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kellydenbigh

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kellydenbigh Newbie
kellydenbigh
Posted
:) hi all, im new to all this, i was diagnosed with celiac disease 3 years ago but struggled really badly that i quit, i was never ill, it was through having mouth ulcers that they discovered that i had celiac disease, i went through denial, and all i could think was "why me". but i went to the doctors last thursday about a bad neck and not being able to sleep propally, and he brought me back to reality that i have to stick to gluten-free diet, so here i am again trying to cope but it is so hard, im 24 and from being able to eat what i like to having to cut out all my favorite things like butties and pastys. anyone out there that can give me any tips on staying possitive? also i cant cook to save my life i have no inititive when it comes to cooking, im someone who is always eating on the go. xx :(
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jenvan Collaborator
jenvan
Posted

kelly-

glad you're doctor has reminded you of going gluten-free! you can do it with some patience and determination and you will find there are a ton of foods out there that you like just as well! i encourage you to ck your products too--ie. shampoos, lotions and to switch those products out for gluten-free ones. staying positive--for me it helps to find foods that are great replacements for gluten filled ones, it means surrounding myself with positive people, trying not to dwell on the situation but be grateful--that we have a disease that can be dealt with by diet and we don't have to take a slew of medicines. i also remind myself to be grateful that i was diagnosed and that most celiacs are not...and that means a greatly increased risk of other diseases and cancer. try and take the focus off of food too, think of other things you like to do. anyway, welcome to the board. ask away when you need help. the people here are amazing and very knowledge and can field questions on just about anything related to Celiac!

are you familiar with any of the gluten free brands out there? there are a few threads on here about favorite gluten-free products. i have put some info below on some mainline brands with gluten-free products to get you started. you can also get the updated gluten-free food list compiled by delphi forum members. i also double ck and still read labels though. to get that list do the following: (and i credit celiac3270 for the directions : )

1) Go to the website, Open Original Shared Link

2) Click on "messages" or "start reading"

3) Select the folder "gluten-free Product List"

4) Click on the topic called "Downloadable files word"

5) Of the four options, choose the one in the upper right.

You may need to register (the basic version is free) in which case, just register first, then complete the steps above.

here are some quick gluten-free food ideas since you said you don't like to cook!

Thai Kitchen--lots of gluten-free thai type dishes...really good. You just add the meat you want, noodles, sauce etc are included. Open Original Shared Link

Amy's makes quite a few frozen dinners and a cheese pizza that are gluten-free. Amy's also makes quite a few gluten-free canned soups that are good too. You can see their products and get their gluten-free list here. Open Original Shared Link

If you have a Trader Joe's by you-they have several gluten-free frozen stirfries and dinners. Just ck the gluten-free list on the website--east or west coast. They also have chicken sausage that is awesome!

Gluten free pantry makes some good skillet meals. Just add meat or beans. We really like the stroganoff meal. Open Original Shared Link free.com/glu/showprod.cfm...jectGroup_ID=74

Have you tried Tinkyada's gluten-free pasta yet? It is great and you can make a ton of quick meals with it.

Dinty Moore beef and chicken stew are gluten-free--just throw them in a pot to heat up.

Other quick meal ideas--tacos and taco salads are made gluten-free easy, rice and beans, lasagna, pasta dishes, stirfries, hamburger/fries (love Alexia fries-gluten-free!), rice/quinoa pilafs (there are a lot of quick/precooked rices out now), chips/salsa, we eat "breakfast for dinner" sometimes--gluten-free pancakes (Pamela's mix is our favorite) w/ meat/veggie omelettes, frozen veggies are usually gluten-free and easy to prepare as a side, baked beans--(most of Bush's are gluten-free), sandwiches with gluten-free bread and miracle whip etc, Delmix has some gluten-free taquitos as well as costco beef taquitos, Dinty Moore microwave meals, Hormel Tamales, Lundberg Rice Sensations, Perdue Short Cuts, Sam's Club beef Taquitos...

go here to ck out some gluten-free food lists of mainline manufacturers:

Open Original Shared Link

Open Original Shared Link

Open Original Shared Link

Open Original Shared Link

Open Original Shared Link

Open Original Shared Link

Open Original Shared Link

Open Original Shared Link

Open Original Shared Link

Open Original Shared Link

Open Original Shared Link

frenchiemama Collaborator
frenchiemama
Posted

If you're a pasty fan, check out www.grandmaferdons.com. They make the best beef pasties, I just love them.

Canadian Karen Community Regular
Canadian Karen
Posted

Hey guys,

I am curius what butties and pastys are. I have never hear of them.......

Karen

Nicolette Rookie
Nicolette
Posted

Butties are sandwiches and pasties are like pies, only handheld and can be eaten hot or cold.

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    • knitty kitty
      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

      By knitty kitty · Posted

      @Jane02, I hear you about the kale and collard greens.  I don't do dairy and must eat green leafies, too, to get sufficient calcium.  I must be very careful because some calcium supplements are made from ground up crustacean shells.  When I was deficient in Vitamin D, I took high doses of Vitamin D to correct the deficiency quickly.  This is safe and nontoxic.  Vitamin D level should be above 70 nmol/L.  Lifeguards and indigenous Pacific Islanders typically have levels between 80-100 nmol/L.   Levels lower than this are based on amount needed to prevent disease like rickets and osteomalacia. We need more thiamine when we're physically ill, emotionally and mentally stressed, and if we exercise like an athlete or laborer.  We need more thiamine if we eat a diet high in simple carbohydrates.  For every 500 kcal of carbohydrates, we need 500-1000 mg more of thiamine to process the carbs into energy.  If there's insufficient thiamine the carbs get stored as fat.  Again, recommended levels set for thiamine are based on minimum amounts needed to prevent disease.  This is often not adequate for optimum health, nor sufficient for people with absorption problems such as Celiac disease.  Gluten free processed foods are not enriched with vitamins like their gluten containing counterparts.  Adding a B Complex and additional thiamine improves health for Celiacs.  Thiamine is safe and nontoxic even in high doses.  Thiamine helps the mitochondria in cells to function.  Thiamine interacts with each of the other B vitamins.  They are all water soluble and easily excreted if not needed. Interesting Reading: Clinical trial: B vitamins improve health in patients with coeliac disease living on a gluten-free diet https://pubmed.ncbi.nlm.nih.gov/19154566/ Safety and effectiveness of vitamin D mega-dose: A systematic review https://pubmed.ncbi.nlm.nih.gov/34857184/ High dose dietary vitamin D allocates surplus calories to muscle and growth instead of fat via modulation of myostatin and leptin signaling https://pubmed.ncbi.nlm.nih.gov/38766160/ Safety of High-Dose Vitamin D Supplementation: Secondary Analysis of a Randomized Controlled Trial https://pubmed.ncbi.nlm.nih.gov/31746327/ Vitamins and Celiac Disease: Beyond Vitamin D https://pmc.ncbi.nlm.nih.gov/articles/PMC11857425/ Investigating the therapeutic potential of tryptophan and vitamin A in modulating immune responses in celiac disease: an experimental study https://pubmed.ncbi.nlm.nih.gov/40178602/ Investigating the Impact of Vitamin A and Amino Acids on Immune Responses in Celiac Disease Patients https://pmc.ncbi.nlm.nih.gov/articles/PMC10814138/
    • Jane02
      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

      By Jane02 · Posted

      Thank you so much @knitty kitty for this insightful information! I would have never considered fractionated coconut oil to be a potential source of GI upset. I will consider all the info you shared. Very interesting about the Thiamine deficiency.  I've tracked daily averages of my intake in a nutrition software. The only nutrient I can't consistently meet from my diet is vitamin D. Calcium is a hit and miss as I rely on vegetables, dark leafy greens as a major source, for my calcium intake. I'm able to meet it when I either eat or juice a bundle of kale or collard greens daily haha. My thiamine intake is roughly 120% of my needs, although I do recognize that I may not be absorbing all of these nutrients consistently with intermittent unintentional exposures to gluten.  My vitamin A intake is roughly 900% (~6400 mcg/d) of my needs as I eat a lot of sweet potato, although since it's plant-derived vitamin A (beta-carotene) apparently it's not likely to cause toxicity.  Thanks again! 
    • knitty kitty
      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

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    • Scott Adams
      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

      By Scott Adams · Posted

      I do not know this, but since they are labelled gluten-free, and are not really a product that could easily be contaminated when making them (there would be not flour in the air of such a facility, for example), I don't really see contamination as something to be concerned about for this type of product. 
    • trents
      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

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      Contact them.
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