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Celiac Disease Pre-Diagnosis, Testing & Symptoms

139 139

If you haven't yet been diagnosed this is the place you can discuss your symptoms and any test results that may indicate that you might have the disease.

17,534 topics in this forum

  1. Lindsey1978
    Victoria5289

    Frustrated with doctors

    By Lindsey1978, Last action:
    • 3 replies
    • 997 views
  2. Sarah9858
    Victoria5289

    Probable celiac, sore tongue!

    By Sarah9858, Last action:
    • 11 replies
    • 6,991 views
  3. DobbyNeedsaSock
    Victoria5289

    Preliminary Results EGD? Celiac?

    By DobbyNeedsaSock, Last action:
    • 8 replies
    • 1,445 views
    4. Celiac.com Sponsor (A8):

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  4. Liz33
    Victoria5289

    Response to gluten-free trial?

    By Liz33, Last action:
    • 3 replies
    • 848 views
  5. Inorbit

    Advice

    By Inorbit, Last action:
    • 0 replies
    • 602 views
  6. Ava7
    Jmg

    Celiac/non-gluten sensitivity questions.

    By Ava7, Last action:
    • 1 reply
    • 563 views
  7. Kristen Bennett

    Is it sometimes to late to reverse damage, and how do you know?

    By Kristen Bennett, Last action:
    • 8 replies
    • 2,102 views
  8. Mommamatt24

    Celiac Screening Positive for Type 1 Diabetic

    By Mommamatt24, Last action:
    • 5 replies
    • 1,646 views
  9. JJav123412
    RMJ

    Update from GI Dr

    By JJav123412, Last action:
    • 2 replies
    • 981 views
  10. celiac1993
    GFinDC

    Maybe a celiac- weird situation- need help

    By celiac1993, Last action:
    • 8 replies
    • 1,355 views
  11. AhhhNold
    Gemini

    Dizziness? Anybody else?

    By AhhhNold, Last action:
    • 6 replies
    • 1,218 views
  12. Turner
    Jmg

    Celiac disease or leaky gut syndrome

    By Turner, Last action:
    • 1 reply
    • 796 views
  13. CaroCaroCaro
    cyclinglady

    Is skipping a biopsy a terrible idea?

    By CaroCaroCaro, Last action:
    • 7 replies
    • 1,263 views
  14. bees
    cyclinglady

    Confused by blood results & Hello!

    By bees, Last action:
    • 7 replies
    • 1,203 views
  15. confusedbytest

    Blood work/Endoscopy

    By confusedbytest, Last action:
    • 6 replies
    • 1,206 views
  16. dalek100
    Jmg

    Endoscopy and Food

    By dalek100, Last action:
    • 4 replies
    • 1,099 views
  17. CaroCaroCaro
    Gemini

    Very confused by test results

    By CaroCaroCaro, Last action:
    • 13 replies
    • 2,615 views
  18. Aliciam07

    Help with daughters blood test results

    By Aliciam07, Last action:
    • 16 replies
    • 2,804 views
  19. AhhhNold

    Preparing for EGD and Celiac biopsy.

    By AhhhNold, Last action:
    • 8 replies
    • 1,522 views
  20. dalek100

    Possible Celiac Further Advice

    By dalek100, Last action:
    • 5 replies
    • 1,294 views
  21. Kristiemarie
    Gemini

    Question About Genetic Tests for celiac disease

    By Kristiemarie, Last action:
    • 15 replies
    • 2,103 views
  22. Kelloramma
    GalaxyDuster

    Getting ready for the GI visit, results

    By Kelloramma, Last action:
    • 2 replies
    • 767 views
  23. TheBugsMomma
    Jmg

    Do you have to get tested?

    By TheBugsMomma, Last action:
    • 1 reply
    • 622 views
  24. stacieb
    Jmg

    low blood sugar

    By stacieb, Last action:
    • 1 reply
    • 810 views
  25. Cjm1985
    notme!

    To test or not to test

    By Cjm1985, Last action:
    • 1 reply
    • 618 views
139 139

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  • Forum Discussions
    RMJ

    Transglutaminase IgA autoantibodies result is only 1 u/ml

    Each manufacturer of the test has their own range for what is positive.  Do you know the normal range for your test?   Also, some people with celiac disease have normal transglutaminase antibodies but high deamidated gliadin peptide antibodies.  Not all doctors order the test for the latter.
    trents

    Tiny itchy bumps on fingers, and lifting nails off nailbeds?

    I'm not sure going back to eating gluten for two weeks before the endoscopy is a long enough period. Was that per GI doc instructions?
    snowywolf

    Tiny itchy bumps on fingers, and lifting nails off nailbeds?

    I have had a celiac gene test and was category 4. I went gluten free after they told me my test for celiac was "positive" on the phone but then I had some other GI issues and the specialist I saw wanted to do an endoscopy. After not having any gluten for maybe 9 or 10 months, I ate gluten for 2 weeks and then did an endoscopy. I had a ton of terrible bad burning pain after eating it, I sat with a...
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