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Celiac Disease Pre-Diagnosis, Testing & Symptoms

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If you haven't yet been diagnosed this is the place you can discuss your symptoms and any test results that may indicate that you might have the disease.

17,534 topics in this forum

  1. Frustrated with doctors

    • 3 replies
    • 997 views
  2. Probable celiac, sore tongue!

    • 11 replies
    • 6,991 views
    • 8 replies
    • 1,445 views

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  4. Response to gluten-free trial?

    • 3 replies
    • 848 views
  5. Advice

    • 0 replies
    • 602 views
  6. Celiac/non-gluten sensitivity questions.

    • 1 reply
    • 563 views
    • 8 replies
    • 2,102 views
    • 5 replies
    • 1,646 views
  7. Update from GI Dr

    • 2 replies
    • 981 views
    • 8 replies
    • 1,355 views
  8. Dizziness? Anybody else?

    • 6 replies
    • 1,218 views
  9. Celiac disease or leaky gut syndrome

    • 1 reply
    • 796 views
    • 7 replies
    • 1,263 views
  10. Confused by blood results & Hello!

    • 7 replies
    • 1,203 views
  11. Blood work/Endoscopy

    • 6 replies
    • 1,206 views
  12. Endoscopy and Food

    • 4 replies
    • 1,099 views
  13. Very confused by test results

    • 13 replies
    • 2,615 views
  14. Help with daughters blood test results

    • 16 replies
    • 2,804 views
  15. Preparing for EGD and Celiac biopsy.

    • 8 replies
    • 1,522 views
  16. Possible Celiac Further Advice

    • 5 replies
    • 1,294 views
    • 15 replies
    • 2,103 views
    • 2 replies
    • 767 views
  17. Do you have to get tested?

    • 1 reply
    • 622 views
  18. low blood sugar

    • 1 reply
    • 810 views
  19. To test or not to test

    • 1 reply
    • 618 views
139 139


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  • Forum Discussions

    Each manufacturer of the test has their own range for what is positive.  Do you know the normal range for your test?   Also, some people with celiac disease have normal transglutaminase antibodies but high deamidated gliadin peptide antibodies.  Not all doctors order the test for the latter.
    I'm not sure going back to eating gluten for two weeks before the endoscopy is a long enough period. Was that per GI doc instructions?
    I have had a celiac gene test and was category 4. I went gluten free after they told me my test for celiac was "positive" on the phone but then I had some other GI issues and the specialist I saw wanted to do an endoscopy. After not having any gluten for maybe 9 or 10 months, I ate gluten for 2 weeks and then did an endoscopy. I had a ton of terrible bad burning pain after eating it, I sat with a...

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