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Can You Have Cd And Crohns?


mart

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mart Contributor

Before my 7 year old son was diagnosed with celiac disease about 6 weeks ago, he was in the hospital and a blood test showed a positive marker for Crohns. The two back up marker tests showed negative. He said, "he doesn't have Crohns for now." Then he called with the results for the endoscopy results, showing blunting of the villi. That's when he did a blood test for celiac disease, and that came back positive. I was thrilled that he was diagnosed with celiac disease and not Crohns, however, the doctor said that because of that positive marker, he may have Crohns when he's older. He says he does not know what that single positive marker for Crohns means. How horrible that would be! Has anyone ever heard of someone having celiac disease and Crohns?

Anyway, I'm pretty down, as I've noticed that the symptoms for Crohns were pretty much the same as for celiac disease. Although my son has been gluten-free for 6 weeks, he hasn't gained an ounce of weight and he still periodically complains of stomach pain. So now I'm afraid it could be Crohns. I think I can handle celiac disease, but Crohns and celiac disease? Lord help us!


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lbsteenwyk Explorer

You can have both celiac disease and Crohn's Disease, but don't panic yet. Are you sure your son is completely gluten free? Any chance that he's getting cross-contaminated or "cheating" at school? Getting contaminated from art supplies, playdoh, etc? Have you checked his soap, shampoo, etc?

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    • Rogol72
      Hey @Butch68, I also have dermatitis herpetiformis but don't suffer from it anymore. I used to drink Guinness too but I drink Cider now when out on social occasions. I assume you are in Ireland or the UK. If it's any good to you ... 9 White Deer based in Cork brew a range of gluten-free products including a gluten-free Stout. I'm not sure if they are certified though. https://www.9whitedeer.ie/ I haven't come across any certified gluten-free stouts this side of the pond.
    • Scott Adams
      This is a very common question, and the most important thing to know is that no, Guinness is not considered safe for individuals with coeliac disease. While it's fascinating to hear anecdotes from other coeliacs who can drink it without immediate issues, this is a risky exception rather than the rule. The core issue is that Guinness is brewed from barley, which contains gluten, and the standard brewing process does not remove the gluten protein to a level safe for coeliacs (below 20ppm). For someone like you who experiences dermatitis herpetiformis, the reaction is particularly significant. DH is triggered by gluten ingestion, even without immediate gastrointestinal symptoms. So, while you may not feel an instant stomach upset, drinking a gluten-containing beer like Guinness could very well provoke a flare-up of your skin condition days later. It would be a gamble with a potentially uncomfortable and long-lasting consequence. Fortunately, there are excellent, certified gluten-free stouts available now that can provide a safe and satisfying alternative without the risk.
    • MogwaiStripe
      Interestingly, this thought occurred to me last night. I did find that there are studies investigating whether vitamin D deficiency can actually trigger celiac disease.  Source: National Institutes of Health https://pmc.ncbi.nlm.nih.gov/articles/PMC7231074/ 
    • Butch68
      Before being diagnosed coeliac I used to love Guinness. Being made from barley it should be something a coeliac shouldn’t drink. But taking to another coeliac and they can drink it with no ill effects and have heard of others who can drink it too.  is this everyone’s experience?  Can I drink it?  I get dermatitis herpetiformis and don’t get instant reactions to gluten so can’t try it to see for myself. 
    • trents
      NCGS does not cause damage to the small bowel villi so, if indeed you were not skimping on gluten when you had the antibody blood testing done, it is likely you have celiac disease.
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