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Kids and Celiac Disease
The information and philosophies that you will find in the kids section of this site are based on more than 20 years of research and experience. Many of the articles here are written by Danna Korn, founder of R.O.C.K. (Raising Our Celiac Kids), a free support group started in 1991 for families of kids on the gluten-free diet.
20 articles in this category
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Recent Activity
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- Grahamsnaturalworld posted a topic in Related Issues & Disorders0Refractory celiac disease
Where can I find a gastro in adelaide who can diagnose refractory celiac disease have seen 3 so far and don't understand the most obvious question, why my celiac symptoms did not resolve on a gluten free diet the symptoms just got worse as it is attacking my nervous system. -
- ShariW replied to Fenrir's topic in Gluten-Free Foods, Products, Shopping & Medications18GliadinX/Tolerase G
I recently traveled to Spain and Portugal. I was with a tour group, they knew I needed to be gluten-free and made sure the kitchens preparing the group meals were aware. But just in case, I took Gliadin-X with me and took it for every evening meal - and most other meals. The one time I got glutened was from lunch early in the trip - had to be from cross-contamination... -
- Hummer01 replied to Hummer01's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms8Diagnosis confusion
Hi trents, thanks for the response. The 2nd opinion doctor said that if my CRP is still elevated at that time, he would advise me to look at Crohns/UC or another autoimmune issue. The colonoscopy I had this year seemed to rule those 2 out for now so he still believed celiac may explain it. No previous doctors have suggested any explanation for it even... -
- trents replied to Hummer01's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms8Diagnosis confusion
"He also said that my CRP should return to a normal level at this time if the culprit was inflammation in the small intestine due to celiac." But with if the elevated CRP levels are caused by some other inflammatory process going on in your body? "She also said that my positive EMA isn't valuable because it has "a high false positive rate." Totally wrong... -
- Hummer01 replied to Hummer01's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms8
Diagnosis confusion
Hi all, just wanted to post an update. I have been gluten free for about 1.5 months now and seeing improvement already in the bathroom. Recently I had a visit with another GI doctor for a 2nd opinion. He said that while my blood tests and scope are not a "slam dunk" for celiac, he believes it's more likely than not that I have it. His advice was...
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