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Celiac Disease & Gluten-Free Diet Blogs

Wonderful Friends

The last few weeks have been a bit fraught over here with uni finals and The Job Hunt beginning, to the point where I ducked out of a dinner and night out with old school friends on Saturday because I didn't want to join in with the chat about uni and jobhunting, or to once again grill waiters in front of my friends. My friends are fine about it, I just hate having to do it. So just as I was planning a night in on my own with a tub of ice cream my boyfriend's friend rang and invited us to a gath
KCG91

KCG91

2

Turn It Around

I can't get this song out of my head.  
CaliSparrow

CaliSparrow

0

Holiday Challenge

This is a short vent. The assisted living my mom is in had a party Thursday night. They have one every month which has been good for the residents and the families. This time, it came right before Easter. I've got to tell them not to put their events so close to a holiday. It's not unusual for the main caregiver to also struggle with their health. There are three of us who are having a tough time. I'm the least of them. It is difficult to pull two events so close together.   Thursday w
CaliSparrow

CaliSparrow

0

Gluten Ataxia

Hi Guys, I am new on this blog; this is my first post. I am an anesthesiologist. My son has ataxia ( impaired wobbly gait) with poor core strength, inability to stand still without support and abnormal arms movement; he is seven years old now and these movements started since he was four years old. He has seen pediatric neurologists multiple times; he had an MRI of the brain done and it was normal. They think he might have ataxia telangiectasia. Recently he had lab work done for gluten sensitivi
jldurrani

jldurrani

3

Gluten-Free Bread

Well, last night, hubby and I thought we'd treat ourselves to a little gluten-free bread. He had problems after eating it and I'm having issues today. Not leaving the house kind of issues. It's not something that is on my diet and I really didn't think a little gluten-free bread would bother me much. Oh well. Back to eating no grains? Or maybe just not gluten-free bread.   Wondering if this is just temporary or from now on.   4/18: been having bad headaches for several days and have s
CaliSparrow

CaliSparrow

4

It's the Most Gluten-Free Time of the Year - Sing Along, Folks!

For people with celiac disease like my wife, Jackie, eating gluten-free is serious business. That's why she looks forward to grocery shopping before Passover and being able to choose from the expanded selection of cakes and cookies made with potato starch or coconut and other foods that replace wheat with ingredients she can actually digest. The season has inspired her to compose this jingle sung to the tune, usually heard around Christmas, "It's the Most Wonderful Time of the Year." It's th
Michael Antonoff

Michael Antonoff

0

Where Oh Where, Is My Tummy?

I recently started on glutamine to help to heal my leaky gut. I had been experiencing general inflammation and that is what the doctor said to do. Love it when my body gets dramatic. But, my tummy is now shrinking so fast that I don't know how to stand right. I stick out my tummy in order so that it will look "normal" to me, but I give myself a back ache pushing it out way too far. I never noticed before that I judge my posture by how my tummy looks! It looks like this is one lady that wil
1desperateladysaved

1desperateladysaved

2

Cultivating Health During Crisis

I enjoyed this article from Mark's Daily Apple. It's good advice for those of us dealing with our health during a time of crisis:   Open Original Shared Link
CaliSparrow

CaliSparrow

0

Memories Of Nowhere

I say that I am back from Nowhere. Actually I existed right here. I stayed mostly in a house. Everyday I woke up in the morning and felt as exhausted as when I lay down the night before. Throughout the day I dragged my feet and used my cloudy mind to think of ways to make life seem easy again. I placed my refrigerator on cement blocks. I could reach the lower shelves that way. I couldn't squat down like my friends did, because I needed to breath!   Nowhere overtook me during a bout with mono w
1desperateladysaved

1desperateladysaved

0

Springing Into Exercise

For decades I kept improving my diet in the hope that the energy and alertness I craved would come and stay. In my desperate way I cut junk food, baked my own 100% whole grain natural bread, and even moved to a farm. Lately, I have been thinking about the desperate way I controlled my diet, while I left exercise to chance.   By chance I got quite a lot of exercise. I am a mother of 7. I help to take care of the house and get people out to their events. I believe I run the staircase about 20 ti
1desperateladysaved

1desperateladysaved

2

Celiac Blood Work Negative. Should I Have Endoscopy Done?

I was diagnosed with IBS when I was 12 years old. I am 37 now. I have what I call "IBS episodes" of diarrhea, SEVERE pain, sweating, chills when I eat certain foods. I can't pinpoint it to wheat alone. It doesn't happen all the time, but I suffer from these "episodes" at least 4-5 times a week.   My 4-year-old was just diagnosed with Celiac. She was asymptomatic. She has a genetic disorder that we were about to start HGI in her. One of the tests they run before starting HGI is a celiac panel.
Mia'smommy

Mia'smommy

2

I Want The Ride To Stop

Alright, I'm ready to get off the ride now. I had some dairy a few weeks back and reacted to it. I'm going on a trip and thought it would be a good idea to reintroduce some intolerant foods so that I might try the swanky hotel gluten-free food. *ouch!* It was around the same time my mom went on hospice and a few other potential disasters came in that day. Just as I was dealing with the hospice evaluation, the director at my mom's place said she wanted to move someone into my Mom's room (a ro
CaliSparrow

CaliSparrow

6

Need Feedback On Demand For Gluten-Free B&b's

I'm wanting to open a gluten-free B&B in either Bullhead City, AZ or Laughlin, NV. The question is: Is there a demand for this service. Would really appreciate your comments.
nana b

nana b

7

How Long In The Penalty Box?

3-12: I eat two slices of a three cheese gluten-free pizza. | | | ¥ 3-20/21: still paying for it daily with changing symptoms.   Even things I normally eat hurt. Argh   I feel like one of those squeeze toys where, when you squeeze the stomach, the eyes pop out.   Never again cow dairy. In time, I'll have some goat yogurt but never again cow cheese. "Said the Raven...". 8-o   Maybe it's stress compounding it too. The things I'm dealing with, worrying about. Who's stomach wo
CaliSparrow

CaliSparrow

1

The Educational, Dietary and Social Experiences of College Students with Celiac Disease

Recruitment Notice! College students are invited to volunteer for a study conducted for research purposes and approved by the Pennsylvania State University. The purpose of the study is to determine what educational, dietary, and social experiences college students are having as a result of their celiac disease and what accommodations colleges and universities are making to meet the needs of these students. The study will also help to determine what recommendations college students have for scho
Kay A. Chick, Ed.D.

Kay A. Chick, Ed.D.

1

Angry That I Can't Find The Words

This forum group is a godsend. I'm very comfortable here and wish I could speak up for myself better out in the real world. Things come up, people ask things of me that I cannot give because I don't look sick on the outside. Well, I look tons better after eliminating gluten but, you know, I look normal to others regardless. People make assumptions and a lot of them.   A caregiver of my Mom's asked me to come (and bring her) to his kid's birthday party on Saturday. I don't like to say "I'm
CaliSparrow

CaliSparrow

5

Things Are Going Well - Mostly. :d

Well, since my last post things have really turned around in a good way. My mom is now on my side fully with going gluten-free. I feel so much better, though I am now having huge flare-ups of new and typical allergies, and also now having loose stool and gastro pain. I think it's my daily pills... I'm having issues with lactose still, gluten (of course), my tea tree organic castile soap (Dr. Bronner's Tea Tree Bar Soap), any shampoo (currently am using Mane and Tail), an organic body wash called
learning2cope

learning2cope

3

Traveling In China & Japan

I will be traveling in Japan and China and am looking for advice, cautions from those who have already done this.
onceandagain

onceandagain

1

Hilarious Article by Gluten Dude About Gluten Free Society

This post is outstanding. I've been thinking much the same thing for months now, but was too lazy to actually write something about it. Obviously there is no need to now, as Gluten Dude says it all...perfectly. Open Original Shared Link On one hand I am reluctant to further publicize the "Society" site in any way. After more thought, however, I realized that getting the word out may help some poor celiac not waste their money, and may prevent them from going on an unnecessarily restrictive
Scott Adams

Scott Adams

2

Check Please!

So my story begins with me planning a special dinner to surprise my husband for his birthday. Now as you all know being gluten-free, we have limited resources when it comes to eating out, however, I was bound and determined to find some place new and exciting to dine. I will not mention the name of my chosen destination due to the fact that they had only been open for a month, and my intention is not to destroy their good name, but rather to help keep people like us more engaged when it comes to
Jennifer Cottrell

Jennifer Cottrell

0

1 Year Ago

Ok so here goes..   A year ago I was having all these problems with my health. I used to be very fit and active. However, I had to relocate and became very stagnant and caught up with my situation and improving it. I started to eat 'on the go' which I had not really done so much previously. After about two years of eating mostly fast food, with no exercise and oversleeping my body started to fight back.   My body became really ill, I started sleeping all the time, had no energy even when I s
itsmebiancap

itsmebiancap

1

Wow Huge Shocker Here!

I am surprised! Mom had been not really all that willing to help me go gluten-free. She was saying "you'll be fine" in regards to cross contamination. I had sent her 2 emails to maybe spark her willingness to help out.   Here is what I included in the first email:   Here is what I included in the second email:   Just copied and pasted from celiac.com   I think those emails helped her to understand this is real and this is a real lifestyle change for me and hopefully them at home. I do
learning2cope

learning2cope

2

Second Day gluten-free And Got Glutened :(

Well I was doing great until lunch today.   Yesterday I decided right after I woke up to go gluten free to see if my mysterious symptoms resolve. I had no gluten yesterday (that I am aware of).   Since we really don't have much in the way of gluten-free foods here, I ate:   Breakfast: Isopure Zero Carb 100% whey protein isolate vanilla powder + water (smoothie) - couldn't finish it because mom had made it with tap water and our tap water is awful tasting.   Lunch: Isopure powder + soy
learning2cope

learning2cope

2

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  • Blog Comments

    • Scott Adams
      Diagnosis

      PS - You may find these articles helpful:

       

       

    • knitty kitty
      Diagnosis

      My heart goes out to you!   

      You're not alone.  I have gone through a similar situation.  Doctors are not well educated about nutrition and rarely connect endometriosis (or any disease) with nutritional deficiencies caused by the malabsorption that occurs with Celiac Disease.  

      Inflammation and the autoimmune response to gluten damages the villi in the intestines resulting in poor absorption of essential vitamins and minerals that our bodies need for proper functioning.  Correcting nutritional deficiencies is of the utmost importance to recovery.

      Deficiency in Thiamine Vitamin B 1 has been shown to be commonly found in women with endometriosis.  Deficiencies in Riboflavin B 2 and Pyridoxine B 6 have also been found, along with low Vitamin C, low Vitamin D, and low Vitamin A.  

      Do discuss supplementation with essential vitamins and minerals with your dietician and doctor.  A bioactive B Complex,  Vitamins D and A, and minerals like zinc, magnesium and calcium usually need to be supplemented.  Restoring Thiamine levels with Benfotiamine (a form of thiamine that promotes intestinal healing) will help you feel better in a short time.  

      Welcome to the tribe!

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