Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

New To This And Need Help


joeessex

Recommended Posts

joeessex Rookie

hi all my name is joe ! anyhow i am 27 years old and in around September i kept feeling mysteriously ill and getting alot of anxiety and depression mainly anxiety and feeling ill all the time, sick dizzy a feeling of not myself stomach pains and cramps alot of feeling ill after eating someday ok other days very bad flu like symptoms feeling foggy in the head panic attacks 2 of my main symptoms where red eyes or like a blood shot eye and post nasal drip constant swallowing basically i want feeling well lol in lots of ways anyway i noticed in around December January that i would feel ill after eating certain types of foods pastry ect and other things so around 2 and a half weeks ago the anxiety had gotten good and i decided after reading about celiac and gluten intolerance to compleatly cut out gluten even in condiments toothpaste i cut it completely out the very nexy day i still felt abit ill but slightly less i then felt iller than before i almost like withdrawal symptoms they soon went and i didnt feel ill any more my red eyes that where red almost everyday compleatly went the post nasel drip stopped almost other night with the red eyes and i didnt feel sick after eating anymore my stools started to look better and within a week i was feeling great like i hadent felt in a long while then 5 days ago i eat somethings that contain glutain without knowing i let my guard down and within one hour i started to feel sick and then i had ditherer bad aswell i felt very anxious the next day i felt sick ill had slightly red eyes and the post nasel drip was back the day after that i felt abit dizzy and very sick afetr eating and more runny stools then the day after i felt a bit better then we get to today post nasil drip has gone ted eyes gone anxiety good no depression and dont feel sick atall doctor thinks i have had a virus along with anxiety but the nutritionist thinks the proofs in the pudding and i am gluten sensitive ok sorrry for lack of punctuation as i am not good at typing thanks for reading my post i have enjoyed learning about celiac and what i can and cant eat i would like really for as people with epericance your thoughts on what i have gone throgh kind regards joe  


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Cara in Boston Enthusiast

Resume eating gluten and go to the doctor for a blood test.  I definitely sound like you are intolerant.  If you don't feel you need an "official" diagnosis, stop eating gluten 100% - be careful of even the smallest amounts and cross contamination.  

 

I had many of your symptoms.  Most were gone within a week, some took a little longer.  Now if I accidentally have gluten - even the tiniest amount, I am sick for days.  It can take weeks for me to get back to normal.  I don't make mistakes often.

 

Good luck to you.

 

Cara

joeessex Rookie

Resume eating gluten and go to the doctor for a blood test.  I definitely sound like you are intolerant.  If you don't feel you need an "official" diagnosis, stop eating gluten 100% - be careful of even the smallest amounts and cross contamination.  

 

I had many of your symptoms.  Most were gone within a week, some took a little longer.  Now if I accidentally have gluten - even the tiniest amount, I am sick for days.  It can take weeks for me to get back to normal.  I don't make mistakes often.

 

Good luck to you.

 

Cara

 

 

Resume eating gluten and go to the doctor for a blood test.  I definitely sound like you are intolerant.  If you don't feel you need an "official" diagnosis, stop eating gluten 100% - be careful of even the smallest amounts and cross contamination.  

 

I had many of your symptoms.  Most were gone within a week, some took a little longer.  Now if I accidentally have gluten - even the tiniest amount, I am sick for days.  It can take weeks for me to get back to normal.  I don't make mistakes often.

 

Good luck to you.

 

Cara

thanks Cara i am feeling better and better everyday the further away from gluten i get in time the greater i feel!   i am not going to eat nasty gluten and feel rubbish as far as i am concerned i have confirmed proof i am intolerant and i look forward to feeling great in my new lifestyle thanks : )

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - lizzie42 posted a topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      0

      Son's legs shaking

    2. - trents replied to Paulaannefthimiou's topic in Gluten-Free Foods, Products, Shopping & Medications
      1

      Bob red mill gluten free oats

    3. - trents replied to jenniber's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      10

      Disaccharide deficient, confusing biopsy results, no blood test

    4. - Paulaannefthimiou posted a topic in Gluten-Free Foods, Products, Shopping & Medications
      1

      Bob red mill gluten free oats

    5. - jenniber replied to jenniber's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      10

      Disaccharide deficient, confusing biopsy results, no blood test

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      132,849
    • Most Online (within 30 mins)
      7,748

    Jadelucia
    Newest Member
    Jadelucia
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Who's Online (See full list)

  • Upcoming Events

  • Posts

    • lizzie42
      My 5yo was diagnosed with celiac last year by being tested after his sister was diagnosed. We are very strict on the gluten-free diet, but unsure what his reactions are as he was diagnosed without many symptoms other than low ferritin.  He had a school party where his teacher made gluten-free gingerbread men. I almost said no because she made it in her kitchen but I thought it would be ok.  Next day and for a few after his behavior is awful. Hitting, rude, disrespectful. Mainly he kept saying his legs were shaking. Is this a gluten exposure symptom that anyone else gets? Also the bad behavior? 
    • trents
      Not necessarily. The "Gluten Free" label means not more than 20ppm of gluten in the product which is often not enough for super sensitive celiacs. You would need to be looking for "Certified Gluten Free" (GFCO endorsed) which means no more than 10ppm of gluten. Having said that, "Gluten Free" doesn't mean that there will necessarily be more gluten than "Certified Gluten" in any given batch run. It just means there could be. 
    • trents
      I think it is wise to seek a second opinion from a GI doc and to go on a gluten free diet in the meantime. The GI doc may look at all the evidence, including the biopsy report, and conclude you don't need anything else to reach a dx of celiac disease and so, there would be no need for a gluten challenge. But if the GI doc does want to do more testing, you can worry about the gluten challenge at that time. But between now and the time of the appointment, if your symptoms improve on a gluten free diet, that is more evidence. Just keep in mind that if a gluten challenge is called for, the bare minimum challenge length is two weeks of the daily consumption of at least 10g of gluten, which is about the amount found in 4-6 slices of wheat bread. But, I would count on giving it four weeks to be sure.
    • Paulaannefthimiou
      Are Bobresmill gluten free oats ok for sensitive celiacs?
    • jenniber
      thank you both for the insights. i agree, im going to back off on dairy and try sucraid. thanks for the tip about protein powder, i will look for whey protein powder/drinks!   i don’t understand why my doctor refused to order it either. so i’ve decided i’m not going to her again, and i’m going to get a second opinion with a GI recommended to me by someone with celiac. unfortunately my first appointment isn’t until February 17th. do you think i should go gluten free now or wait until after i meet with the new doctor? i’m torn about what i should do, i dont know if she is going to want to repeat the endoscopy, and i know ill have to be eating gluten to have a positive biopsy. i could always do the gluten challenge on the other hand if she does want to repeat the biopsy.    thanks again, i appreciate the support here. i’ve learned a lot from these boards. i dont know anyone in real life with celiac.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.