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Celiac Disease Pre-Diagnosis, Testing & Symptoms

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If you haven't yet been diagnosed this is the place you can discuss your symptoms and any test results that may indicate that you might have the disease.

17,536 topics in this forum

  1. Frustrated, what do I do next

    • 1 reply
    • 858 views
  2. Are these more celiac symptoms?

    • 3 replies
    • 1,321 views
  3. BLOOD TEST

    • 1 reply
    • 962 views

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  5. Is It Celiac

    • 2 replies
    • 1,279 views
  6. Latent/Early Celiac?

    • 1 reply
    • 948 views
  7. Should I get tested for Celiac

    • 4 replies
    • 918 views
  8. Need help with analyzing test results.

    • 2 replies
    • 737 views
    • 1 reply
    • 1,391 views
  9. I'm so scared and depressed....

    • 1 reply
    • 902 views
  10. Common symptoms

    • 1 reply
    • 727 views
  11. Endoscopic Biopsy or Not?

    • 3 replies
    • 883 views
  12. Specialists curiosity on Cyrex test?

    • 4 replies
    • 920 views
  13. Second guessing diagnosis

    • 7 replies
    • 1,049 views
  14. Am I Celiac? Negative Blood Test and Biopsy

    • 5 replies
    • 2,362 views
  15. Suffering and unsure

    • 1 reply
    • 620 views
  16. Do I Have Celiac ? And Gluten Intolerance

    • 6 replies
    • 1,016 views
  17. Intestinal Lining

    • 2 replies
    • 1,068 views
  18. sick

    • 3 replies
    • 891 views
  19. DQ2/DQ8 testing

    • 2 replies
    • 727 views
  20. Test Results - Advice

    • 9 replies
    • 949 views
    • 6 replies
    • 1,289 views
    • 2 replies
    • 744 views
  21. Confused- Please help

    • 4 replies
    • 868 views
    • 23 replies
    • 4,193 views
  22. Numbness & Tingling

    • 24 replies
    • 5,074 views
139 139


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    JD........low white cell counts are common in autoimmune disease.  Mine were very low for my entire life ( I am now 61) and they have gone up to almost normal range now once I had been gluten free for awhile.  It did take a long time for them to bounce back, but they did.  I was diagnosed at age 46. All of your symptoms scream of Celiac so if you do not have an endoscopy, recheck of antibodies for...
    Does anyone know if the HLA-DQ–gluten tetramer-based Celiac Test is available in the US? I saw the article that it was being tested in Norway.   Thank you, Sarah
    Trent’s.......those antibody tests are specific to Celiac.  While it looks like the doctor did not test the EMA, with results that high and rapid weight loss, Celiac is a strong contender.  Other AI conditions can raise tTg but usually only by much smaller numbers.  The Gliadin IgA is an older test but the one they used when I was diagnosed 15 years ago.  It is the test for gluten consumption in th...

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