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Celiac Disease & Gluten-Free Diet Blogs

My Bad List As Of Right Now

So far, I cannot eat the following -   Fish (I don't eat seafood either because a lot of people with fish allergies have shellfish allergies...) Dairy (Lactose intolerant, likely casein allergy/intolerance) Gluten (Intolerant, not Celiac) Rosemary (suspect its an allergy)   Tomatoes Chocolate Carob Ham Pepperoni Salami Lemon (and derivatives) Orange (and derivatives) Cranberry (and derivatives) Onion (powder seems to be better) Garlic (powder seems to be better) Chili powder
Rowena

Rowena

0

Spaghetti Sauce

Well it looks like I may have to learn to like beets... I've found a lot of 'Nomato' sauces. And they all include carrots and beets. Okay, I love carrots, no problem. But BEETS? Thought of them makes me shudder. Granted last time I was forced to eat them, I was really picky kid... so who knows, I may like them now. I guess I'll have to try them.   Not gonna lie though, this idea of 'Nomato' spaghetti sauce sounds pretty good, looking at all the recipes. I think I can come up with something alo
Rowena

Rowena

1

Mexican Food

Okay, so my mother in law recently made tacos for dinner. Now, this would be an easy dinner to modify to my problems. Just gimme the corn tortillas, meat, guacamole, and lettuce, and I'm good. However, one slight problem...I can't have the guacamole as my MIL makes it. Everyone in their house likes sour cream in their guacamole!   Gimme my straight avocados people! I would have said something, but it was a big party for my MIL/FIL's anniversary, so I felt really bad about it. So I had ve
Rowena

Rowena

0

Lunch Meat

So my all time favorite lunch meat is Ham... or rather WAS. Now, I've discovered that ham does me in. After eating it, my reflux/esophagitis acts up. Can't swallow very well, mostly is what happens when I eat it... Feels like its stuck in my throat.   Problem is, ham pretty much is my default lunch meat. I like sausages like salami or pepperoni too, but they are WAY too spicy. I HATE Turkey and chicken, way too dry. But ham... mmmmm. Not worth the inability to eat after though.   Howe
Rowena

Rowena

0

Women With Celiac Disease, We Are Not Alone...

I have spent a good portion of this summer enjoying my time with my family, traveling, and not obsessing about celiac disease (which has led me to not write about it either!) Overall, I am comfortable with my gluten free household and life and have accepted my diagnosis. But, the other day, in part due to fatigue and in part due to accidentally eating a KIND bar with soy protein (soy is one of my other food intolerances and I feel like total garbage after eating it), I totally lost my calm. I fo
jebby

jebby

0

Carob

So I understand things that make esophagitis act up can vary between different people. However there are items that seem to be a gold standard for almost everyone with the problem to avoid. Things like Tomatoes, Onions, Spicy, Lemons/Oranges and their corresponding juices, and even caffeine and chocolate. So I thought, well, I wanted to see if I could have my old go to when it came to chocolate. Carob. Love the stuff,honestly, and too me its really not that far off in taste from chocolate.
Rowena

Rowena

0

Vegan Not Really Vegan? Come On!

Frankly there should be a ban on labelling things vegan if they are made on shared equipment as non vegan food items. I bought some carob chips that had vegan written all over them. (Brand is Sunspire FYI). I swear I had read the allergen info at the store and saw no problem. But I also was tired and not feeling good, so it could easily have been one of those times when I saw, 'Vegan' and tossed them in the shopping cart. I don't honestly remember. Anyway, so today, I thought, well hey, I need
Rowena

Rowena

0

Gluten-Free Shopping and the New 'Normal'

Grocery shopping can be daunting to a new celiac and I think we could all use a little help. My help came in the form of a nutritionist. She gave me a page of ingredients that are gluten free ‘safe' foods and also ‘foods to avoid'. She told me to memorize these lists. At the time it seemed like an impossible task. To even learn how to pronounce some of these words seemed impossible. But memorize I did...eventually. I, like the nutritionist, believe in memorizing the list. Yes you do have to rea
Vanessa Oakley

Vanessa Oakley

0

Alcoholic Cheer

If ever I think I need some cheer, What I wouldn't give for an ice cold beer,   If i ever think I need to feel fine, It's alright I'll have a few glasses of wine,   But if I ever think that won't make me thin, it's okay I'll just drink a bottle of gin.   I'm not an alcoholic I promise, okay? But I need something stronger than coffee to start the day.
JordanBattenSymons

JordanBattenSymons

1

A Little Poem :)

Dear family and friends, if over I come, For a holiday visit, at your welcome, And we're seated 'round your lovely table, Please understand why I'm not able, To eat your many beautiful dishes, Despite your insistent, most earnest wishes. These dishes show your work and cheer, Some only made once a year, You must surely slave, hard and long, Over the oven, whistling your song, No doubt your recipes take many an hour, The finest ingredients, the best of flour. I really don't want, to p
JordanBattenSymons

JordanBattenSymons

5

I Just Came To Say Hello

So very recently I found out I have a gluten allergy and I'm already being mocked for it.   I'm being mocked for something my body has done of which I have no control over. In what world should that be right?   Anyway I don't feel like I should start venting yet but finding people on here a similar age to me (I'm 18) who can help me as a newcomer to the goodbyegluten club would be brilliant.   Do you want to know about me? If you don't I'd stop reading now.   So my name is Jordan I'm 18
JordanBattenSymons

JordanBattenSymons

3

I Need To Vent.

I think it's really sad, and I'm sure a lot of you would agree, that I am so elated to go back to college because I know people understand my needs there. This summer has been such a struggle being at home because my family just doesn't get it. I'm not sure they ever will. After being relatively gluten-free for over a year now I realize how much I was taking for granted when it comes to food.   This sounds a little silly, but food is amazing you guys. I mean, it gives us energy AND ta
lexibrowning

lexibrowning

4

Birthdays Are A Pain

So my brother turns 8 this month and I was pretty excited. Until I realized I'd be expected to bake his cake like I always have. It's not really a problem, but it's just depressing. Obviously mom doesn't want it to be gluten free because she thinks people will notice. No offense to my mother but I have mastered the gluten free baking technique. They wouldn't know. Why do I know this? Because my mom doesn't even notice   Anyway, I have to bake a brownie cake and then ice it and it's going to l
lexibrowning

lexibrowning

7

Its Not Easy Eating Clean... But Its Worth It.

As you may be aware, I've recently been diagnosed with reflux induced esophagitis. I've been on reflux meds for years, with the exception of when I was pregnant. So I figure its about time to change my diet. No one ever told me that there was a better diet for people with reflux, so I probably just aggravated my symptoms. Looking back, most of the things that bothered me most when I was pregnant are on the reflux no-no list. Now with my esophagitis, I did a little research, and decided its about
Rowena

Rowena

3

5 Lbs In One Week? Okay Maybe I Really Shouldn't Be Surprised

As many of you may know, and many may not know, I had a baby just under 4 months ago. I lost all my pregnancy weight gain pretty quickly since I was so sick during my pregnancy that I didn't gain much weight. But before I got pregnant, I had about 20 lbs of excess weight for some unexplained reason. Now, I'm trying to lose that excess weight. However I haven't been able to, despite the fact I've still been sick for MONTHS post partum, and for about a month and a half of those four months pp,
Rowena

Rowena

2

Just The Beginning

Hi, my name is Alex and I'm a college freshman. At only 18, I’ve been gluten-free for ten years (pretty much my entire life).   My mom, my two siblings, and I were diagnosed when I was only eight years old. I’ve had the experience of being ill every night and not knowing the cause. Of spending the majority of my childhood indoors because I was too tired to play outside. Of struggling to pay attention in class because it was too hard to focus.   Starting out was a challenge. When we began, t
shimallalex

shimallalex

0

Should Your Kids Be Screened For Celiac Disease?

I have four children, who are all at high risk for developing Celiac Disease. I was diagnosed with Celiac Disease 3 years ago, but have had symptoms since early childhood. My husband does not have Celiac Disease, but he carries one of the two main Celiac genes, DQ2. Due to my children’s risk, I have had their pediatrician screen them when they turn 4 years old with a Celiac panel (blood test with Celiac antibodies). My third child, Gabby, just turned 4 so she will have her first Celiac panel at
jebby

jebby

0

That Entirely Random Allergy

So a while ago, (Sometime between the last time I was active and now) I discovered I've got a VERY random allergy/intolerance. Since I've not actually had a doc say anything about it because I keep forgetting to bring it up, we'll just call it a 'problem'...   I don't have very many 'problems' that make my throat close up... But there is one problem that does. It gives me cracked lips (in the corners) and my throat becomes very swollen. Swallowing? Forget it. So what is it? Randomly, its Rosem
Rowena

Rowena

0

I Just Feel So Successful Right Now!:)

So I am back from my vacation and I feel great! I feel so good that I've finally realized that all the food I wish I could have, but can't, really isn't worth it at all. I know everyone on here has been telling me this, but as a newbie it was very hard to come to terms with. This site has done a ton of good for me:) I stayed away from gluten entirely, ate my fruits and veggies, and showed my family that I can do this (and it's really not as hard as it looks). My digestive track is working bea
lexibrowning

lexibrowning

4

Celiac Disease And Multiple Food Intolerances

There are many of us with celiac disease who develop additional food intolerances after going gluten free. Despite maintaining control of my celiac symptoms by being strictly gluten free, I have become intolerant to soy (2011), sulfites (2012), and too much dairy (late 2012-early 2013). My allergy skin prick tests for soy and milk were negative, which shows that my reactions are not IgE mediated, and, thus, not “typical” food allergies in which there would be a concern about anaphylaxis. I have
jebby

jebby

2

My Story (Gettng Diagnosed with Celiac Disease)

Everyone has their own story about how they were diagnosed. The lucky ones ‘found out’ early in life and could make the changes to their lives without too many problems. I had gone about this discovery in a convoluted sort of way with only a few hiccups. I was around 20 years old and living at home still (I’m a late bloomer, I know). One day I decided not to go to work. I just wasn’t feeling well, nothing serious but I was not about to go and work another day at my crummy job. My work, of cour
Vanessa Oakley

Vanessa Oakley

8

Kicking And Screaming

I am just tired of all the fighting it seems like I have to do with all of this life. I have had nothing but problems since I was a kid with one thing or another. As an Adult, same thing. I have been just recently diagnosed with celiac disease, on top of the Endometriosis, and PCOS. i do not have a gall bladder, or an appendix. I am just tired. I have struggled with my weight my entire life, and now with this, everyone is like you will loose so much weight. I haven't seen a result yet, I still
snash7805

snash7805

3

Today Marks the Finalization of the Food and Drug Administration's (FDA) Gluten-Free Labeling Regulation

Today marks the finalization of the Food and Drug Administration's (FDA) Gluten-Free Labeling Regulation, which will assure consumers that all products labeled gluten-free in The United States must follow standardized governmental guidelines. Nearly 10 years ago, the Food Allergen Labeling and Consumer Protection Act (FALCPA) required the labeling of the top eight allergens in food. A second and separate part of FALCPA required the FDA to define regulations for labeling products as gluten-free.
Scott Adams

Scott Adams

12

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  • Blog Comments

    • dixonpete
      Another conversation with ChatGPT about hookworms

      I suppose it's all in how you ask the question. I just asked ChatGPT how much it would cost to resolve my gut issues the way hookworms have, and ChatGPT's response was "$15,000–$30,000/year for the most plausible UC biologic/small-molecule route, or $10,000–$40,000+/year for omalizumab-style allergy modulation".

      That assumes such medication actually worked. Considering that all I have now is a reactivity to nuts, I'm highly doubtful that a drug result would even come close to what hookworms achieve for me for free (free because I incubate).

      I completely agree that most celiacs won't get a free pass on gluten from hookworms. However, I also do believe that most celiacs would have their reactivity to gluten reduced, some greatly so, and that has value. My own reactions to gluten when I'm not on hookworms are catastrophic, completely disabling, even when the exposure is small. I'm completely free of that now. Would you seriously argue I am making the wrong choice?

    • Scott Adams
      Another conversation with ChatGPT about hookworms

      My question to ChatGPT:
      Is purposeful Hookworm infection a reasonable treatment for those who have many food intolerance issues, including those with gluten intolerance who want to eat gluten?

      Answer:

      No — purposeful hookworm infection is not a reasonable or medically accepted treatment for broad food intolerance, gluten intolerance, or for people with celiac disease who want to eat gluten.

      There is real research behind the idea: hookworms can alter immune responses, and small celiac studies explored whether Necator americanus infection might make gluten exposure less symptomatic. But the best placebo-controlled trial found that hookworm infection did not restore tolerance to sustained gluten intake of 2 grams per day. It was associated with some symptom/quality-of-life improvements, but not enough to make gluten safe or to replace a gluten-free diet. (PubMed)

      For celiac disease, this is especially important: fewer symptoms does not necessarily mean the immune injury is gone. A person could feel better while still risking villous damage, nutrient deficiencies, anemia, bone loss, neurologic issues, infertility risks, or other complications from gluten exposure. The only established treatment remains a strict gluten-free diet.

      For non-celiac gluten sensitivity or multiple food intolerances, hookworm therapy is even less justified. Food intolerance can come from many causes: IBS/FODMAP sensitivity, lactose or fructose intolerance, histamine issues, mast-cell disorders, SIBO, bile acid problems, eosinophilic GI disease, medication effects, true food allergy, or poorly controlled celiac disease. Infecting oneself with a parasite does not diagnose or reliably treat those.

      There are also real risks: hookworms can cause abdominal symptoms, rash at the entry site, anemia/iron deficiency, eosinophilia, protein loss, and complications in people who are pregnant, immunocompromised, underweight, anemic, or medically fragile. Helminth therapy is not FDA-approved as a treatment, and outside a regulated clinical trial it is basically self-experimentation with a live parasite. (Medical News Today)

      A safer path would be: confirm whether this is celiac disease, wheat allergy, or non-celiac gluten sensitivity; check for nutritional deficiencies and inflammation; and work with a gastroenterologist/allergist/dietitian on a structured elimination-and-rechallenge plan. For someone with celiac disease who wants future gluten tolerance, the more reasonable options are legitimate clinical trials of drugs, enzymes, immune therapies, or vaccines — not deliberate parasite infection.

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