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Make Gluten-Free Food Safe For Patients And Consumers - Huffington Post


Scott Adams

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Huffington Post

A mere decade ago, celiac disease -- an autoimmune disorder that makes it impossible for an individual to consume gluten, which is found in wheat -- was only just beginning to be understood. In fact, it wasn't even recognized as a disease at all. The ...

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Unless they tell us what is in the actual text of the proposed gluten free labeling regulations "under review," it is like endorsing a pig in a poke.  It could be even worse than what we have now if it allows things like unlabeled oats or unlabeled codex wheat starch to be called "gluten free."   Furthermore, this HuffPo blog piece by Rep. Lowrey (NY) and Dr. Fassano (Boston) STILL does not mention the wayward stepchildren of celiac, the millions of merely gluten intolerant people.  At least some of the gluten intolerant are extremely sensitive to gluten and have to eat at least as carefully as a celiac or become sick, if you added THEIR numbers into the number of people who are diagnosed with celiac (from what I have seen, there seems to be quite a tug of war over this, with many different lobbyist factions DESPERATE to downplay the numbers) you can explain the startling growth of the gluten free foods market.

 

What shocked me about this blog piece was that it seems to want to cut down on the gluten free foods total that are available.  No, you healthy researcher/medical/political people still don't "get it," we want lots of gluten free (and other allergen free food for other people) widely available and safely made and labeled, because people ARE eating it, and most celiacs are still NOT diagnosed, and a lot of gluten intolerants are still stumbling around trying to figure it out, so it's still going to be a growth market.  
It's not FIBRO and it's not IBS and it's NOT AIYH.   It's gluten. 

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    • Rejoicephd
      @Scott Adams That's actually exactly what I ended up asking for— vodka tonic with Titos.  I saw on their website that Tito's is certified gluten-free (maybe many of the clear vodkas are, I don't know, I just happened to look up Tito's in advance). I should have actually specified the 'splash' though, because I think with the amount of tonic she put in there, it did still end up fairly sweet.  Anyway, I think I've almost got this drink order down!
    • Wends
      Be interesting to see the effects of dairy reintroduction with gluten. As well as milk protein sensitivity in and of itself the casein part particularly has been shown to mimic gluten in about 50% of celiacs. Keep us posted!
    • deanna1ynne
      She has been dairy free for six years, so she’d already been dairy free for two years at her last testing and was dairy free for the entire gluten challenge this year as well (that had positive results). However, now that we’re doing another biopsy in six weeks, we decided to do everything we can to try to “see” the effects, so we decided this past week to add back in dairy temporarily for breakfast (milk and cereal combo like you said).
    • Gigi2025
      Hi Christiana, Many thanks for your response.  Interestingly, I too cannot eat wheat in France without feeling effects (much less than in the US, but won't indulge nonetheless).  I also understand children are screened for celiac in Italy prior to starting their education. Wise idea as it seems my grandson has the beginning symptoms (several celiacs in his dad's family), but parents continue to think he's just being difficult.  Argh.  There's a test I took that diagnosed gluten sensitivity in 2014 via Entero Labs, and am planning on having done again.  Truth be told, I'm hoping it's the bromine/additives/preservatives as I miss breads and pastas terribly when home here in the states!  Be well and here's to our guts healing ❤️
    • Wends
      Lol that’s so true! Hope you get clarity, it’s tough when there’s doubt. There’s so much known about celiac disease with all the scientific research that’s been done so far yet practically and clinically there’s also so much unknown, still. Out of curiosity what’s her dairy consumption like? Even compared to early years to now? Has that changed? Calcium is dependent in the mechanism of antigen presenting cells in the gut. High calcium foods with gluten grains can initiate inflammation greater.  This is why breakfast cereals and milk combo long term can be a ticking time bomb for genetically susceptible celiacs (not a scientific statement by any means but my current personal opinion based on reasoning at present). Milk and wheat are the top culprits for food sensitivity. Especially in childhood. There are also patient cases of antibodies normalising in celiac children who had milk protein intolerance/ delayed type allergy. Some asymptomatic. There were a couple of cases of suspected celiacs that turned out to have milk protein intolerance that normalised antibodies on a gluten containing diet. Then there were others that only normalised antibodies once gluten and milk was eliminated. Milk kept the antibodies positive. Celiac disease is complicated to say the least.
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