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The Daily Show’s Jon Stewart Nails Celiac Disease!

Celiac.com 06/26/2014 - In a segment that was noteworthy for its accuracy, focus and generous time allotment, The Daily Show host, Jon Stewart, opened up about his son’s experiences with celiac disease.

Photo: Wikimedia CommonsFor the segment, Stewart interviewed actress and gluten-free baker Jennifer Esposito about celiac disease, and about Esposito’s new book, and gluten-free bakery, both named Jennifer’s Way.

Esposito talked about her own years-long struggles with chronic symptoms of celiac disease, and with her difficulties in getting a proper diagnosis.

In what might be one of the most widely watched, in depth talks about celiac disease on major television, the show devoted nearly six minutes to the subject.

In classic Stewart style, the segment was both accurate and informative, while still remaining true to its comic roots.

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For example, Stewart was quick to point out that “…celiac disease is quite different from, what it’s called, like gluten sensitivity or the more faddish of those types of diets,” he said.

On the comic side, Stewart noted that, for Jews, celiac disease has been described as “like Passover, but year-round” just without the matzo.
On the more personal side, Stewart shared what celiac disease meant to him personally through the story of his son’s struggle with the condition.

“For the boy, he was having these terrible episodes of vomiting. And then he got anemic, and we were absolutely devastated and frightened that he was dying. We couldn’t figure out what was going on.”

Kudos to Stewart for using his show and his interview with Esposito to promote clear, accurate information about celiac disease.

Catch the segment below, and be sure to check out the comments section to tell us what you think about such high profile, accurate, and, dare I say, entertaining coverage of celiac disease.

Celiac.com welcomes your comments below (registration is NOT required).





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24 Responses:

 
Hilary
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said this on
30 Jun 2014 6:00:10 PM PDT
I missed this show.. thanks for sharing Jefferson. Always love to hear another REAL story and not some dieter... thank you.

 
Jo Ann Boyd
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said this on
30 Jun 2014 6:01:43 PM PDT
At last doctors are finally learning about CD, diagnosing it and trying to help their patients. However, they need to learn more about the part nutrition plays in keeping out bodies healthy. We live in a wonderful Country, but something must be done to improve our food. Why aren't we refusing to eat GMO and/or highly processed foods (i.e. high fructose corn syrup) which are probably responsible for many food allergies and possibility other illnesses. Where is the leadership we need to clean up our food situation.

 
Brenda
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said this on
02 Jul 2014 2:16:38 PM PDT
So agreed! When is our government going to listen to their people?

 
Elisabeth
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said this on
01 Jul 2014 4:10:39 AM PDT
Very good thank you!

 
Hawkeye
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said this on
01 Jul 2014 6:41:09 AM PDT
Thank you, Thank you for addressing this issue. It made me sad and mad, we people say to me "oh I'm going gluten free too to lose some weight" I want to scream every time I heard this. Can they not get it that it is a Disease attach with Pain and death. I'm so sick right now I'm only liquids, do you want to do that as well. Every word Jennifer and Stewart shared is so TRUE. And the doctors always think that it is all in your heard, are you stressed, maybe it just stress. Of course, we're stress we can't eat without Pain or Diarrhea, wouldn't you be stressed as well. Like Jennifer said it is NO fun to go out to dinner at all, you are a Prison in your own body.

 
Jill
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said this on
01 Jul 2014 7:43:42 AM PDT
I am 100% grateful that these discussions are being had regarding the seriousness of gluten-related disorders. Jennifer Esposito's work and commitment to improving the lives of people who suffer horrible life-long symptoms is commendable and I applaud her every step of the way.

It is great that Jon has the opportunity to share about his own personal experience and the fear of watching his child suffer with this. There are many of us that are going through the same thing. Jon misstated one thing in the interview and that is below (and in your article)

“…celiac disease is quite different from, what it’s called, like gluten sensitivity or the more faddish of those types of diets,” he said.

This statement made it sound like gluten-sensitivity is a"fad diet," which is a slap in the face for those who ALSO feel like they are dying when they ingest gluten. How we wish we had the luxury of being on a fad diet and not something as horrible as gluten sensitivity. The symptoms of gluten-sensitivity are every bit as real as symptoms from celiac disease. While the conditions may be genetically different, both are severe, debilitating, REAL and those with NCGS or celiac are still fighting the same fight. Let's band together on the whole subject of gluten-related disorders.

 
vorsilva
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said this on
04 Jul 2014 5:18:11 AM PDT
I feel the same way. I am grateful for the coverage this received, but as someone who suffers from severe non celiac sensitivity, I was destroyed when they called this a fad. Like Esposito my allergy destroyed my serotonin count. I have been bombarding my body with unnecessary medications for "serotonin deficiency" that ravaged my system and eventually lead to a stroke at 36 years old. If my sister had not suspected NCGS after the attack I might still be trapped in that hell. NCGS is real. Just because there is no definitive test does not mean that it is not destroying lives. We should not be shamed because others are misinformed about this illness, especially from people who know what gluten can to to your system.

 
WhollyFool
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said this on
04 Jul 2014 4:58:04 PM PDT
Yes, I love Jon Stewart, but I think he misspoke including gluten sensitivity as part of the fad dieting (that I think we all hate).

 
Tracy H.
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said this on
14 Jul 2014 8:40:28 AM PDT
Understanding of non-celiac gluten sensitivity is where understanding of celiac disease was 20 years ago. Dissing gluten sensitivity does not help people with celiac. We have more power as one united community.

 
Linda
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said this on
07 Jul 2014 6:36:28 AM PDT
Jill, thanks for saying what I was screaming at my computer! Gluten sensitivity is very real.

 
Jill

said this on
08 Jul 2014 7:32:30 AM PDT
You're welcome! Yes, gluten-sensitivity is as real as it gets. Nobody would choose to have this. People need to be careful about what they say and how they say it in the media or it will only add to the confusion. These are golden opportunities to support one another and not create a "what I have is worse than what you have..." type of situation.

 
Geri
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said this on
08 Jul 2014 6:53:54 PM PDT
NCGS or gluten intolerance is every bit as real as symptoms from celiac disease. Mine are severe and debilitating too. Thank you for pointing out what is right and let's get more affordable gluten free foods. Gluten has harmed me beyond words.

 
Melissa
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said this on
19 Jul 2014 10:48:45 AM PDT
Thank you for expressing my feelings so well. I was extremely dismayed by the comment (and other comments in the segment) and that is the only reason I rated the article with 3 stars. This segment may have highlighted celiac disease, but it set back the oftentimes extreme gluten sensitivity issue (and oftentimes misdiagnosed as not celiac disease).

 
Irv
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said this on
01 Jul 2014 12:05:52 PM PDT
Great.....

 
Ashlyn Fellman
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said this on
01 Jul 2014 8:40:40 PM PDT
I was so happy to see this and hear them talking about it. I am self diagnosed last July. My mom stopped taking me to the doctors because they never listened to me. Just told us I was eating too much, not exercising enough, I need to eat more "Healthy whole Grains"...... I was in ballet for 9 years, swimming for 7, basketball for 3, p.e. every single day. I was overweight ever since I was 6 months old. I've lost 65 pounds in 6 months, excema, headaches, bloody noses all gone, my menstrual system and thinking is 150% better, I can actually get better than c's and d's on tests and schoolwork. Gluten has messed my life up for so long, I am so happy I figured it out all on my own. I am 20 years old and still have another 100 pounds to lose. I am also the happiest I have ever been, no depression or suicidal thoughts. Eating out is the absolute worst right now.

 
john j acres
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said this on
05 Jul 2014 3:27:18 PM PDT
Gluten free food it is not a diet but a way of life , eat fruit and veggies , make your own pastries , do not buy gluten free products as they have additives & derivatives in them that is why these products are not marked "suitable for coeliacs".

 
Susie
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said this on
06 Jul 2014 1:24:51 PM PDT
Thank you for sharing the interview. I'm so glad that eating out was discussed.

 
Amber
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said this on
10 Jul 2014 6:35:57 AM PDT
I do not have CD, but I care about my health and the health of my family. So, eating gluten free is not a fad diet for me, it is an educated way to stay healthy. Although I can understand and sympathize with people who live with the pain of CD, I cannot understand why it would be so upsetting that non CD sufferers would aspire to healthy eating in the same fashion. I am very interested to hear thoughts.

 
Liane
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said this on
15 Jul 2014 12:59:11 PM PDT
The problem comes down to those who really don't understand much about gluten and just jump on the bandwagon of any "diet" they hear about just because it is popular. Unfortunately, there are those that will go gluten-free just because it is on the news or someone famous is on it, not because they are genuinely concerned about their health or even react to gluten in any way. For them, it is like wearing the latest fashion.

When individuals like this walk into restaurants or other establishments, they sometimes make a big fuss about things being gluten-free. A waiter or server may, for whatever reason, not make any changes to spite them and then watch for a reaction. When no reaction comes, some then start believing that anyone who claims they can't have gluten is faking it. I have met people who got this impression.

In other cases, a person may claim they MUST eat gluten-free but when faced with a yummy treat will give in claiming it isn't a big deal if they eat it once in a while. Again, this makes others believe that those with CD don't really have to be gluten-free all the time. Therefore, they aren't as concerned about our food being gluten-free or avoiding cross-contamination. Again, I have encountered people who do this.

The end results of all this is that those who do truly suffer from CD or gluten-sensitivity are not taken seriously and our health is put at risk. While I don't have CD, my 8 year old does. When people don't trust adults who claim to not be able to eat gluten, how are they going to trust a little girl. But for her, it is debilitating. This is the concern for the CD community. We appreciate that there are more and more option for us, but sometimes too much bad publicity can physically hurt us.

 
cmh
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said this on
16 Jul 2014 2:10:10 PM PDT
Liane - I agree with you 100%. My son is 10 and 9 mos diagnosed celiac. Everything has changed for him, his teachers say it is like he is on medication. He can focus in class, frustration levels are almost gone, and many more improvements. However, we have run into many many people, even kids who go gluten free for the benefits, say they are gluten free but "today" they are just going to have that burger on the bun. Here is my 10 year old, who finds so much relief in others who are gluten free because they have a "reaction", sitting next to his gluten allergy friend eating a burger or cupcake or whatever it is that my son can't risk having. This is devastating to him, why can they have it just once and he cannot? This is WHY people with CD struggle with the gluten allergy diagnosis. I am happy that everyone, even the fad dieters are bringing GF diet into the limelight but that is a significant lack of understanding or regard to the serious nature of the autoimmune disease itself. This is our biggest challenge right now.

 
celiacMom
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said this on
10 Jul 2014 7:40:16 AM PDT
Jefferson: something else for you to write about: More than one quarter of children with two copies of a high-risk variant in a specific group of genes develop an early sign of celiac disease called celiac disease autoimmunity (CDA) by age 5. The findings are from The Environmental Determinants of Diabetes in Youth consortium, or TEDDY teddy.epi.usf.edu/. The National Institutes of Health-funded study, published July 2 in the New England Journal of Medicine www.nejm.org/doi/full/10.1056/NEJMoa1313977, also found that participants in Sweden had higher rates of celiac disease than participants in the United States, Finland and Germany, even with the same genetic risks.
TEDDY is studying celiac disease and type 1 diabetes diabetes.niddk.nih.gov/dm/pubs/type1and2/index.aspx because both are autoimmune diseases with some of the same genetic risk factors.

 
Jefferson
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said this on
15 Jul 2014 4:44:25 PM PDT
Thanks! I'll look into that.

 
Sarah
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said this on
15 Jul 2014 2:07:55 PM PDT
I have been anemic for numerous years. I had diarrhea and it was suggested I was stressed. I was terribly stressed at work and felt that was the reason. A few years later after numerous surgeries for other reasons my diarrhea stopped. I always felt sluggish and super depressed. I began breaking out in small water blisters on knees and elbows and later my face. My primary had zero idea. When they moved to my scalp my daughter, a hairdresser, had me try many types of shampoos. I was finally sent to a dermatologist. He took a punch biopsy on my forearm and I was diagnosed with celiac. He said I had celiac and it was manifesting itself as an auto immune skin disorder. I removed all gluten and feel better than I have in years. My niece also has been diagnosed as well, but hers is the typical in the gut form. Since being off gluten I have been exposed through contamination at a restaurant who did not take me seriously and laud bread on my meat. I sent it back and was assured it was not the same meat and I ate it. Within twenty minutes my forehead was breaking out. I too am tired of people thinking this is a diet of choice and the foods that are gluten free can be very expensive!!! It's not a choice! Thanks you for bringing this topic up!

 
carol
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said this on
19 Jul 2014 7:21:17 AM PDT
Wish the video could still be viewed!!




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Hi, I am very sorry for posting back again. I have visited the consultant today and he said that the TTG is mildly elevated - does this mean it is a positive? The consultant said that as I tested negative for Celiac on three previous times, he thinks something else could be going on so came home worrying even more. The consultant has organised an endoscopy and requested it as a fast track and requested an urgent CT scan. I was wondering if there is anything that I can do to best prepare for the endoscopy? Does my gluten amount seem to be enough with the 2 slices of bread on a morning? Is it also possible for the TTG to have become mildly elevated because of other conditions? He mentioned to me that the colonoscopy didn't work really because of how it was clogged up and that the bowel prep didn't work. I have also noticed that I am experiencing major constipation as well - I will have diarrhoea then it will fluctuate to constipation as well and have an awful gurgling sensation as soon as I eat anything like bread. Thank you again for everyone on here. It is a wonderful forum.

Hey y'all so I realized my allergy medicine probably affected the results of the IgE allergy blood tests. I tried to start eating gluten again so that I would be able to get the full blood panel from my GI but I can't do it. I ate two meals with gluten yesterday and ended up spending half the night in the bathroom throwing up because my body couldn't digest any of it. Do you know if there are any other ways a GI could diagnose possible celiac without me having to consume it?

Hi guys! I'm newly diagnosed (just over a month ago) and before my diagnosis booked a trip to Nepal and Tibet - both of which are bound to be super NOT gluten free and likely not gluten aware. I know when travelling elsewhere it is recommended to get fresh produce etc from the grocery store and bring your own food. However, grocery store shopping will be next to impossible (in Tibet especially - I will be on a small tour driving through some very remote places!) and though Nepal may be slightly easier, I think it will be a challenge. I am fine to bring my own staples but note this trip is backpacking style and I will have barely enough room for (non-food) necessities so I unfortunately cannot bring an extra suitcase filled with food. I also doubt I will have access to microwaves for the Tibet portion of the trip. Can anyone offer the following advice: - have any of you traveled to these places or somewhere similar and how did you manage? - with limited space what would be the best staples to bring/what will stretch the farthest but take up the least space (I'm thinking a big bag of gluten-free oats? should be easy to get boiling water in most places) - CC issue is gonna be huge but what do you think is the safest bet to eat in this part of the world? Should I just live off steamed rice for the two weeks and take lots of vitamins and hope I can survive with the lack of nutrients? I'll try and add safe fruit and veg at every chance I get obviously.. (Note: fresh veggies are very scarce in Tibet - main diet it dumplings/momos, rice and yak meat - I assume the meat has a high chance of being marinated in unsafe soy sauce) - are there any pills/supplements/natural remedies to help me cope if I do get glutened (which is likely)? I heard of GliadinX - anyone have success with this? Also thinking maybe this would be a good time to invest in a Nima? Thank you so much! Any advice will be really helpful! (Also, please no comments on how I should cancel the trip, how getting glutened once will re-damage my intestines, how I should pack less clothes to fit more safe food etc! I know there is no beating Celiac and all the crappy consequences to eating gluten (I've been addicted to this website since getting diagnosed and have learned so much from you guys!) and that this is probably the worst vacation for a celiac lol. But this trip has been a life dream of mine and we actually booked it in lieu of having a wedding so for this reason I can't (won't) cancel it I know I'm taking a huge risk and many would disagree with my decision but please positive comments on how I can be best prepared and reduce the risk/reduce the symptoms will be really appreciated!) Thanks Jes

Hello. Been a while since I've been here. Not that I am necessarily better. But you've (the great peeps on this forum ! have been incredibly helpful and I know how to cope better, and I've made positive changes in mine and my daughter's lives. So, as you can see I am writing to ask you about this new EVIL I've just recently discovered is a neruo toxin, used often in frozen sea foods: Sodium triphosphate. For example; I've been eating frozen fish with gluten-free herbs and spices, added veggies for years and also frozen shrimp with hot butter and garlic. YUM! With no *apparent* side effects. I am not sure anymore...A few days ago, I had good serving of shrimp and the usual, butter with fresh garlic and a bowl of green leaf salad with olive oil and Himalayan salt and again garlic lol (a big fan of garlic here ) . Within an hour of eating, my abdomen was so bloated. I looked like I was pregnant and in my second trimester . Wow! ...Ok, I thought to myself: WHAT did I ingest with gluten or milk, that could be the cause for this?...Everything seemed ok, over the last few days. So I had to read the ingredients of this shrimp. I guess something like instinct told me to do it. And BAM, I came across that thing: Shrimp, water, Sodium triphosphate. I did some searching online and did not find too much except that 'The United States Food and Drug Administration lists STPP as "generally recognized as safe." ' https://en.wikipedia.org/wiki/Sodium_triphosphate THIS means very little to me personally. NOT reassuring at all. I found something which DID scare me: " Even though deemed safe for ingestion, this is one chemical you want to avoid if you've experienced reactions due to eating frozen fish. Check for seafood products labeled as "dry" which means they have not been contaminated with the chemical. Food products labeled as "wet" have usually been treated with sodium tripolyphosphate.STPP, is a suspected neurotoxin according to the National Institute for Occupational Safety and Health?s (NIOSH) Registry of Toxic Effects of Chemical Substances. Food-grade STPP may cause acuteskin irritation, and prolonged contact with skin should be avoided. STPP is listed on the U.S. Environmental Protection Agency?s Federal Insecticide, Fungicide and Rodenticide Act as a registered pesticide and it is also registered as an air contaminant under California?s Occupational and Safety Health Act. The material safety data sheet lists STPP as toxic to the lungs with prolonged exposure having the potential to produce organ damage. This neuro toxin also has the ability to cause internal inflammation from those suffering from autoimmune diseases. Inflammation leads to painful flare-ups." From this site: http://www.yourfibrosupport.com/fibro-relief-blog/side-effects-of-frozen-seafoodtreated-withsodium-tripolyphosphate It seems that there is one more evil to avoid. It's very hard to eat healthy, when you are on disability. It really is upsetting that even frozen fish which some of them I actually CAN afford, now are off the menu. The list just keeps getting smaller. I would like to point out that I have Candida, so it also means I can't eat things like Lentils or beans and the other gluten-free grains by the bucketfuls. I need to maintain a Paleo type diet. So, that's not cheap. We always have a lot of eggs at home and tuna and what meat I can afford, what is on sale, etc. Been considering looking into free range meats and so on but that's not cheap. So, if I go that route, I'd have to split it with a person or two and probably buy a large freezer. Oh god. Just thinking aloud here... I'd really appreciate any and all comments and suggestions. Thanks very much for being so kind, L.

I workout, but with lighter weight than normal. I never go to failure. But being tired is not one my symptoms.