Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Dietician And Doctor Visit


toxemicfrog

Recommended Posts

toxemicfrog Rookie

hi guys,

went to dietician yesterday....."great guy" and very helpful. Gave me a list of web sites and even a list of gluten-free shops and cafes in the 100klm radius....way cool.

on the down side went to the doctor....iron levels well down, worst allergy ever to all types of grass and grass seeds and to top it all off estrogen levels that should be 300-400 are over 1000....now i have to get ultrasound scan. Possibility of ovarian tumor as the only other time estrogen is this high is early onset of puberty or preganancy....sheesh i feel like my body is my enemy at the moment.

they are also going to scan my stomach looking for ulcers and celiac disease damage as the dietician says that with my chronic sensitivity to gluten it may take 2 years for my belly to heal. Malabsorption is a problem and can only eat the freshest meat and seafood as immune system is so comprimised that i get food poisoning at the drop of a hat.

dietician is adding this site to his list for all newly diagnosed celiac disease sufferers as he feels the support is invaluable!!!!!!(this is a great thing...i told him how much everyone has helped me and he agrees that just having someone who understands post back to you is very important).

Dr is also appalled at how underdiagnosed celiac disease is in australia and will now be screening all stomach complaints for celiac disease ...so i feel like at least we have helped create awareness with the medical pros in my area...lets hope a little bit goes a long way.

have a great day

:D


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



GC1 Rookie
hi guys,

went to dietician yesterday....."great guy" and very helpful. Gave me a list of web sites and even a list of gluten-free shops and cafes in  the 100klm radius....way cool.

on the down side went to the doctor....iron levels well down, worst allergy  ever to all types of grass and grass seeds and to top it all off estrogen levels that should be 300-400 are over 1000....now i have to get ultrasound scan. Possibility of ovarian tumor as the only other time estrogen is this high is early onset of puberty or preganancy....sheesh i feel like my body is my enemy at the moment.

they are also going to scan my stomach looking for ulcers and celiac disease damage as the dietician says that with my chronic sensitivity to gluten it may take 2 years for my belly to heal. Malabsorption is a problem and can only eat the freshest meat and seafood as immune system is so comprimised that i get food poisoning at the drop of a hat.

dietician is adding this site to his list for all newly diagnosed celiac disease sufferers as he feels the support is invaluable!!!!!!(this is a great thing...i told him how much everyone has helped me and he agrees that just having someone who understands post back to you is very important).

Dr is also appalled at how underdiagnosed celiac disease is in australia and will now be screening all stomach complaints for celiac disease ...so i feel like at least we have helped create awareness with the medical pros in my area...lets hope a little bit goes a long way.

have a great day

:D

<{POST_SNAPBACK}>

I agree about the medical system being largely in the dark about celiac disease. An old Cherokee man told me about celiac disease, or I'd likely never figured-out I have it. I asked my dentist what effect it had on my gum disease, and he said he had never heard of it! Lucky for me, after going gluten-free my GD cleared up.

I assume there are alot of Irish [or part] in Australia... seems they have really high numbers of those with celiac disease. I get celiac disease from being part Irish and part Cherokee.

Good luck,

GC

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - Scott Adams replied to Butch68's topic in Gluten-Free Foods, Products, Shopping & Medications
      1

      Guinness, can you drink it?

    2. - MogwaiStripe replied to Midwestern's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      15

      Gluten Issues and Vitamin D

    3. - Butch68 posted a topic in Gluten-Free Foods, Products, Shopping & Medications
      1

      Guinness, can you drink it?

    4. - trents replied to Xravith's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      17

      Taking Probiotics but Still Getting Sick After Gluten – Advice?


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      132,211
    • Most Online (within 30 mins)
      7,748

    MogwaiStripe
    Newest Member
    MogwaiStripe
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • Scott Adams
      This is a very common question, and the most important thing to know is that no, Guinness is not considered safe for individuals with coeliac disease. While it's fascinating to hear anecdotes from other coeliacs who can drink it without immediate issues, this is a risky exception rather than the rule. The core issue is that Guinness is brewed from barley, which contains gluten, and the standard brewing process does not remove the gluten protein to a level safe for coeliacs (below 20ppm). For someone like you who experiences dermatitis herpetiformis, the reaction is particularly significant. DH is triggered by gluten ingestion, even without immediate gastrointestinal symptoms. So, while you may not feel an instant stomach upset, drinking a gluten-containing beer like Guinness could very well provoke a flare-up of your skin condition days later. It would be a gamble with a potentially uncomfortable and long-lasting consequence. Fortunately, there are excellent, certified gluten-free stouts available now that can provide a safe and satisfying alternative without the risk.
    • MogwaiStripe
      Interestingly, this thought occurred to me last night. I did find that there are studies investigating whether vitamin D deficiency can actually trigger celiac disease.  Source: National Institutes of Health https://pmc.ncbi.nlm.nih.gov/articles/PMC7231074/ 
    • Butch68
      Before being diagnosed coeliac I used to love Guinness. Being made from barley it should be something a coeliac shouldn’t drink. But taking to another coeliac and they can drink it with no ill effects and have heard of others who can drink it too.  is this everyone’s experience?  Can I drink it?  I get dermatitis herpetiformis and don’t get instant reactions to gluten so can’t try it to see for myself. 
    • trents
      NCGS does not cause damage to the small bowel villi so, if indeed you were not skimping on gluten when you had the antibody blood testing done, it is likely you have celiac disease.
    • Scott Adams
      I will assume you did the gluten challenge properly and were eating a lot of gluten daily for 6-8 weeks before your test, but if not, that could be the issue. You can still have celiac disease with negative blood test results, although it's not as common:  Clinical and genetic profile of patients with seronegative coeliac disease: the natural history and response to gluten-free diet: https://www.ncbi.nlm.nih.gov/pmc/articles/PMC5606118/  Seronegative Celiac Disease - A Challenging Case: https://www.ncbi.nlm.nih.gov/pmc/articles/PMC9441776/  Enteropathies with villous atrophy but negative coeliac serology in adults: current issues: https://pubmed.ncbi.nlm.nih.gov/34764141/  Approximately 10x more people have non-celiac gluten sensitivity than have celiac disease, but there isn’t yet a test for NCGS. If your symptoms go away on a gluten-free diet it would likely signal NCGS.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.