagnosis. If you (can) be that patient and weight the xx number of years for all this damage to occur, there is a better way it is called digestion! A virtuous cycle can replace the vicious cycle you are now in ? it is caused digestion. Digest your food with healthy stomach acid and your body will thank you for it with the God given burp. A healthy child burps (at 6 months of age normally) and a healthy adult should too and you will again after taken Niacinamide 3/day for 6 months or this is not the right diagnosis. *********Note this is not medical advice only my experience with Niacinamide and my many years researching this topic as a fellow sufferer. Let me make these disclaimer(s). If you are a) experiencing heartburn that causing vomiting (with unintended weight loss) you may have a special case of heartburn that feels like heartburn (on steroids) that is really Bile Reflux and taking Stomach is not something you should do without medical advice and supervision. See this NYtimes article that discusses the many complications often seen with Bile Reflux patients and why it is treated as Heartburn often and why Bile Reflux is especially hard to recover from. http://www.nytimes.com/2009/06/30/health/30brod.html you are already taking an acid reducer then the chance you will get better (off of acid reducers completely) is only 50/50 on your first try but going low CARB can help your transition. Otherwise most people will get better when taking BetaineHCL for gastric support and Niacinamide to help them/you reset your digestive processes. See this online article about how Jo Lynne Shane got off Nexium for good. http://www.jolynneshane.com/how-i-got-off-nexium-for-good.html and her Epilogue http://www.jolynneshane.com/epilogue.html You will see she still struggles some but is much better when she let her natural digestive juices do their job. I call it the ?Natural Order of Things?. See this article about the digestion process being a North South Affair from the bodywisdom website http://bodywisdomnutrition.com/digestion-a-north-to-south-process/ Taking it (Niacinamide) (or any B-Vitamin) should be taken 2 to 3/day (too keep up serum levels) for 3 to 4 months (the time you can store B-Vitamins) in the liver mostly. Once you have a distinctive BURP that displaces the bloating and sense of ?I am going to explode? if I eat another bite (though you haven?t eaten half your meal) then normal digestion is occurring again. If you stool did not sink before this process (of taking Niacinamide begun) and burping became your ?new normal? then it (your stool) will begin to sink too! Burping without bloating is the ?Natural Order? of good digestion. Don?t stop this process of taking B-Vitamins as Niacimaide or Slo-Niacin 2/day for at least 4 months then you should see most of your GI symptom?s go into remission. (I did not say "cure" but remission from your cross contamination's (flares/symptom's etc.) might be possible. Because our defenses are now strong enough to cut up proteins before they reach our small intestine (where most of the damage is done). Think of a castle with a moat around it (stomach acid is designed to protect us) when it is low (the moat doesn?t protect us) and when the moat is dry the castle becomes a ruin!!! So do proteins (lactose (casein), gluten, soy, seafood etc.) to our small intestines (they become ruined) when our stomach acid (moat) is low or worse dry! I repeat again Timeline is important in any diagnosis. All heartburn is not equal. IF your stomach acid is truly high then it WILL occur between meals when there is no food to tamp down the fire (occurring in your stomach) not your esophagus. The excess pressure from fermented carbs push open the trap door allowing the low acid you have to burn the lining of your uncoated esophagus. See also this online article by Chris Kresser to study this more about why/how this could be a case of medical misdiagnosis in more detail https://chriskresser.com/what-everybody-ought-to-know-but-doesnt-about-heartburn-gerd/ This is part of a 3 part series that I think you will find very informative. This (low stomach acid) is a vicious cycle. STRONG stomach acid makes it a virtuous circle/cycle. Now food benefits you because low acid not only causes heartburn it limits your body?s absorptive ability by limiting its ability to cut up your food into digestible peptides and amino acids which are no longer harmful to your Small Intestine but helpful to your overall health because nutrients can now be absorbed because the food particles are now small enough to not cause harm to your villi. I hope this is helpful and it helps you the way it helped me. Maybe it will help you in a similar manner. I write this only as a guidepost on your way. May you find your way back to digestive peace! The ?Natural Order? of things! Praise bee to God! It is not a long way if you know the way . . . . from someone who has found his way back God being his help! There are more things I could say . . . but this post is getting kind of long but you get the gest. I noticed someone else on the celiac.com noticed the same improvement when they treated their low stomach acid and thought it was time a blog post talked about it. It is so much easier to consume all this information in one setting instead of hunting and peeking through several thread posts. Search for the posterboy on celiac.com and you will find it is my focus (how low stomach acid is misdiagnosed) and how Niacinamide helped me to restore its ?Natural Order? in the digestive process because it helped me! Here is the link to the Prousky?s abstract. 15+ years is a long time for people to continue to suffer but if the research it right then Niacinamide might help you too! http://www.yourhealthbase.com/database/niacin-treats-digestive-problems.htm Let?s hope it is not another 15 years before doctor?s and people realize low stomach acid can explain many of the same symptom?s an IBS, NCGS or even a Celiac patient might experience given a long enough time for these conditions to develop from too low a stomach acid to protect our Small Intestine. See link at start of this blog post posted here again for convenience. http://www.celiac.com/articles/23432/1/Do-Proton-Pump-Inhibitors-Increase-Risk-of-Celiac-Disease/Page1.html And it is worth noting about the time Celiac disease started (began to be more prevalent) / to increase in the population Acid reducer?s became more and more popular. *** Some plot the increase in time to Roundup usage but I am not buying it. PPI?s increase seam more plausible to me based on the relatively new research (less than 5 years old) is pretty current by research standards and the near linear response to increased first H2 stomach acid reducer?s then PPI?s in the population at large. *****Note: after I finished writing this blog post new research that in my mind confirms this connection was reported on celiac.com today that notes the link between gastric pH and impaired nutrient absorption. This very topic as I was getting ready to publish my post about low stomach acid possibly being diagnosed as Celiac disease on my posterboy blog mentions how a Celiac patient?s absorption can be impaired by gastric pH. https://www.celiac.com/articles/24738/1/Can-Celiac-Disease-Impair-Drug-Therapy-in-Patients/Page1.html Where they (researchers) say/ask discussing Celiac Disease and whether it (celiac disease) can impair drug therapy in patients. Note the opening paragraph discussing this topic quoting ?Celiac disease is associated with numerous chronic conditions, such as anemia and malabsorption of some critical vitamins. Changes in the gastrointestinal tract, rates of gastric emptying, and gastric pH are responsible for impaired vitamin and mineral absorption." i.e., low gastric pH can effect absorption. It stands to make reasonable sense to me they are related conditions and one is being diagnosed for the other often or at least one is being confused as the other and treating one (raising your stomach pH) might treat the other since many of the symptoms? are the same. *** this/these opinion(s) are my own and do not reflect an endorsement by celiac.com of these ideas, comments, thoughts or opinions. I hope this helps! You the way it did me! Good luck on your continued journey, Remember **** This is not medical advice and should not be considered such. Results may vary. Always consult your doctor before making any changes to your regimen. 2 Timothy 2:7 Consider what I say; and the Lord give thee understanding in all things. Posterboy by the Grace of God,

MC can be quite harsh as a laxative if your using it as one very effective....I mean 2 boxes of exlax did me nada back then. For a daily supplement try just taking Nature Vitality Calm twice daily start off with 1/4tsp work your way up to 1tsp doses if you can. If this is too harsh on you use a Magnesium Glycinate like Doctors best, less effective as a laxative but will still help provide you with a magnesium you body can utilize.

Thanks will try MC I tried LBS although it worked but it was brutal on my stomach ??

OH odd info here but the best way I found found to use it is a slow low temp extraction into coconut oil, and using this oil in cooking. Use a mortar and pestal to grind your greens into a fine powder, and heat slowly in a pan with virgin coconut oil just very low temp for a while you will see the oils from the greens mix with the coconut oil. You can then use this oil blend in baking edibles, or in whatever you wish. I make it very weak myself with just small bag in a entire 16oz container of coconut oil. I do it for the medical benefits nothing else. I like using it in paleo breads, or drizzle a bit over salads, CBD oil also has some benefits I have noticed in smaller amounts and CBD is legal in most states the gold one seems to be the best.