Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Colonoscopy


kendall9

Recommended Posts

kendall9 Newbie

I'm looking for parents of toddlers who had a colonoscopy. My 2.5yo is having an endoscopy and colonoscopy next week, and I'm so worried about how both the prep and the recovery post procedure will be. Specifically regarding the colonoscopy. Can anyone ease my worries, or at least, tell me how bad it is so I can prepare as much as possible? Thank you.

Background- she's had intermittent bloody stools that have become a daily occurrence. Her tTG is >150, so the doctor suspects celiac, but is also scoping her lower end to look for a source of the bleeding which has caused pretty significant anemia.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Gemini Experienced

I don't know how you do a prep for such a young child and I'm not sure I would be too willing myself to go along with that but I wish you heaps of good luck and hope everything works out well for your little girl!  I know that many celiac's have bloody stool pre-diagnosis so with a tTg that high, I am guessing they will find nothing other than the fact she needs to go gluten-free and heal.

That is a very high tTg for such a young child but at least you have definitive answers coming.  The anemia most likely is more from malabsorption with blood results like that. 

I understand your worries but I'm sure your daughter will be OK! 

kendall9 Newbie

I don't know how you do a prep for such a young child and I'm not sure I would be too willing myself to go along with that but I wish you heaps of good luck and hope everything works out well for your little girl!  I know that many celiac's have bloody stool pre-diagnosis so with a tTg that high, I am guessing they will find nothing other than the fact she needs to go gluten-free and heal.

That is a very high tTg for such a young child but at least you have definitive answers coming.  The anemia most likely is more from malabsorption with blood results like that. 

I understand your worries but I'm sure your daughter will be OK! 

Thanks for the words of support.  Yes, I'm dreading the prep- nothing but clear liquids after breakfast the day before, then a pedialyte and miralax cocktail the night before and morning of.  Good times.  :(

Really just can't wait to go gluten free and be done with this mess.  I feel horrible every time I feed her a piece of toast or a bowl of pasta.  I've been so keen to feed her nutritious whole foods since she started solids, and here I was slowly poisoning her.  It's just awful. 

Gemini Experienced

No, no, no!  You were not poisoning your daughter because you just did not know.  We all did the same thing.  I do not have chldren myself BUT I should have figured out mine much sooner than I did....I think, for me, on some level it was denial.  Unfortunately, gluten needs to be ingested if you want it to show on biopsy.  Personally, I think with a tTg that high in a 2 year old, she is going to show damage anyway.  It is rare to get a positive on a blood test in a child so young so she must have triggered right from the get go. There is a woman here at work and her nephews went through hell.....failure to thrive and they both nearly died from malnutrition.  At least you are finding out early so your daughter will be spared all those other autoimmune issues that go with late diagnosis.  That is huge.

 

I give you credit because I cannot imagine how you explain to a 2 year old they have to have nothing but jello for a day.  Please tell me that she doesn't have to ingest as much prep as an adult?  :o   The good news is that the gluten-free diet is easy compared to this hurdle.  Really....there is so much great stuff out there now, kids and adults do not need to feel deprived.  Your daughter is young...she will heal fast!

 

Keep us informed of the results and how your daughter did through it all!

Denine Newbie

Thanks for the words of support.  Yes, I'm dreading the prep- nothing but clear liquids after breakfast the day before, then a pedialyte and miralax cocktail the night before and morning of.  Good times.  :(

Really just can't wait to go gluten free and be done with this mess.  I feel horrible every time I feed her a piece of toast or a bowl of pasta.  I've been so keen to feed her nutritious whole foods since she started solids, and here I was slowly poisoning her.  It's just awful. 

I know how you feel.  I was feeding out family whole wheat this and whole wheat that.  Now, I feel like I was poisoning my daughter.  I know I wasn't because I didn't know, but hindsight is 20/20.

 

My daughter is 10 and was dx'd at the end of January.  She had an endoscopy at that time.  She was still having a lot of pain and other problems, so we were concerned that she may have Chron's disease on top of the celiac.  So, we did another endoscopy and a colonoscopy.  I was nervous about the prep at her age.  I can sure understand you concerns.  Push electrolyte fluids as well as the prep.  DD drank her prep in gatorade, but it wasn't enough.  She complained in the evening about being dizzy.  They did give her a liter of fluids IV prior to her procedure.  It was the same people and at the same place as the first endo.  They gave her medicine to sedate her, did the scope and she came back.  She was a bit unsteady on her feet when she first woke up and had to go to the bathroom, but quickly woke up. I hope this helps.  My daughter does not have Chron's for which we are very thankful!

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - Francis M replied to Francis M's topic in Gluten-Free Restaurants
      6

      The Happy Tart review

    2. - trents replied to Francis M's topic in Gluten-Free Restaurants
      6

      The Happy Tart review

    3. - trents replied to Francis M's topic in Gluten-Free Restaurants
      6

      The Happy Tart review

    4. - Francis M replied to Francis M's topic in Gluten-Free Restaurants
      6

      The Happy Tart review


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      131,852
    • Most Online (within 30 mins)
      7,748

    Cherie T
    Newest Member
    Cherie T
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.4k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • Francis M
      Absolutely my point with Kerrigan, the owner. She stood to secure many years of faithful patronage by simply inviting us in for a pastry or lunch. Or by simply producing another $50 e-card based on trust. We would have been highly satisfied. We are limited to a few restaurants in the area, and that would have been one. It was very disappointing, esp to my wife, to realize we can't patronize the place anymore.
    • trents
      You would think any business would see the wisdom of honoring a $50 gift certificate on the basis of customer satisfaction alone, apart from any questions about software glitches.
    • Francis M
    • trents
      So there was no physical, plastic card involved, correct?
    • Francis M
      When my wife attempted to open the online card in the store with a cashier, it would not work. We then showed the owner the link to the card, the online receipt that I got upon purchase, and even my bank statement confirming the purchase. That did not satisfy her, since she said she needed the link to open to reveal the gift ID num. They even admitted they had a systems problem around that time.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.