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Possible Celiac Sufferer

jmryan83

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jmryan83 Rookie
jmryan83
Posted

Hello All,

 

This is my first post here and I'm hoping that more self-discovery will help me find relief.

 

First off, I don't know if I have Celiac's Disease, but I suspect after much research and my symptoms that I might. Some of my symptoms have been so off-the-wall that I never would have associated them with anything GI related, but after reading forums and articles, they just might be.

 

Hopefully a doctor's appointment later this month will lead to a referral to a GI specialist so I can get confirmation.

 

Til then, I am desperate to find relief and am willing to give gluten-free or atleast gluten-reduced living a try to see if my symptoms abate.

 

The scariest thing about all of this is I love to cook, but I couldn't afford to make my whole family eat this way and I can't be constantly cooking two meals. Is it possible that minor amounts of gluten and some during cross-contamination can be tolerated?  

 

Thanks in advance.

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mushroom Proficient
mushroom
Posted

Welcome to the board.

 

Just a quick warning note!  Do not start eating gluten free if you plan on pursuing testing.  Celiac testing requires you to be eating a full gluten diet.

shadowicewolf Proficient
shadowicewolf
Posted

Don't go off of gluten until all of the testing is done.

 

No, those with celiac do not handle any trace amounts of gluten at all.

jmryan83 Rookie
jmryan83
Posted
  • Author

Don't go off of gluten until all of the testing is done.

 

No, those with celiac do not handle any trace amounts of gluten at all.

 

Hmm. Well if people with Celiac don't handle any gluten at all then maybe I just have a gluten intolerance. Sighs. I understand the need to be eating a regular diet before testing, but that could be weeks if not months down the road. I thought I could at least try it and see if it gives any relief. 

mushroom Proficient
mushroom
Posted

Unfortunately, "just having a gluten intolerance" can be just as painful as celiac.  Your body will let you know :ph34r:

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      Confusion about my son's results

      By lizzie42 · Posted

      When I originally posted I hadn't talked to the pediatrician yet and didn't realize about the budosinide. Now I feel pretty confident. I was concerned that all of the tests didn't come back positive - that seemed kind of ambiguous to me. I didn't realize that was common. Do a lot of people on here have a positive tTG but negative other tests? I thought the EMA was pretty "gold standard." 
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      Confusion about my son's results

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    • Diana Swales
      Confusion about my son's results

      By Diana Swales · Posted

      If your son is only 5 and his sister is diagnosed celiac disease, is it a possibility that he has been eating a majority gluten free diet with his sister.  If this is the case his result would be low or negative.  The choice would be yours as to whether to put him in onto a full gluten diet for 4 -6 weeks, handle and NOTE the changes in his diet, behavour and body symptons.  Then to test again and see if there is a difference.  The other choice is to just continue on the gluten free diet without any medical diagnosis.  Remembering that should you decide to actually have the test in the future you will have to run the gluten challenge.  Please let us know how we can support you  
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