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Introductions 👋
Hi!! My daughter was just diagnosed with Celiac Disease.  I've been shocked by how little education the doctor offered other than a pamphlet and advice to "start eating a gluten-free diet".  We left the appointment having no idea what gluten was! After 2 weeks of online research, I thought why not create this club where people can share good information with others in South Carolina?  You are welcome to share your knowledge with others around you.  If you're not from South Carolina.No worries!  You are welcome here too.
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Recent Activity
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- Mettedkny replied to hjayne19's topic in Traveling with Celiac Disease5
Mallorca Guide
You already got some great recommendations. Just want to second that Mallorca (and Spain in general) is one of the best and easiest places for celiacs to travel. I have been to Mallorca multiple times and have never experienced any cross contaminations and there are SO many easy to buy options in regular supermarkets. Hope you have a wonderful trip. -
- cristiana replied to Charlie1946's topic in Related Issues & Disorders40
Severe severe mouth pain
I agree. If someone has Barrett's Esophagus, at least here in the UK, as I understand it under normal circumstances a PPI needs to be taken long term (or similar medication). I have two friends with this. The PPI it does have side effects but they still have to take it. -
- knitty kitty replied to Charlie1946's topic in Related Issues & Disorders40
Severe severe mouth pain
Do talk to your doctor about making changes to your medication. I'm not a medical doctor. I'm a microbiologist. I studied nutrition before switching to microbiology because I was curious what vitamins were doing inside the body. I would hate to give advice that jeopardizes your health, so do discuss things with your doctor. -
- knitty kitty replied to Jmartes71's topic in Related Issues & Disorders1
New issue
@Jmartes71, Sorry you've been feeling so poorly. Are you taking any medication to treat the SIBO? Are you taking any Benfotiamine? Benfotiamine will help get control of the SIBO. Thiamine deficiency has symptoms in common with MS. Have you had your gas appliances checked for gas leaks and exhaust fume leaks? Carbon Monoxide poisoning...