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Make Gluten-Free Food Safe For Patients And Consumers - Huffington Post


Scott Adams

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Huffington Post

A mere decade ago, celiac disease -- an autoimmune disorder that makes it impossible for an individual to consume gluten, which is found in wheat -- was only just beginning to be understood. In fact, it wasn't even recognized as a disease at all. The ...

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Unless they tell us what is in the actual text of the proposed gluten free labeling regulations "under review," it is like endorsing a pig in a poke.  It could be even worse than what we have now if it allows things like unlabeled oats or unlabeled codex wheat starch to be called "gluten free."   Furthermore, this HuffPo blog piece by Rep. Lowrey (NY) and Dr. Fassano (Boston) STILL does not mention the wayward stepchildren of celiac, the millions of merely gluten intolerant people.  At least some of the gluten intolerant are extremely sensitive to gluten and have to eat at least as carefully as a celiac or become sick, if you added THEIR numbers into the number of people who are diagnosed with celiac (from what I have seen, there seems to be quite a tug of war over this, with many different lobbyist factions DESPERATE to downplay the numbers) you can explain the startling growth of the gluten free foods market.

 

What shocked me about this blog piece was that it seems to want to cut down on the gluten free foods total that are available.  No, you healthy researcher/medical/political people still don't "get it," we want lots of gluten free (and other allergen free food for other people) widely available and safely made and labeled, because people ARE eating it, and most celiacs are still NOT diagnosed, and a lot of gluten intolerants are still stumbling around trying to figure it out, so it's still going to be a growth market.  
It's not FIBRO and it's not IBS and it's NOT AIYH.   It's gluten. 

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    • trents
      I know what you mean. When I get glutened I have severe gut cramps and throw up for 2-3 hr. and then have diarrhea for another several hours. Avoid eating out if at all possible. It is the number one source of gluten contamination for us celiacs. When you are forced to eat out at a new restaurant that you are not sure is safe, try to order things that you can be sure will not get cross contaminated like a boiled egg, baked potatos, steamed vegies, fresh fruit. Yes, I know that doesn't sound as appetizing as pizza or a burger and fries but your health is at stake. I also realize that as a 14 year old you don't have a lot of control over where you eat out because you are tagging along with others or adults are paying for it. Do you have support from your parents concerning your need to eat gluten free? Do you believe they have a good understanding of the many places gluten can show up in the food supply?
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      Thank you I will i have been on a strict gluten free diet ever since I got diagnosed but sometimes places lie about there food so there r some things that do get contaminated which causes me to throw up on end for several hours until I can't hold myself up anymore 
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      Welcome to celiac.com, @Teaganwhowantsanexpltion! Joint pain is a well-established symptom of celiac disease. But joint pain may also be caused by other medical problems such as rheumatoid arthritis, chronic fatigue syndrome, etc. Make sure you share these concerns with your physician so that he or she can initiate testing or make referrals to specialists. As someone with celiac disease it is very important that you be consistent with the gluten free diet.
    • Scott Adams
      Let us know how things go.
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