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Celiac Disease & Gluten-Free Diet Blogs

Celiac Rage

If there was such as thing as Celiac Rage-- I've got it today.   I am still healing my bowel from diagnosis last year. I thought I was making progress when I had a normal stool this morning. But then I had BM after BM after BM. And each one got progressively worse. Can I not be a human cesspool of Poop all the GD time? I just want one normal BM. I want it to be large in diameter, firm but not dry, and not some stupid pinky sized piece of poo pretending to be a normal poo. I know you're not th
moosemalibu

moosemalibu

11

Not Eaten Gluten In 4 Years . . . Is It Safe To Now Eat Gluten Again

I was/had been gluten free for 4 years.   I have heard that (maybe urban myth) that gluten doesn't bother me anymore.   How do I know gluten is bothering me again before it is too late?   I am still regular even when I ingest gluten accidently or can't resist cheating.   All I can think is my gluten allergy has gone away.   Is this possible? Or am I just pressing my luck for I relapse in to gluten sensitivity again,   Posterboy,
Posterboy

Posterboy

8

If You Have An Intolerance To Lactose, Soy Can You Develop A Gluten Intolerance.

I started off with a lactose intolerance( not diagnosised by doctor) But every time I eat or get any dairy or soy into my system I get very sick!!! Nausea, diaherra, Pain in stomach sometimes on a scale of 1 to 10 is a 9, weight loss (some), bloating, weakness, tiredness and dizziness. I asked my doctor if it was a lactose Intolerance they said sounds like it!! That was it, no tests, nothing. stay away from dairy of all kinds so I did and no soy because I get the same reaction. Then I started to
KMBC2014

KMBC2014

2

Celiac Disease In Children

Drs. Guandalini and Assiri have written a summary of pediatric celiac disease that was published in the online edition of the journal JAMA Pediatrics last week. In this post I will share some of the highlights of their review article.   Although the overall prevalence of celiac disease is 1% in the pediatric population, only 10-15% of children with celiac disease have been diagnosed and treated.   The celiac genes (HLA-DQ2 and DQ8) contribute 40% of the risk of developing celiac. Environment
jebby

jebby

0

What Do I Do Next?

Ok, so this is all new to me. I have never done a blog, or dealt w/ Celiac til just recently. Never have I worried about the food I have put in my body, and didn't give much thought to what my kids had either. My middle child showed signs of having an allergy. We took him and had him tested, and the only thing that showed up was a mild wheat allergy. I talked to the doctors and they said don't worry if it's not causing too many problems. I didn't worry until it really seemed like he was ha
alfgarrie

alfgarrie

3

Gluten-Free: Fad or Future?

I’m not sure when I became part of the “in crowd” but suddenly I find that I’m not weird anymore. Gluten-free is now “cool.” I go to restaurants and grocery stores and whole sections are labelled for people just like me. Stranger still, I meet people who are joining my dietary crowd. They want to be gluten-free. At first I thought they were crazy. Why would anyone want my life of intense dietary restrictions if their health didn’t require it of them? But, then I’ve seen those same pe
Jennifer Arrington

Jennifer Arrington

1

Mast Cell Activation Syndrome Madness....

At this time last year I had never heard of mast cell activation syndrome (MCAS) and the first time that I heard the name I thought that it was a “made up” disease. Since then I have come to realize that it is a real diagnosis and I have learned a ton about it, including the following:   MCAS is a newly recognized disease of the innate immune system (our bodies’ first line of defense against bacteria, viruses, parasites, and other invaders). Women make up the majority of patients with MCAS.
jebby

jebby

4

Am I Being Selfish And Inconsiderate?

So... a little background about my personal life. I live with my boyfriend in a rented house and we split bills and rent 50/50. We've been together for over a year now and he is, in my eyes, 'the one.' I've had several failed relationships and would like to think I have finally figured out what I want from a partner in my 10 years of dating experience.   Back to the topic at hand. I am Celiac. I was diagnosed in August through October. My boyfriend has given me his unwavering support through e
moosemalibu

moosemalibu

13

My Family Is Recovering From My Celiac

Disclaimer: My reactions are unique and may be more than celiac, therefore not many people would need to panic they will get like reactions. The reactions aren't labeled, so I really don't know why I am having them this way. Please don't panic .   Now, My Family Believes Me!     In my illness, I would say daily. I am tired. I didn't mean that I over did it a little, but overwhelmingly tired. My family decided that nobody could say and mean that every day. One simply couldn't say they were
1desperateladysaved

1desperateladysaved

3

Ttg/gliadin Antibody Levels

So here is the break down from my blood test results     Deaminated Gliadin Abs, IgA: 50.8 U/mL (8-20-13); 9.4 U/mL (12-11-13) TTG IgA Antibody: 74.0 U/ml (8-20-13); 12.0 U/mL (12-11-13) Reference Range for both is <7 U/mL   Interesting to see this decrease for both becuase in October I did 3 weeks of gluten challenge. I'm shocked my body is able to heal so well. I think I am lucky and caught this earlier than most. I have a Vitamin D deficiency.. less than 27 ng/L (30-100 ng/L referen
moosemalibu

moosemalibu

2

I Just Want To Scream

Test came back 'normal' even though IGG and IGA was in the normal/high range after a 7 week test (previously I was almost gluten free for a year). My ALP was normal/low.   To even speak to a specialist for a biopsy would take at least 6 months. There is no way I can continue with this challenge as depression has set in, my skin rashes on my legs looks horrible and my under eye circles have my customers asking me if they can grab me a coffee (dispite all the make up I have on).   I'm just goi
Porcelina

Porcelina

4

Frustration. All I Want Is To Be Normal

I figured it was time to vent through a blog post. Because I don't think anyone wants to keep hearing the same thing over and over again like a broken record.   Here is a little background...   In December of 2009 I slipped on an icy driveway before work and fractured my right kneecap into 3 pieces and dislocated it up and into my quadriceps muscle. I had surgery to fix it. 6 months later I fractured it again slipping and falling on slippery concrete by a friend's pool. Ironic, right? I had
moosemalibu

moosemalibu

8

Celiac Disease Around the World

I recently had to write a lesson plan for my Nutrition in the Community class for school. I am studying to be a dietetics technician in an effort to increase the awareness in that field about gluten sensitivity and celiac disease. For the lesson plan I had to create I thought: "what better to teach than to use somethings that I am quite familiar with?" So I decided to teach about becoming newly diagnosed with gluten sensitivity or celiac disease. I learned something quite interes
Carissa Bell

Carissa Bell

3

Thanksgiving Went Well

This year a doctor told me not to eat anywhere but home. My body is acting super-sensitive and I didn't want to rock the boat. I alerted my sister, the hostess, and my brother that I would be unable to eat at the gathering, but would eat on the way there. On the way there I enjoyed my very filling rice and beef casserole. I had planned to do a regular turkey dinner, but when I remembered I couldn't have mashed potatoes and gravy, I skipped it.   After arriving, I walked into the kitchen, s
1desperateladysaved

1desperateladysaved

1

Week 7

Constant aches and pains. I always have a stomach ache, my knees hurt, I want to go to bed by 8pm and I'm taking ibuprofens a few times a week to help my headaches. On top of that, at week 5, I started to develop this facial rash that is intensely itchy on my jaw bone and is red and blotchy on my whole cheek area. It almost looks like psoriasis. Can DH appear on the face too? My eczema on my legs are NOT itchy, but are gross looking, similar to that of ringworm.   I had a doctors appointment
Porcelina

Porcelina

2

Overwhelmed.

This is my first blog post, as well as my first post on this site in general. I have been to this website & forum many times before, lurking for information & understanding when I first realized the possibility of gluten intolerance in 2011. However even after I have been gluten-free, then glutened, then paneled, then gluten-free, then glutened, then scoped, I still don't know what to say or where to even begin on the forums. So this is my first jump into the Celiac Community Interweb.
Mohawk

Mohawk

1

Leg Cramps

I have been gluten free for 5 months and i have been having problems with bad leg cramps. I have read some where that was cause of gluten free diets. Has anyone had that problem?   I have started taking magnesium, i read that it would help. It has a little. I still have leg cramps just not as bad. I have read that you need to take vitamins if going gluten free. would like to know if and what anyone takes.   thanks pam
Oreo1964

Oreo1964

7

Non-Celiac Gluten Sensitivity In Children (Summary Of November 2013 Research Study)

I was thrilled to come across a paper about non-celiac gluten sensitivity in children in the Journal of Pediatrics, one of the main pediatric journals. Many of my pediatrician colleagues read this journal on a regular basis. In this article, a group of Italian researchers has described the symptoms and lab test results in 15 children with gluten sensitivity (GS) compared to 15 children with active celiac disease and 15 controls (children with IBS-type symptoms that have no correlation with glute
jebby

jebby

0

Day Thirty One

Alright. So its been a month since I've started doing the challenge and now my the tip of my thumb is starting to crack and peel. Now, some of this is to blame on the cold weather, but I DO recall that when I was almost gluten free last year, my thumb hardly split at all.   I am FINALLY free of that cold/laryngitis thing. That only took about two weeks to get rid of.   I'm not starting to find that after I eat, I am still SUPER hungry. Could it just be TTOTM (ladies will understand) or am I
Porcelina

Porcelina

5

Good News/ Bad News

I have just passed through several days of cramping, swelling, and gassiness. All of this as a result of nothing specific that I know of. Perhaps after 19 months gluten free it is just further recovery. Happily, I woke up today without the cramping and felt excellent since.   . Previous blood counts, over the passed 5 years, showed immature blood cells which tended to break easily. These have difficulty carrying oxygen. Late morning I received the happy news. Word came my blood count was nor
1desperateladysaved

1desperateladysaved

1

Gluten Free Desert Pizza Survey

Hi my name is Trevor Snyder and I'm currently a Junior in the Wake Forest Business School; in addition to this I also have Celiac disease. I am writing this blog in the hopes that you guys will complete this short survey that will help me in my marketing project on pushing a gluten free desert pizza, in addition I hope that this blog will help to create awareness for a gluten free pizza one day. Thanks! Open Original Shared Link
deacon11

deacon11

0

Day Twenty Two

I'm still not over this cold/laryngitis. Just when I thought it was over, WHAM! I'm totally fatigued again today and my throat is tightening up. I also noticed that a lymph node at the back of my neck has become swollen. I remember as a kid I used to have swollen nodes in my neck ALL the time and my doctor making a comment on it.   As for symptoms, I'm either battling IBS-C or IBS-D these past few weeks. Oh the joy.
Porcelina

Porcelina

0

Day Nineteen

So this 'cold' turned into laryngitis. I had to leave work on Friday because it hurt too much to talk. On Saturday I just napped and took it easy. However, early this morning at around 1:30am, I had a migraine that almost lead to me throwing up.   I also had insomnia during this whole ordeal, which is probably why the cold turned into laryngitis.   I'm also developing eczema again on my legs.
Porcelina

Porcelina

1

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  • Blog Comments

    • dixonpete
      Father, it's been some time since my last hookworm larvae innoculation

      29 minutes ago, RMJ said:

      Dixonpete, I thought of you when I saw this article, although it may not have anything new for you.

      Worm inspired treatments inch towards the clinic

      I read a research article today about how hookworms are being considered as a standard of care of colitis. Dunno about them used for obesity treatment though. The first thing I did once I figured out I wasn't reacting to gluten anymore was to head for the bakery isle. It had been 13 years..

    • RMJ
      Father, it's been some time since my last hookworm larvae innoculation

      Dixonpete, I thought of you when I saw this article, although it may not have anything new for you.

      Worm inspired treatments inch towards the clinic

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