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Mer123

Rotting Teeth

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Hi after seeing many symptoms, the doctor did a genetic blood test and found I had the highest possible genetic marker for Celiac Disease, she said "do you want to go gluten free now?" or do you want to see the Gastroenterologist for a biopsy I said I'd wait for  biopsy (without which I wouldn't get the govt subsidy for bread and such like)............ the problem is I could be waiting for 4 months and the gluten I have to eat to get an accurate biopsy result is rotting my teeth (I lost 4 in the one year I went to get the genetic test) has anyone else had this problem?? 

 

 

 

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When you say you got the genetic tests, did you also get a celiac disease blood panel that shows different antibody results? If so, please share that info with us, as this is normally how celiac disease is diagnosed, and a referral for a biopsy is made.

Issues with teeth enamel is a symptom of celiac disease, but your case sounds extreme. You should discuss this with your doctor to get the biopsy moved sooner. If they can't move the appointment you will need to decide how much an official diagnosis is worth to you. It could be dangerous to your health to keep eating gluten that long.

Here are some articles on teeth issues and celiac disease:

https://www.celiac.com/search/?q=dental&quick=1&type=cms_records2&search_in=titles 


Scott Adams

Celiac.com - Celiac Disease Board Moderator

Founder Celiac.com

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Just now, Scott Adams said:

When you say you got the genetic tests, did you also get a celiac disease blood panel that shows different antibody results? If so, please share that info with us, as this is normally how celiac disease is diagnosed, and a referral for a biopsy is made.

Issues with teeth enamel is a symptom of celiac disease, but your case sounds extreme. You should discuss this with your doctor to get the biopsy moved sooner. If they can't move the appointment you will need to decide how much an official diagnosis is worth to you. It could be dangerous to your health to keep eating gluten that long.

Here are some articles on teeth issues and celiac disease:

https://www.celiac.com/search/?q=dental&quick=1&type=cms_records2&search_in=titles 

Thanks Scott that's really helpful, another doctor gave me the immunological (or something) blood test 7 years ago after I in passing was saying that I happened to had not eaten bread that week and had felt incredible, that test was positive for celiac, and she put me on the wait list for the biopsy the thing was, a nurse rang me while I was waiting the 4 months for the biopsy and eating gluten free and said the "gastroenterologist might want you to eat gluten" which I took to mean "once he's seen you" instead of what she meant to convey "he'll want you to eat gluten UP until you see him"....... So I had the biopsy after not eating gluten for four months of course it was negative I realised in hindsight that it was a false negative after I had gone back to eating gluten because I couldn't afford not to, after that a whole lot of other symptoms started to appear but the doctor refused to do anymore testing because the specialists not believing I'd been very strictly gluten free believed I was just slightly intolerant and gave my doctor a hard time for sending patients for this expensive test for the sake the fashionable eating habits, so the celiac has progressed in the 7 years to the point of losing my tooth enamel the original doctor has since retired and her replacement did the genetic test 

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